It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Brain & Nervous System Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-26-2008, 04:43 AM   #1
Newbie
(female)
 
Join Date: Jan 2008
Location: Adel,GA
Posts: 4
linda1603 HB User
Meiges Syndrome

I've been diagnosed with meiges syndrome and esstential tremors. I had chiari malformation surgery at Emory in 2000. I now have tremors in my throat that it has affected my voice. I have blashphasm in eyes. My shaking in hands horrible. Do you think I qualify for disability?

 
Old 01-31-2008, 09:50 PM   #2
Junior Member
(female)
 
Join Date: Nov 2007
Location: Tofield, Alberta Canada
Posts: 27
shellbear HB User
Re: Meiges Syndrome

I was also diagnosed with Meige's syndrome and then blepharospasms I had the botox injections and they didn't work....my eyes got worse as the blepharospasms had taken control of my eyes, I saw my neuro yesterday and now she says I don't have blepharo and I have "Eyelid Apraxia" this is possibly surgery...I just want you to know that you aren't alone, I have not been able to talk to anyone with the same problem as me and Im very frustrated....my prayers are with you and I wish you sooooo much healing.
Shel

 
Sponsors Lightbulb
   
Old 02-01-2008, 04:01 PM   #3
Newbie
(female)
 
Join Date: Jan 2008
Location: Adel,GA
Posts: 4
linda1603 HB User
Re: Meiges Syndrome

Hi Shellbear, thxs for the reply. Yes, i was also diagnosed with blepharospasms and refused the botox. My part after insurance was $400 every 3 months. The Meiges was diagnosed 1-2007 and has steadly worsen. I've researched and tried to understand the Meiges but truly believe mine has to do with the brain surgery. Hang in there and let me hear from you. Linda

 
Old 02-01-2008, 04:34 PM   #4
Member
(male)
 
Join Date: Jun 2007
Location: Las Vegas, NV
Posts: 81
NerveEnding HB UserNerveEnding HB User
Re: Meiges Syndrome

Linda,

I would recommend seeing a movement disorders neurologist. They can better confirm whether you have Meige syndrome. It seems unlikely that that particular disorder would develop after Chiari surgery.

Obviously you can go to Emory as they have movement disorders people there. Geographically closer to your location is University of Florida at Gainsville. Michael Okun, MD, is an excellent movement disorders physician there.

 
Old 02-02-2008, 07:40 AM   #5
Newbie
(female)
 
Join Date: Jan 2008
Location: Adel,GA
Posts: 4
linda1603 HB User
Re: Meiges Syndrome

Thank u so much for the doctor's name. I know I'm grasping at straws, I'm just sick of the shaking and head bobbing. It's makes me want to be a home body. I plan to attempt to get an appt with this dr. I'm seeing a movement disorder dr who diagnosed the Meiges and blepharospasms, but he seems disinterested. Thxs again. Linda

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
serotonin syndrome lennylonglegs Bipolar Disorder 8 01-22-2010 10:55 AM
down syndrome help_me_please1 Down Syndrome 8 01-15-2007 08:15 AM
variant angina georgi3 Angina 14 09-18-2006 06:26 PM
my doc thinks central cord syndrome, not rsd pattihabs Reflex Sympathetic Dystrophy (RSD) (CRPS) 7 06-29-2006 12:38 PM
Distinguishing Chronic Fatigue Syndrome from Neuroborreliosis CFD 333 Lyme Disease 30 05-05-2005 09:55 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ativan
Dilantin
Lexapro Neurontin
Paxil
  Topamax
Tylenol
Valium
Xanax
Zoloft




TOP THANKED CONTRIBUTORS



cin66 (14), Kasey443 (8), Hamilton92 (4), scout316 (3), NerveEnding (3), feelbad (3), cindys601 (2), uhlhouse (2), marcylynn78 (2), linzgirl (2)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (832), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 03:28 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!