It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Brain & Nervous System Disorders Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 10-03-2003, 12:12 AM   #1
Newbie
 
Join Date: Oct 2003
Posts: 2
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
stacih HB User
Question Possible Acoustic Neuroma

I am a 34 year old woman, normally very healthy, and I am going through hell. It started in 1999 with my left ear feeling plugged up. I complained to my doctor on numerous occasions, and he insisted it was fluid in my ear each time (even prescribing me antihistamines which didn't work). I had an episode of vertigo in 1999 as well that left me unable to move (because nausea and spinning sensation was so bad) and I couldn't talk (tried to yell to husband). I broke out in sweat and vomited immediately following this weird episode. In 2001 I had another vertigo attack while in the shower. I thought for sure I was going to die, and again it dropped me to the floor and the above symptoms were present only this time it affected my vision (everything got really dark). In 2002 my symptoms progressed to fluctuating hearing loss (when my ear feels really "full" I don't seem to hear well), and pain at the jaw right in front of my ear. My doctor told me to see a dentist. I saw a dentist who is very familiar with TMJ (plus he's been my dentist for 20 years now). He was absolutely positive my problem was not dental related and sent me back to my doctor. Shortly after my dental visit, I started to have rigors (chills so bad I would shake violently). I didn't have health insurance, so I didn't go back in...yet. In January of this year I had another vertigo attack that was much more severe than the others, even causing me to drool. (I should note that I did not know these were attacks of vertigo until recently). I had a bad cold at the time, so when my cheek on that side felt like I had a shot of novacaine I ignored it, though that numbness lasted for about 2 weeks or longer after my cold went away. I went back to my doctor in April because my ear was having stabbing pains and was feeling really full at the time. He removed excess ear wax and gave me ear drops for a "red and irritated eardrum"... The eardrops were used for the complete course and did NOTHING for me. I went back to the doctor for followup after that and he insisted I see a dentist again because my ear looked fine. He even told me to get a new dentist. Well...two days later I woke up and the whole bottom part of my ear (down to the lobe) and my face in front of my ear were completely numb. I FREAKED OUT!!!! Called the doctor who again said to go to the dentist. I called my dentist and told him about the numbness, he suggested I can my doctor and see an ENT (thank god for dentists!!) I went to an ENT at that time, who did not diagnose me, but was able to tell me that my "fullness" was from Eustachian tube dysfunction caused by an underlying problem (which I will get to) and NOT by fluid in the ear. He examined me and decided I need to have an MRI to "rule out an ear tumor" Unfortunately that is as far as we got for now...you see...my ENT advised me at that time to consider not seeing him again until I get health inurance because "this could get very expensive". He feels that I may have an Acoustic Neuroma and says that if it is not that they will have to look for more serious problems such as vascular problems involving the veins in my brain. I am scared to death, I must say. I have to wait (due to a pre-existing clause with health insurance) until Jan 31st to have an MRI. My doctor's nurse does not want me to wait, but I cannot pay for it on my own so I must. Since then I have this horrible pulsating in my ear that beats to the rhythm of my pulse. I hear it mostly when I lie down in bed (especially if it's nice and quiet in the room). I have also lost weight and AM NOT trying to!!! (60 pounds in 2 years). I no longer have facial numbness, but I do get sharp prickly pains in it now (just on my left side, though). My left eye has started to have a "full" sensation now as well. Nothing appears wrong with it when I look in the mirror, but it feels funny sometimes. Anyone have an opinion on whether I should wait it out? I am truly scared, and I have a six year old daughter that needs her mom to stick around a while :-) I know this was a long post and I apologize for that...

 
Sponsors Lightbulb
   
Old 10-14-2003, 07:07 PM   #2
Junior Member
 
Join Date: Sep 2003
Posts: 16
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
diabia HB User
Post

I know how scared you must feel. I was diagnosed with an acoustic neuroma this spring after an MRI and hearing test. My hearing on the left ear (same side as 1.5 cm tumor) is 2/3rd gone. I was tired all the time, experienced constant tinnunitis, headaches, pain in my left side of face (from my jaw to the eye). My insurance company paid out $75,000.00 since I started doctoring with this. I did not have surgery but I had gamma knife radiation in June. My next MRI is for Nov. to see if the tumor is dying and decreasing in size. If anything get your hearing tested on each individual ear. This will signify why you feeling this way. I will be more than willing to keep in touch with you. No one can understand what you are going through except yourself. Diane

------------------

 
Old 10-14-2003, 07:42 PM   #3
Newbie
 
Join Date: Oct 2003
Posts: 2
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
stacih HB User
Post

Thank you so much for your reply :-) I did having my hearing tested on both sides and was told it is within normal range. This was just tone testing, but I feel better now knowing my hearing hasn't been affected. Over the past few weeks my tinnitus has subsided, and I haven't had numbness in months, but sometimes I get little prickly pains on the left side of my face. My ENT notes say that I have a blunted corneal reflex on the left side (someone told me that means the nerves are working, just not well). So now I wonder if I'm just worried about nothing and if I should just cancel insurance and be done with it...

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
ACOUSTIC NEUROMA and numb feeling in the cheek flipfun Inner Ear Disorders 5 01-08-2008 08:45 AM
Acoustic Neuroma Questions Soundy Brain & Nervous System Disorders 9 09-18-2007 02:57 PM
Help with surgery/acoustic nueroma/mengioma torontoe1970 Inner Ear Disorders 5 09-12-2007 03:52 PM
Acoustic Neuroma/MRI Question The Inquirer Hearing Disorders 1 05-03-2007 09:47 PM
Diagnosed today -- Acoustic Neuroma tumor of inner ear and Arachnoid Cyst kippy6 Ear, Nose & Throat 1 06-22-2006 09:06 AM
Acoustic Neuroma and Arachnoid Cyst kippy6 Brain & Nervous System Disorders 0 06-21-2006 09:15 PM
Post Acoustic neuroma surjury anxiety27 Brain & Nervous System Disorders 3 04-03-2006 01:58 AM
acoustic neuroma anxiety27 Brain & Nervous System Disorders 1 10-14-2005 08:40 PM
possible relation of neurontin & inner ear problems wpshooter Inner Ear Disorders 0 06-02-2005 02:10 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off









Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ativan
Dilantin
Lexapro Neurontin
Paxil
  Topamax
Tylenol
Valium
Xanax
Zoloft


Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Brain & Nervous System Disorders

    cin66 (10), Kasey443 (8), Hamilton92 (3), NerveEnding (2), kelsifyer (2), scout316 (2), feelbad (2), PhxAnGeL (1), thefarm (1), mcoffey42 (1)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (469), mscat40 (424), tetonteri66 (421), jennybyc (404), sammy64 (391), jgrangran (364)

    All times are GMT -7. The time now is 07:43 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.