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Old 09-18-2006, 04:48 PM   #1
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brain artery blockage? please help

I have to admit, the past month has been like hell for me. I've been to the ER twice, and the doctor's about 10 times. I've had bloodwork done about 5 times, tons of EKG's, an echocardiogram, a brain MRI, a PFT test, chest x-rays, and a neck x-ray. But, even after all these tests coming out fine with nothing life threatening- I'm still scared. What I've been diagnosed with are: muscle spasms and muscle tightness around my neck and the back of my head, mild regurge in a certain valve in my heart (which the doctors said is nothing to worry about at all), a cyst in my sinus, and just today- an inner ear infection.

I'm a 17 year old, I am obese but in the past 3 weeks I've been losing weight at a good pace. I dont drink, smoke, or do drugs. All those test I had done came out normal, but I still feel like crap.

My symptoms have been: some sharp burning pains in my head (which the doctors said could be caused from pinched nerves), little pulsing feelings in my forehead and other areas of my head (I am not sure if this could be my blood pumping through a clogged up artery in my head or just my muscles twitching a little. If anyone knows could you please respond?), waking up with the back of my head numb, a tenderness feeling in my head, and recently an uneasy, off-balance feeling. All of these things come and go, they are not constant. I haven't had any headaches or vomitting at all.

If I did have an artery blockage in my head, wouldn't I be getting headaches? Wouldn't the MRI and bloodwork, etc. have picked up on at least something if there was a blockage or aneurysm, etc.? I'm just very scared, paranoid, and anxious and I dont want my life to end at such an early age. Please help if you can.

 
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Old 09-19-2006, 05:12 AM   #2
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Re: brain artery blockage? please help

not nesscessarily,i had an anerysm with just plain wierd neuro 'feelings" in my head,no real headaches to speak of.when that little sucker possibly bursts,THEN most people will report having "the worst headache of my life" but unless there is an aneurysm in just that "right' spot,headaches might or might not actually be there.

i was sent for an MRA(which by the way would be a pretty definitive test for you to have)because of changes in some normal feelings(paresthesias?) i now have in my face that was due to spinal cord damage,that was MY leading symptom.i have polycystic kidney disease which for some reason,makes me at much higher risk for actually developing anerysm only because people with this particular type of kidney disease are just born with much weaker vessel walls.so it would be easier for me to actually develop an aneurysm.but i was not having real headaches,maybe a twinge or two but nothing really to even mention.i just felt kinda spacey like and had two episodes(these were when my neurosugeon feels the aneurysm actually bulged and then once when it grew in size)where i was having like a 'heat' feeling at the back of my head,and just felt reallly really odd and kind of spacey.i slept with the phone on my chest those two nights just incase something? happened.of course my husband and kids were up north at our cabin on both occasions.but this is mostly what MY symptoms were,just wierd stuff in my head.

your symptoms 'could' possibly be stemming from what you were told by your doc,OR they could possibly be the presence of some sort of vascular malformation,such as an aneurysm or even what is called an AVM(arteriovenous malformation).the best way to actually see the arterys in the head is with the MRA i mentioned.tho your MRI was negative it also contains alot of structures that could be hiding an aneurysm.this was also my case.my aneurysm only showed on the MRA not the MRI i had had about a month before only because mine was at a bend in the artery and also very close to a junction with another large artery.but it was there.the MRA only highlights the actual arterial structures and nothing else,so any malformations are much much easier to actually see.mine was like right there on that set of films.

i would defintely speak with your doc about obtaining an MRA.this would at the very least either rule it in or rule it out as apossible cause.you would be pretty sure either way using the MRA.it is done the same exact way as an MRI,the only difference in the test is what the techs do at their end,everything you do is the exact same as when you had that MRI,just lying there in the "tube'.thats all there is to it.and if there is any questionable results,they can be confirmed either way by whats called a three tesla scan? also done the same exact way a the standard MRI.or with an angiogram,but this test would involve an interventional radiologist and a much more in depth procedure.i would seriously doubt that you would ever have to actually have one unless there was indeed a confirmation of an aneurysm or other malformation,so don't even worry about that one.

considering your current situation,i would highly suggest having at least the MRA,this way you would know with almost 100 percent certainty.just have a heart to heart with your doc about this test.hopefully he will want to have this done,if for no other reason,to ease YOUR mind and also rule this out for sure.honestly,you just never know what the heck is going on inside a particular body part til you can actually visualize it in some way.

