That is the only way I can think to describe what I keep feeling. It starts in my neck and goes about halfway up my head. It feels like my brain is moving or something. It literally feels like a spasm. It only lasts a second or two, but it is very scary. Has anyone else felt anything like this?
I have suffered with almost constant lightheadedness for over 4 years now and right now it is the worst it has EVER been. And now I'm getting these "spasms" along with it. I do not feel dizzy like the room is spinning or anything, but I feel like I can't hold my head up. I get horrible pressure in the back of my neck and head. I have been to countless specialists and no one can figure out what is wrong with me. I'm at my wits end with this and I don't know what to do anymore. Just sitting here writing this is absolute torture for me. I can barely even function anymore.
The Following User Says Thank You to Leela_C For This Useful Post: Bob14449 (12-22-2011)
there are a lot that neurologists cannot handle, cannot fix, and have a hard time diagnosing. Medicine is a baby science, and has a long way to go. Just over a hundred years ago, a compound fracture of the leg was a death sentence. Stay patient, you might have to let your condition mature and develop before getting help. It is just the way things are and it is nobody's fault. And, by the way, you have tons of company. Good luck.
Michael - thanks for the post, but it certainly doesn't make me feel any better! I might have to let my condition mature? Trust me, if I have to let it "mature" any more, I will end up in a mental institution! It has been 4 years! I am getting married in one month and I am actually dreading the ceremony because I don't know how I'm going to stand there. I can't stand in one place without feeling like I'm going to fall over. It's really sad.
In my opinion, the problem is that doctors don't want to take any time to actually listen to you. My neurologist keeps asking me how my headaches are. I tell him every time that headaches aren't my problem, yet he always focuses on my headaches. I get tension headaches because of the way I have to hold my head just to be able to function at work. If I didn't have the lightheadedness, I wouldn't have the headaches, at least I don't think I would. But he asks how my headaches are and that's it. Nevermind my chief complaint of the lightheadedness. I'm just fed up!
Hi......I have been experiencing something similar and it has me worried.......about 3 weeks ago i had really bad cramps in my upper abdomen that lasted about ten minutes then stopped.......Monday, i had the same attack except it lasted about 25 minutes and i went to the hospital...found out i have 2 golf ball size gall stones in my gall bladder.....that night i started experiencing bad headaches ( I don't get headaches often) and since then i have been having these weird feelings in my head...like my brain is moving in my forehead area....or its seizing for a couple seconds every few minutes...i literally feel these spasms...i feel a bit nauseaus after awhile...but i have no idea what's causing them or why...it has now been 4 days.
The Following User Says Thank You to PhxAnGeL For This Useful Post: jadelynne1179 (09-28-2011)
yes i can relate, i had the same thing happen this time last year it lasted months and then on and off this year.....the neuros said it wasnt anything detremental sp and that it would settle they said it is prob to do with a varient migraine.....lyxngal has also had these symptoms we also refer to them as brain zaps shivers twitches...your not alone..also i have had lots other symps including tinnitus dizzyness headaches muscle twitches numbness....these produce anxiety which makes it all worse...by the way have u had mri? if not ask for that just to put your mind at ease....
the area where you described where these 'spasms' actually are is the area of the trapezious(sp?) muscle too. this is a very strong muscle that when is overly stressed and irritated can cause in some cases,severe spasms and also little wads of tissue called trigger points to also develop. it is kind of a "diamond shaped" muscle that starts in the uupper back,and then into the neck and stops kind of up the back of the skull about midway(does this area kind of cover the spasm area for you?). there very well could be a connection between the tension headaches and the trap muscle spasms too. i have the very same problem at the base of my skull,but mine iis from severe c spine problems and muscle that was cut during a surgery done on my spinal cord.
we can also carry our stress in our neck area,this is really more common in women than men but it all comes down to a few different factors too. are you under alot of stress,do you have any actual neck/c spine type pain? sometimes an underlying c spine problem keeps generating or firing signals to the muscles up there then they will over tighten and sometimes wad up and contract as in the TP situation. have you ever tried any type of actual massage or hands on type therepy for this? do muscle relaxers help at all,even maybe just a little bit? if you have not yet tried the muscle relaxer angle,it would be a good wayto possibly Dx this as either musclular related or some other underlying issue that can also trigger an over abundance of nerve signals to the muscles there within the back of your neck area. c spine issues are one huge trigger for what you have described here too,trust me on that one. all it can take when the c spine is actually the underlying trigger is even just some level of irritation from a bone spur or something that is just casuing some level of inflammation to be there too.
the very best thing that i have found that is finally helping with my spasms and head pain is a therepy called myofascial release? this just releases the surrounding fascia that is just surrounding every singal muscle and body organ we have from the brain down to the toes,in one very light web like covering that is all interconnected. when one area gets inflammed or irritated it can actually cause many problems in others areas too. getting the outter covering of the muscles released with this therpy or even just trying some level of good hands on therpy where the PT can just work out that tightness up there would really be a good thing to just try and see if this is not what is actually causing your issues to just be there at all. if it works,then you would know its the muscles(stress?),if not,it could be an underlying issue within your c spine. a good therepist can really do wonders with the neck and upper back muscle hell that can just get created from too much tension and stress in our lives.
either way,you just really need to find the actual underlying trigger for your spasms and headaches. from what i have experienced just with my c spine crap and the muscle stuff,what you are describing really sounds very much just muscle related to some degree. but if this continues on or you start having any other symptoms like numbness or tingling in certain fingers or radiated pain that starts up in the neck area or goes down the arm(s),it would be time to at least get an MRI done on your c spine just to see what may be lurking there that is firing this all up on you. there are just many possible causes for what you have described here,thats all. narrowing it down really helps in arriving at an actual reason/Dx. just try some of the sugestions i gave you. this will narrow some things down for you. please keep us posted on how things are going,K? marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
I have sensations of having constant twinge at times, but sometimes when I am sleep or just woken I seem to have a lot of twinge which seems to paralysis me for short while. Gives me a suspicion of a seizure.