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Old 10-21-2008, 04:31 PM   #1
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why does my head burn

why does my head burn

 
Old 10-21-2008, 07:02 PM   #2
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Re: why does my head burn

hi chell1999...Could you be a bit more specific on where your head is burning....top,back,side/s,front????Thanks...want to offer some help,but need details.Any other symptoms with that and how long this has been happening.

Scout~

 
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Old 10-22-2008, 05:32 PM   #3
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Re: why does my head burn

Hi Scout316
Thanks for responding. My head burns all over but mostly in the back at the base near my neck. My nose burns on the bridge also and my head has alot of pressure. I have had an MRI and an MRA with nothing significant showing up. I take 150 mg of Topamax a day. I have had this problem for 7 months and it is making me crazy. It is really affecting the quality of my life and I have small children and I am a preschool teacher. Any kind of physical activity leaves me dizzy and weak. I mopped my kitchen and was exhausted and the room was spinning. I just don't know what to do. My neuro told me I have complex migraines but how long does this last. I can barely function and I am really scared because sometimes I literally am so weak that I just don't know what to do anymore. I wonder if it really is a migraine?

 
Old 10-22-2008, 07:14 PM   #4
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Re: why does my head burn

Hi chell1999.....

Migraines making someone feel weak doesn't sound right...I've never heard that said before.I have migraines and weaknes was never a symptom with them..other things yes,but not woth the migraines.

Were you put on the topamax before or after the burning started?

Did they rule out Chiari Malformation on your brain MRI?Often this is missed...did you get a copy of yoyur MRI report and or the actual MRI fims/discs?If not you should request copies for future reference.

I sympathize with you...it's hard to be not feeling well when you have a job to go to and little children that need your love and attention...so sorry you are having to go through these health issues.

Did your MD do any blood labs on you?That would be a necessary thing due to your being so weak and dizzy.You could be anemic and/or B12 deficient or just low on vitamins.(I happen to be B12 deficient).

If you haven't had labs done I would absolutely request to have them.

Do you have pain going on anywhere else..like in your shins,sides,hips,feet,hands,back?Sorry for all the ???sJust trying to see if anything else is being affected.

Weakness and burning pain could be related to some kind of neuropathy.How do you feel if you don't take the topamax?

My friend Cindy here has a lot of knowledge about several health issues...maybe she can be of some help too.I'll send her a post

Try not to worry...take care~Scout

 
Old 10-23-2008, 12:31 AM   #5
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Re: why does my head burn

So you also have the pressure in your head?

How does the Topamax work for you?

Does it relieve any of the symptoms you have, including the pressure?

 
Old 10-23-2008, 06:19 AM   #6
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Re: why does my head burn

Hi Chell~

I'm so sorry you are having to deal with all this and trying to keep it all together. Its hard enough to get through let alone with small children to raise.

I have been dealing with similiar symptoms and I tell myself how lucky I am that my symptoms didn't become real bad until my kids were older and can take care of themselves. I still do have a teenager to get through but thankfully she's very independant.

I have chiari malformation and get the burning pain as well. The back of the head and face burning your describing, as well as the unbarable fatigue, I am very familiar with. I now get all that burning in my whole body as my symptoms progressed. Sometimes it is like a novacaine feeling but when its severe, its like a rug burn. Scout gave you some wonderful advice and this burning could be as she said, neuropathy.

neuropathy is not fun. I am on differant meds to try to manage the pain but nothing seems to help to much. I take neurontin for the nerve pain. I have heard about topomax being used. Does that seem to help any?

As far as light housework making things worse, you just have to try to take things slow. I do my housework in small increments. And if its too much and I know I can't handle it, it doesn't get done. Right now, focus on whats important and at the top of the list. Save your energy for the important stuff, which is caring for the kids. Until you get a grip on things, ask for help with the housework. Rest whenever you can.

I definately wouldn't except the migraine diognosis. It seams like there may be something going on in a neurological nature. You really have to stand up for your own health and if your feeling like theres something really wrong, don't give up till you get some answers.