i do wish youi luck in that they can identify the problem soon.i do know what its like just hangin in limbo while trying to find a Dx of some freaky symptoms.please let me know how things go for you.Marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 09-19-2006, 02:10 PM   #3
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Re: brain artery blockage? please help

Hi, I'm new here, didn't know where to post, etc... but I saw some of my similar problems, so I thought I'd post. I had a wierd sensation on the top/back of my head for about a week. Kind of a numb sensation, a little tingling... no real pain, so I wasn't truly freaking out but thought it was odd after a week. So I went in to my Dr after a week. While sitting in the waiting room, the back of my neck got really hot and when I got in the room and told the lady I was there for "wierd headaches", she said, "Oh, and do you know you have a fever?". I didn't, and the back of the neck thing had JUST started in the waiting room. The Dr. gave me antibiotics and tension headache medicine. None of those worked so I returned in several days. The pain in the back of my head had gotten a bit worse and some hot pain was radiating up to my head. I walked around trying to keep my head still. The second Doc helped a bit more, a more detailed look into symptoms etc. Sent me for a Cat Scan. Didn't think much of it. Got the phone call... small spot on left base of brain, don't worry, we'll send you for MRI. Got the MRI, I'm thinking brain tumor or aneurysm... they call again and say the Dr. wants to see me. Oh Sh** I think. I'm 31 years old, with 2 kids, one only 3 years old. Well, I didn't expect what I heard so I didn't have much reaction. He says, you've had a stroke, but you're ok and the damage is already done. I was in disbelief, still am. I had NO risk factors for such a thing... well, it's 3 days later now and I have the head/neck symptoms again and am freaking out. I went to the Dr. but he can't answer my questions... I am waiting and waiting on a referrel to a neurologist. I am being pro-active and calling, but it's really taking them forever. If I was told that these current symptoms were an AFTER affect of the stroke, I'd be far more relieved, but I'm just worried that it will happen again, after all... one never knows. I mean, who would think at 31 I would have a stroke with no risk factors??? So I'm doing the waiting game just as most of you are. If anyone can help with anything in my situation, let me know and I will do the same for you! But MOST IMPORTANTLY... listen to your body, and what it tells you and watch out for your brain tricking you; I know, it happens to me too. If I had not gone to the Dr. I would have never known about the stroke.... I had NO serious pain, headaches, etc. Thanks for listening, Kristin

 
Old 09-19-2006, 05:46 PM   #4
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Re: brain artery blockage? please help

Thank you for your honest answers. Yes, I have wanted to get an MRA. Ever since I found out that regular MRI's dont detect artery problems in your brain, I've been even more scared and I've been wanting an MRA. I told my mom I did once, but she just said "No, your looking at too much stuff online and your getting yourself worried and plus you already had an MRI". But I honestly do feel like my life cannot go on much longer living like this and I NEED a test like this to be done. Right now I'm kind of at a hard spot, because everytime I tell my mom or my doctors something, their not sure whether to be really worried about it or just tell me to calm down and say "its just anxiety". I feel like I'm trapped and nobody understands. I'm going to have a serious talk about it now though. Thanks for your answers again.

Last edited by McGloogan; 09-19-2006 at 05:47 PM.

 
Old 09-20-2006, 07:15 AM   #5
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Re: brain artery blockage? please help

hey mc G,try having your mom read what we have posted here and see if she wont change her mind.this really IS a very important test for you to have just to at the very least,either rule it in or out and to mostly ease your mind.the constant anxiety is not good for you at all and can lead to other problems.this IS a needed test.good luck


kristin,wow that is a pretty young age to have a stroke,is there a family histroy of any type of high blood pressure or other risk factors that would make you more at risk for this?i know it can 'just happen" in some people.the girl who sang on our wedding many many years ago actually died from a sudden stroke and she was only 19 for gods sake.unbelieveable,but you just really never know what in the heck is going on in anyones blody til either something just happens or it is accidently found while being tested for something else.this was how my cavernoma(a vascular malformation)was actually found in my spinal cord.i was just getting a routine MRI to find out which of my c spine discs was herniated,while i did find out i had a herniated c 6-7,they also found this little 'glowing' glob inside of my cord.

