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Old 10-03-2003, 08:19 AM   #1
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Post Arachnoiditis

Hello Everyone,

I was wondering if anyone here is suffering from Arachnoiditis. If so could you please tell me what your symptoms were.
I had fusion surgery on June 30 on two levels. Since this surgery my pain has increased and I now suffer with pain in both my legs. I also have had pitting edema in both legs and feet for over a month. I awake every night with so much nerve pain and in the morning my right hand is always numb. I just had a lumbar CT Scan and they found edema and that the thecal sac had deviated slightly to the left. When I tried a web search for this finding I was giving search results for arachnoiditis which I never heard of before. I have had a total of 4 epidurals and 1 discogram. I also suffer from migraine headaches. I even experienced the burning sensation in the buttock area and it nearly made me scream. I have been having so much testing done by multiple doctors and so far findings were anemia, internal bleeding, pitting edema of legs and feet. I still have to endure more testing.

Any replies would be greatly appreciated.

Take Care

------------------
Cervical MRI 10/02
Loss of cervical lordosis with reversal of the curvature.
C4-5 and C6-7 disc bulges resulting in flattening of the ventral margin of the cord.
C5-6 there is a left foraminal herniation which results in moderate foraminal stenosis In addition, there is flattening of the ventral margin of the cord due to bulging disc.
Cervical Epidural 5/19/03

Lumbar MRI 10/02
Lumbar Lordosis
L5-S1 disc herniation with moderate thecal sac deformity.
L4-5 disc desiccation with bulge which results in mild thecal sac deformity and mild bilateral foraminal stenosis.
L2-3 disc desiccation with Schmorl’s nodule of L3.
Lumbar Epidural 1/30/03
Lumbar Epidural 2/12/03
Lumbar Epidural 2/26/03
Lumbar Discogram 5/23/03
Lumbar CatScan 5/23/03
Posterior Fusion & Infuse on L4,L5,S1 6/30/03
Lumbar X-Ray 7/24/03
Lumbar X-Ray 8/27/03
Still no pain relief....
Lumbar CT Scan 9/24/03
Waiting for results....

 
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Old 10-06-2003, 08:38 PM   #2
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Hello Again,

I am just bumping this up to the beginning again in hoping someone will see it that may have any information on Arachnoiditis.

Have a great night.

 
Old 10-06-2003, 10:26 PM   #3
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hello, i am sorry to hear you are in so much pain. but there is not a cure for your condition. and they say most times surgery can actually make it worse. i really dont have that mush to say i just want to say i am sorry that your are in so much pain and i hope to can find a way to lesson the pain.

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christina
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Old 10-06-2003, 11:03 PM   #4
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Hi,
You can try this site for Arachnoiditis. I hope it helps some. Dodi
[url="http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Ara chnoiditis&number=6DaysPrune=1000&LastLo gin="]http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Ara chnoiditis&number=6DaysPrune=1000&LastLo gin=[/url]

 
Old 10-07-2003, 07:58 AM   #5
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Hello Christina,

Thank you for replying. I believe my surgery did infact make my pain worse. I have another appointment with my neuro surgeon on Friday so I am researching and coming up with all the information I can find. Thank you for your kind words. I hope that you have a great day.

Hello Discododi,

Thank you so much for the link. I am going to visit it right now. I hope that you also have a great day.

Take Care

 
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