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Old 09-10-2003, 12:01 PM   #1
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CestLaVie23 HB User
Lightbulb Arachnoid Cysts????

I went to the neurologist yesterday morning, and presented him with my symptoms. For the last 4 years, I have suffered from extreme balance problems, lethargy, headaches (bizarre headaches, on the upper right side of my head), and vision changes. I do have an MRI scheduled for Tuesday, which terrifies me. The neuro told me it could be a cerebral arachnoid cyst. Does anyone know exactly what this is and can you share you story with me, please? I'd appreciate it!

 
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Old 09-26-2003, 02:11 AM   #2
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kristix HB User
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hello

 
Old 09-26-2003, 02:15 AM   #3
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kristix HB User
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hello
i just was told i have a arachnoid cyst. i also have bad head aches, have had them for the last 6 to 7 years, i also have balence issues. the cyst seems to be the cause of this although i have not had my mri yet to find out the details of my cyst i don't know too much about it. but i also would like advise - information, or to share with others and hear about your expeirence...i am alittle nervous about my poor little brain ...i am 25, female.
kristi

 
Old 09-26-2003, 08:01 PM   #4
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cmomson HB User
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hello all. can relate. i have had a severe headache for a month now which has totally disabled me in that i can not do ANYTHING that requires exertion because the pain gets worse and it feels like my head will explode. well anyway, in trying to find reason for headache, i had mri which showed that i have a non functioning pituitary tumor AND an arachnoid cyst. To my horror, my neurologist, a neurosurgeon and a brain tumor specialist all agreed that i do not require surgery to remove either because they are NOT the cause of my headache pain and they are too small to remove at this time. HOWEVER, i was also informed to watch for any vision problems or change in headache pain or the onset of any other problems because the cyst and the tumor will have to removed "sooner than later" but not right now. i was just reading last night that if an arachnoid cyst goes untreated it could cause severe medical problems. i guess my drs want me to get very close to an emergency situation before they are willing to help. its too bad that these drs fear to do their jobs. i believe alot of it has to do with malpractice suits. anyway, i will keep everyone posted. i have been put on elavil for the headache pain, told to stay home from work for 2 more weeks, go back to neurologist in 6 weeks and in meantime have family dr order heart test just to rule out every other reason for me to have such severe head pain. c ya later.
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Old 09-28-2003, 11:48 AM   #5
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I was also told to have tons of heart test done ... ALL so far have come back fine! i don't understand why they don't think the cyst has anything to do with the headaches, it blows my mind ..haha. the dr didn't even tell me how big mine was when we found out about it, just told me to follow it up with another dr, they annoy me!
kristi

 
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