you couldn't be more right about listening to your body tho.while my aneurysm was actually forming i was experiencing all kinds of head wierdness,some just like yours actually.that 'heat" feeling up the back of my neck thru my head was really my biggest symptom.but in my particular case because of rather extensive spinal cord damage which also damaged my sympathetic nervous system and some cranial nerves,i have been getting some really over the top neuro crap everywhere inside of my body,so when the head crap actually happened,i just kind of chalked it up to the rest of the crap i get like on a daily basis.i never really had any real headaches from my aneurysm either.that was odd.the only reason my NS sent me for the MRA was the changes in some facial crap that was getting worse.tingling and numbess and things with my sensory.i NEVER expected an aneurysm.nebver.i don't even have any sort of high blodd pressure issues.

i DO feel for you.it does sound tho like things didn't get hit too severely tho and honestly things could be much much worse.i am thankful for what i still have and what i am still able to still do,but it does depress the hell out of me from time to time.

just a suggestion here,but if you really are having to wait so incredibly long just to actually see a flippin neuro,just go to the ER.they will have you evaluated by a neuro there.it may be a bit more extreme,but at least you will be seen soon.you really should have an MRA done to thoroughly check out ALL of the arterial structures inside of your brain,espescially since you now have had a stroke.you need to find out at what risk level you are at for further incidents.you may have weaker blood vessels than the average,this is my main problem with the vessels.i have whats called polycystic kidney disease and for some reason,people who have this type of kidney disease are just born with naturally weaker blood vessels.don't know just why that is,but it puts me at a 4 percent higher risk.thats why my NS sent me for the MRA in the first place,just to make sure that an aneurysm wasn't the cause of my sudden changes.and wow,there it was.but you DO need to have that MRA done.maybe thay can do this at the ER?? just a thought.just go there and explain your current symptoms and what you really feel may be going on.they will hopefully take it from there.please let me know how you are doing,K?i wish you lots of luck Kristin.marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 09-20-2006, 12:31 PM   #6
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Re: brain artery blockage? please help

Quote:
Originally Posted by feelbad
hey mc G,try having your mom read what we have posted here and see if she wont change her mind.this really IS a very important test for you to have just to at the very least,either rule it in or out and to mostly ease your mind.the constant anxiety is not good for you at all and can lead to other problems.this IS a needed test.good luck

I agree, and thank you so much, your definetly the most helpful person I've talked to on this site. I talked to my mom about it, and I told her that the only way I can really feel like myself again and have the anxiety go away is to get the test done. She said "We'll ask the nuerologist about it"... but then she called the nuerologist today and said I cant get an appointment until December 6th... and I honestly CANNOT wait that long. This anxiety, fear, and pains are ruining my life, and I cant even focus in school or talk to my friends 100% normally anymore. So, today Im going to talk with her about going back to the doctors again and I'm praying that they'll let me get it done.

The only other question I had was- I know they inject dye into your blood, so is there any risk factors involved in the test? Like, is it possible to die from it or anything?

 
Old 09-20-2006, 12:38 PM   #7
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Re: brain artery blockage? please help

Oh, and another question- so if say I did have an aneurysm, would it really only be able to suddenly kill me if it had already bursted? Like, if I had the risk of dropping dead suddenly (which I realize anybody does, but still) would I have most likely had that so called "worst headache of my life" by now? Because I cant recall having a bad headache for a long time...

 
Old 09-21-2006, 06:04 AM   #8
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Re: brain artery blockage? please help

well,at least it is sounding more hopeful.i know getting in to see any specialist can take for ever,that part really does suck.hopefully your primary doc can just refer you for the MRA himself/herself then you would know whether or not you actually need that neuro appt or not.

the only people who actually have any sort of problem with the contrast are someone who may be allergic to any shell fish(they use some relation to like squid ink or something bizarre like that)but there are other forms of die they use too,it all depends on the type of testing needed and where.the other people who this can be a problem for are people like me who actually have some sort of kidney disease,they just have to drink this really crappy stuff called mucomyst the day before and the day of the procedure to protect the diseased kidney.but in a heathy person with good kidneys(which i am assuming you are)this poses absolutely no problem whatsoever.just those with a confirmed kidney disease with out of range labs,particularly the creatinine.even tho my creatinine is still within the normal range(thank god) my neph still has me use it since i have to have routine angiograms all the time to check on my aneurysm.but you should have no problems at all.


believe me,if you actually had an aneurysm burst,you would most definitely know it.it is beyond excruciating,even moreso than even the worst migrane you can imagine.so don't start worrying about little headaches you may get from time to time from just everyday stressors.this is a very distinct headache and you would know in an instant just what i am talking about,really.its that bad.