Here below, are some symptoms of Chiari because it could be a possibility. Of course there are many other neurological diseases that could be causing these symptoms. MS and Lyme disease are other things that come to mind.

I know its difficult when your struggling with health issues but we have a great little support group here. And if we can help in any way, just shout out

Hang in there

Cindy

Headaches in the base of your head that worsen when bending, straining, laughing or crying

pain radiate behind your eyes

Neck stiffness~ pain radiates into shoulders /arms

Light sensitivity~ Blurred vision~ double vision

Pressure in ears~ ringing~ sensitivity

Difficulty swallowing~ Sleep apnea

heart palpitations~ dizziness

Tingling~ numbness~ burning in extremities~ weakness~ stiffness

Bladder and bowel disfunction

Fatigue... And theres many more

 
Old 10-23-2008, 06:57 PM   #7
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Re: why does my head burn

[QUOTE=scout316;3770014]Hi chell1999.....

Migraines making someone feel weak doesn't sound right...I've never heard that said before.I have migraines and weaknes was never a symptom with them..other things yes,but not woth the migraines.

Were you put on the topamax before or after the burning started?

Did they rule out Chiari Malformation on your brain MRI?Often this is missed...did you get a copy of yoyur MRI report and or the actual MRI fims/discs?If not you should request copies for future reference.

I sympathize with you...it's hard to be not feeling well when you have a job to go to and little children that need your love and attention...so sorry you are having to go through these health issues.

Did your MD do any blood labs on you?That would be a necessary thing due to your being so weak and dizzy.You could be anemic and/or B12 deficient or just low on vitamins.(I happen to be B12 deficient).

If you haven't had labs done I would absolutely request to have them.

Do you have pain going on anywhere else..like in your shins,sides,hips,feet,hands,back?Sorry for all the ???sJust trying to see if anything else is being affected.

Weakness and burning pain could be related to some kind of neuropathy.How do you feel if you don't take the topamax?

My friend Cindy here has a lot of knowledge about several health issues...maybe she can be of some help too.I'll send her a post

Try not to worry...take care~Scout[/QUOte


Hi scout

The burning was going on before I started the Topamax. I haven't ever had blood work done. I do have alot of weakness in my arms and hands and pain in my neck. I have a hard time holding onto small objects for long periods of time. (like my cell phone or a steering wheel) I am suppose to start physical therapy on my neck soon. I am not sure why. My neuro said he thinks I have a pinched nerve. I disagree. I haven't ever heard of this Chiari Malformation before. I think I will do some research on it. Thank you for your quick responses. I really don't think don't think a migraine would start in April and last through October. I am hurting more and more every day I am thankful for this message board and everyone on it.

 
Old 10-23-2008, 07:06 PM   #8
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Re: why does my head burn

Quote:
Originally Posted by Bill Zenith View Post
So you also have the pressure in your head?

How does the Topamax work for you?

Does it relieve any of the symptoms you have, including the pressure?
Hi Bill
The Topamax did relieve some of the pressure on my head. It has not relieved all of it. I am not sure if it could fix the problem completly. The medicine is really expensive and I can't afford to take more than 150 mg per day. Before taking the topamax I couldn't even get out of bed. It did take about a month and a half for the medicine to start working though. I am still sick however because I have alot of burning pain and some pressure with weakness and dizziness. I figure some relief is better than none.

 
Old 10-23-2008, 07:15 PM   #9
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Re: why does my head burn

Quote:
Originally Posted by cindys601 View Post
Hi Chell~

I'm so sorry you are having to deal with all this and trying to keep it all together. Its hard enough to get through let alone with small children to raise.

I have been dealing with similiar symptoms and I tell myself how lucky I am that my symptoms didn't become real bad until my kids were older and can take care of themselves. I still do have a teenager to get through but thankfully she's very independant.

