Re: Eye Won't Open - 3rd Cranial Nerve Damaged
i have to say that i am really a bit baffled as to how in the heck they thought doing a lumbar pucture would either rule in or out,and actual aneurysm??thats just not possible,really.it would only show increased or decreased CSF pressure and not any sort of difinitive type of real Dx.CSF pressure changes for alot of things but not actually with or without the presence of aneurysm.mine did not actually change from mine.they never did a lumbar puncture,they can tell using other ways too.its kind of invasive so they don't usually go there if they don't have to ya know?
i really do think you need a more in depth type of full MRI scan on your brain.there are actually two different forms of vascular malformations,one is arterial and the other is venous.any actual venous fed malformation WOULD NOT actually show on any type of actual arterial scan.this is what i had inside my spinal cord.when i had to have an angiogram done on this thing it was to try and determine if it was an arterial fed AVM or a venous fed cavernous hemangioma.i was told that if it did NOT actually light up once the dye was added,it was not the more feared high pressure AVM.well,it did not light up,so i was Dxed with it as venous fed,which was good since it was not going to 'pump' out blood when it bled,all i had was little oozes becasue it was low pressure.i do think this may be the case for you too.you just really DO need to find out for CERTAIN what is actually compromising that nerve,then find out any possible treatment options.
its just from what you have stated,they are using terms like it is 'probably' something?you need definites here when this is in your brain and affecting YOU.you know what i mean?i would seriously keep pushing this with whoever you have to in order to really find out what you are actually dealing with.in some cases,a good neurointerventional radiologist can work thru the vascular structures and remove any type of clots or crap within the structures.you would be amazed at what these interventional rads can do inside arteries and veins.you just need good solid facts here in order to try and releive that pressure off that nerve,and do it before that nerve becomes permanently damaged in some way.i seriously would keep pushing this.if your current docs are not willing to give you the answers you need,move onto someone who is willing to go there for you.unfortunetly sometimes when it comes to our health and dealing with docs,we have to take matters into our own hands in order to get the best possible care for us and our children too.i have been there.start demanding the right answers.they owe you that much as a patient.don't stop til you know for certain whats up,not probably whats up,you know?please keep me posted onhow things are going,marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.