Re: venous angioma
the higher risk for bleed is actually the arterial form of this called an AVM. what you have is actually venous fed so aneurysm is highly unlikely. i had a cavernous hemangioma inside of my actual spinal cord. the bigger risk to me being in there was little ooze bleeds. these do not bleed like arterial malformations. have you ever seen mostly on a child,whats called a "strawberry' birthmark? this is exactly what you have in your brain(but most likely much much smaller). but like i said,these are veinous fed and at much lower risk for anything major occuring. the brain actually has alot more 'give' and space for the tiny amount of blood these will actually expel, and that is only if they actually bleed at some point. some never do and should be best left alone actually.
mine had actually bled twice and was closing off the remaining cordspace or believe me,i wouldn;t have ever had it touched,not inside of my cord. the brain can absorb the smaller type bleeds from angiomas. most neurosurgeons would actually recommend doing nothing unless this somehow was also a fistula which is kind of both arterial and veinous fed. aneurysm actually occurs only within the arteries, i had one of those too(yea,i kind of hit the 'motherload there) which luckily for me was coilable so i didn;t require deep brain surgery.
my best advice to you would be to research the heck out of these(look up angiomas, cavernous hemangiomas,cerebral angioma) so you know what you are actually dealing with and find a good neurosurgeon who actually HAS EXPERIENCE with these. i saw three seperate NSs with three totally differing opinions about mine and whether it should come out. i ended up going to the U or MN just to really get the most experienced type of opinion. the university teaching hospitals are just the places people tend to go when they are not getting anywhere with other 'specialists" they just see these much more frequently and therefore have the most experience and knowledge of their charachteristics. this is where i would go if i were you two,really. this is where i really got the best right on info about what i was actually dealing with. experience is the key in your NS,trust me.
honestly,in most cases the treatment is simple monitoring. as long as this IS only a veinous fed lesion,the pressure does stay much much lower as well as risks of harmful bleeds,even in the brain. some just sit there and never 'do" anything or hurt anything. but like i said,any real 'bleeds" are little oozes that the brain does somewhat absorb. this is not like having something within an artery at all. just get the most experienced NS to just do monitoring once in a while. just so you know,an actual angioma will not actually show up on an MRA since it is not arterially fed. mine did not either,thats how they determined that what i actually had inside my cord was not the dreaded AVM,but only the venous fed angioma.
in most cases,these really just 'sound' more scarey than they really are,it all depends upon location. believe me,i would have much rather have had this glob inside my brain than my spinal cord. theres just no room in the cord for bleeds of any kind but there IS within the brain in most cases.i wish you both luck with these.please keep me posted as to how things are going. marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.