i know having to actually wait is really sucky but try not to dwell on things to overly much since you really don't know anything yet.i know thats easier said than done but it can be done,trust me.i have spent more freakin time in a holding pattern waiting to see the "next' speacialist than you can even imagine.you will get thru the time just fine.in the meantime,try and do other things just to try and keep your mind occupied.do some searching on the net to try and find different techniques you can use to help you relax and stay focused on things other than what may or may not be going on in your head.there are alot of different ways to try and relieve anxiety and stress,believe me,you are not alone in feeling that,i think just about everyone suffers from stress and anxiety to some degree and some even much much worse than what you have stated here.deep breathing excercises,going for walks in the woods(used to be my favorite til my spinal cord injuries put that to a halt now)basically,just find something you like to do and spend more time doing it.reading is a good one if your into it.i am sorry i can't help you further with all of that but unfortunetly,there are limitations.hopefully this test can be done thru your regular doc and you can quit worrying and stressing.just use this time to try and learn better ways of handling things.thats what i have been doing since my world changed over three years ago.if i can do it,you can too,trust me.keep me posted on how things are going McG.hang in there,Marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 09-22-2006, 11:51 AM   #9
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Re: brain artery blockage? please help

Quote:
Originally Posted by feelbad
well,at least it is sounding more hopeful.i know getting in to see any specialist can take for ever,that part really does suck.hopefully your primary doc can just refer you for the MRA himself/herself then you would know whether or not you actually need that neuro appt or not.

the only people who actually have any sort of problem with the contrast are someone who may be allergic to any shell fish(they use some relation to like squid ink or something bizarre like that)but there are other forms of die they use too,it all depends on the type of testing needed and where.the other people who this can be a problem for are people like me who actually have some sort of kidney disease,they just have to drink this really crappy stuff called mucomyst the day before and the day of the procedure to protect the diseased kidney.but in a heathy person with good kidneys(which i am assuming you are)this poses absolutely no problem whatsoever.just those with a confirmed kidney disease with out of range labs,particularly the creatinine.even tho my creatinine is still within the normal range(thank god) my neph still has me use it since i have to have routine angiograms all the time to check on my aneurysm.but you should have no problems at all.


believe me,if you actually had an aneurysm burst,you would most definitely know it.it is beyond excruciating,even moreso than even the worst migrane you can imagine.so don't start worrying about little headaches you may get from time to time from just everyday stressors.this is a very distinct headache and you would know in an instant just what i am talking about,really.its that bad.

i know having to actually wait is really sucky but try not to dwell on things to overly much since you really don't know anything yet.i know thats easier said than done but it can be done,trust me.i have spent more freakin time in a holding pattern waiting to see the "next' speacialist than you can even imagine.you will get thru the time just fine.in the meantime,try and do other things just to try and keep your mind occupied.do some searching on the net to try and find different techniques you can use to help you relax and stay focused on things other than what may or may not be going on in your head.there are alot of different ways to try and relieve anxiety and stress,believe me,you are not alone in feeling that,i think just about everyone suffers from stress and anxiety to some degree and some even much much worse than what you have stated here.deep breathing excercises,going for walks in the woods(used to be my favorite til my spinal cord injuries put that to a halt now)basically,just find something you like to do and spend more time doing it.reading is a good one if your into it.i am sorry i can't help you further with all of that but unfortunetly,there are limitations.hopefully this test can be done thru your regular doc and you can quit worrying and stressing.just use this time to try and learn better ways of handling things.thats what i have been doing since my world changed over three years ago.if i can do it,you can too,trust me.keep me posted on how things are going McG.hang in there,Marcia

Once again, thank you so much. Your very encouraging and reading your posts makes me feel good.

I was just scared that I could've had an aneurysm that had bursted and that I could drop dead at any second, but I haven't even had a migraine for the longest time and I can't remember it being that bad either. The thing that scares me is the little vibrations and pains I get in my head, but theres a part of me that thinks they could just be from my sore muscles in my neck/head, because I dont get any sort of migraine pains when I feel them. I'm going to the doc's on Monday to ask about the MRA.

One other question I had was- if you had a blockage in your blood stream, would it be causing you to feel vibrations or twitches like I am, or is it not even possible to "feel your blood"?

Last edited by McGloogan; 09-22-2006 at 11:53 AM.

