This is ripping my life apart. - Brain & Nervous System Disorders Message Board

SweetSori · 10-01-2003, 11:15 AM

hello, i used to post here but i went to spain on vacation for a while and just recently came back. I will explain my situation so u understand better:

1. Last summer i became sick from stomach and never got 100% better.

2. Feeling of unbalanced, uncomfortable walk as if though my feet are sinking for 5 months now.

3. Unsteadiness when sitting or lying down, like if im going to fall to the sides. Unsteadiness when doing a constant movement, like side to side, or when i come out of a moving thing, like a car...etc...

4. Eyes are horrible, i am so sensitive to bright light, always see afterimages, jumpy eyes.

5. Sometimes i get vibrations through my body at night when i havent been active during a day.

Basically thats it, neuro said it was either a hormonal change or it is due to my TMJ, even though my dentist told me my TMJ has improved a lot. Went to ENT, everything perfect. NEED HELP ON THIS PLEASE, i am only 17 and dont even feel like going anywhere anymore with this uncomfortableness with my body, please help asap, and hope its not MS.... THANK YOUUUU VERY MUCH!!! sorry if it sounded so serious, KISSES

scotland79 · 10-01-2003, 02:05 PM

Hi

sorry to hear you are going through all this, i remember your posts from the last time. I dont really know what you have but what i can say is that i get your no 2 symptom. Feelings of feet sinking when walking, and slightly unbalanced even though neurological examinations and brain mri were clear. I am currently waiting to see a neurologist to find out whats causing this. I do not think you have MS since it usually starts with weakness of muscles and it also affects your eyes making you go blind for a few days, and also your bladder, making you incontinent, but im no doctor, just read up on it a lot. You should maybe post on the MS board for advice. If you havent yet had an mri i think you should. If the neurologist doesnt come up with anything for me i am going to ask for an mri of my back since i thinkthat has something to do with the feelings i have. Good luck to you. keep us posted.
Lyndsay xx

SweetSori · 10-02-2003, 11:21 AM

thank you for replying lindsay!!!!! I know that the feeling of feet sinking is horrible, do you get it every time you walk? I do, but if i wear someting like flip flops where i can get half my foot out of the shoe, I KNOW IT SOUNDS WEIRD, i dont get the feeling so much...its mostly when im barefoot or with closed shoes, and if i try to ignore it, i feel like im going to fall straight down... i am hoping that its from my braces, and i dont want to get an mri yet because they really scare me and id rather not know that i have MS yet because at least now i have the hope that i might not have it, and if i do, i know i will become soooooo depresssed because i used to be such an activ person..if u come across any info please get back to me on it, THANK YOU!!!!! GOOD LUCK WITH THE MRI!!!!

10-02-2003, 11:53 AM

[QUOTE]Originally posted by SweetSori:
Re: ..."Feeling of unbalanced, uncomfortable walk as if though my feet are sinking for 5 months now...
Unsteadiness when sitting or lying down, like if im going to fall to the sides. Unsteadiness when doing a constant movement, like side to side, or when i come out of a moving thing, like a car...etc"...

Vertigo?

..."Eyes are horrible, i am so sensitive to bright light, always see afterimages, jumpy eyes."...

Photophobia...An Opthalmologist visit could help. There is a link between vision and balance...

..."Sometimes i get vibrations through my body at night when i havent been active during a day."...
Poor circulation?

scotland79 · 10-03-2003, 06:59 AM

Sweetsori,

I know that the feeling is so annoying!!! i really can relate to you on that one. I dont get it every time when i walk but i maybe get it for a day or two then it goes away then comes back etc, i have it today actually, just picked my daughter from school and when walking back it felt as though i was walking on a bouncy castle!!! total nightmare! I too find that it worse with bare feet and closed shoes. I find it most annoying when i have trainers on. wonder why that is? I have posted on a few boards asking what this could be but with very little help. One or two people did suggest neuropathy, but im not sure thats what i have. I got medication since they thought it was vertigo like Gemi suggested but none of the medications worked so it definetly isnt that, vertigo is more of a room spinning sensation anyway, rather than feeling funny when walking. Please dont be scared to get an MRI, it will give you peace of mind. Until you do you will always be wondering and worrying. It might be that it can be easily fixed, or it might be something slightly more complicated but at least then you will know to deal with it and its helps you cope with the symptoms more. Im no doctor but im quite sure it wont be MS. Please try and go to the Ms boards then you will see what i mean. Good luck to you.
Lyndsay