 
Old 09-26-2006, 01:25 PM   #10
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Re: brain artery blockage? please help

Well, just got back from the doctor's where I had asked about the MRA... basically she looked at me like I was crazy and immediately asked "Have you been looking stuff up on the internet"? I told her of course I have, but its because I'm worried. She then said "that'll just make you more worried", "only older people usually get those done", "your not the doctor", "your young nothings going to happen" etc. etc. But, I got an appointment with a neurologist on October 26th. So I guess this'll be my last post here, so thanks to everyone.

 
Old 09-27-2006, 06:55 AM   #11
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Re: brain artery blockage? please help

now why would this be your last post mc G?don't you think i would want to know just how things go and are going with you?i really DO want to know how things go hon,really.your doc is stupid if she thinks that just because people are young,bad things don't happen.what planet does she live on???

geez the girl who sang at my wedding way back when(1980)was only 19 years old and shortly after my wedding she died from a sudden stroke.i mean this doc doesn't seem to have a clue as to the 'real" world.maybe you should be seeing a doc who is a bit more 'clued in' to whats going on in the world.have her speak with a pediatric neuro doc,i am sure she would change her tune.oh yikes.

tho 'bad' things don't happen as often in younger people,that by no means actually means that they just don't suffer with some of the same exact things that us older folks do.there are sooo many varying factors as to why someone actually will 'get" a specific disease or disorder.please keep me posted on things mc G,i really do want to know,K?good luck,marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 09-27-2006, 11:30 AM   #12
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Re: brain artery blockage? please help

im not being funny but your doctor must have a twin because they sound just like my doctor. I just went to the doctors last week and asked about MRA scans and she immediately said 'have I been looking up on the internet'. She also thinks that because I'm young and look ok that everything is fine and dandy. It's so annoying.

 
Old 09-28-2006, 03:29 PM   #13
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Re: brain artery blockage? please help

Yeah thats REALLY annoying. I'm obese too, and alot of the doctors I see just say "theres nothing wrong, you just need to exercise", and while I agree that losing weight can make you feel better to an extent, (I've lost 18 pounds in the past month and a half btw, and I feel worse than before) that DOES NOT mean that every other possible thing should be ignored. Stereotyping is such a horrible thing, you'd think medical "professionals" would be able to see past them. If it does get really really bad that its unbearable (and I feel like it is getting there), I might fake passing out so my parents take me to the ER and then beg for an MRA there.

Seriously- if I just got this test done and it came out fine, ALL my anxiety and stress would go away and I'd be able to live normal again. I mean even if there is something wrong, I'd be happier knowing it and knowing that I'm going to go under surgery and get it removed/fixed rather than sitting here not knowing whether I could die at any second or not. Recently, I've been getting pains in the front of my neck and some weird pulses there too... I feel horrible.

I'll keep posting here

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Old 10-04-2006, 09:39 PM   #14
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Re: brain artery blockage? please help

So get this... I go into the neurologist the other day and he says, "sorry I took so long, I was reading your films; I suspect that if they had been read differently, you wouldn't be here". I was like, "HUH??" He does not think I even had a stroke!!! For 2 weeks I was on anti-anxiety medicines and was almost immobilized by my anxiety and fear and he told me that it may have been a mistake in the "read" of the MRI! He did all the "tests" neurologists do, and said that if I had had a stroke the size stated that I would be paralyzed on my entire right side. He sent the films to a neuro-radiologist just to make sure, and I am waiting on THOSE results now. How can you trust anyone these days, it's unreal!! Don't get me wrong, I am estatic that I possibly didn't have a stroke, but so angry at the unnecessary stress I went thru for those couple of weeks. He said it was probably just a coincidence of things happening at once that caused my symptoms (I had hit my head before my funny head feelings/had a fever and hot flashes of pain in my neck that might have been from an infection, etc) He was just GUESSING. The medical world can be so unreal and discouraging sometimes. I'm going to go to an internist soon (instead of the urgent care I had been frequenting) and I'm hoping HE'LL be able to put 2 and 2 together. Not counting on that either. Anyways, I am feeling fine now, and ENTIRELY grateful for that and count my blessings. Thank you for the concern!

 
Old 10-06-2006, 09:47 AM   #15
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Re: brain artery blockage? please help

The neuro-radiologist said NO stroke... BUT found several spots that the neurologist wants to look into because of my symptoms. He scheduled me for another MRI in December to look for "changes". I didn't ask what they could be, 3/4 of me doesn't want to know until it's a diagnosis, and that will come in December.

Thanks for listening all!
Kristin

 
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