I have chiari malformation and get the burning pain as well. The back of the head and face burning your describing, as well as the unbarable fatigue, I am very familiar with. I now get all that burning in my whole body as my symptoms progressed. Sometimes it is like a novacaine feeling but when its severe, its like a rug burn. Scout gave you some wonderful advice and this burning could be as she said, neuropathy.

neuropathy is not fun. I am on differant meds to try to manage the pain but nothing seems to help to much. I take neurontin for the nerve pain. I have heard about topomax being used. Does that seem to help any?

As far as light housework making things worse, you just have to try to take things slow. I do my housework in small increments. And if its too much and I know I can't handle it, it doesn't get done. Right now, focus on whats important and at the top of the list. Save your energy for the important stuff, which is caring for the kids. Until you get a grip on things, ask for help with the housework. Rest whenever you can.

I definately wouldn't except the migraine diognosis. It seams like there may be something going on in a neurological nature. You really have to stand up for your own health and if your feeling like theres something really wrong, don't give up till you get some answers.

Here below, are some symptoms of Chiari because it could be a possibility. Of course there are many other neurological diseases that could be causing these symptoms. MS and Lyme disease are other things that come to mind.

I know its difficult when your struggling with health issues but we have a great little support group here. And if we can help in any way, just shout out

Hang in there

Cindy

Headaches in the base of your head that worsen when bending, straining, laughing or crying

pain radiate behind your eyes

Neck stiffness~ pain radiates into shoulders /arms

Light sensitivity~ Blurred vision~ double vision

Pressure in ears~ ringing~ sensitivity

Difficulty swallowing~ Sleep apnea

heart palpitations~ dizziness

Tingling~ numbness~ burning in extremities~ weakness~ stiffness

Bladder and bowel disfunction

Fatigue... And theres many more

Wow,, I just had to call my husband in here to read this because I felt like you just completely described me. My head burns and it was numb last night. I do have that rug burn feeling sometimes. My skin is flushed alot. I thought I was about to go crazy. My next step is to mention this to my neuro. How do I go about doing that without him thinking I am crazy. We have alot in common. How long did you have symptoms before you were diagnosed?

 
Old 10-23-2008, 07:32 PM   #10
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Re: why does my head burn

Hi Chell~

I started with the numbness and tingling in my early 20's. Dr's quickly diagnosed it as stress and anxiety. When I was in my late 30's, things started getting crazy. I started with taccicardia that my Dr couldn't find a cause. Then my bowels wouldn't work,Litterally!! I still though nothing of it until the fatigue struck me about 2 years ago. Then my legs started getting weak. So it has definately been progressive for me.

But, the hard part is getting anyone to acknowledge chiari. most dr's are in denial so addressing this to your neuro may lead to a disappointment. There are Chiari specialists who only treat chiarians. In order to get a proper diagnosis, you may want to seek one out if you get no where locally.

Isn't it funny when you read something and say, "wow, that sounds like me". That is how I discovered this for myself. Unfortunately, my neuro who ordered my MRI overlooked this and said my MRI was normal. With a lot of hard work and many tears later (out of frustration) I have started my journey with chiari and had my 1st surgery.

I hope you dont have this and its something simple such as a vitamin B12 deficiency. That would be so much easier. But being aware of what could be wrong can help!!

Did you have an MRI done?Do you have copies? I could see this on my own MRI, comparing it to a normal brain and 1 with chiari. I then approached my neuro and it was confirmed. Along with an opology for it being overlooked. Even though he saw the chiari, I still had to seek out a specialist because of the lack of knowledge.

If I can help in any way, just shout out. But the 1st step before approaching your Dr, is educating yourself 1st

Take care

Cindy

 
Old 10-23-2008, 07:59 PM   #11
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Re: why does my head burn

hi chell...I am really feeling badly for you.What I do suggest though is that you get the dr. to do some blood labs for you.This is necessary,becaue you might get exhausted from therapy and that seems a bit dangerous for the condituion you're in right now.When I had therapy for six weeks for a mild bulging disc in my neck it totally exhausted me.Then right aftr that I found out I was low borderline B12 and then they did an MMA test which was sky high and that pointed to a B12 deficiency.

I hope your MD can run some blood tests for you....there's so many things they can find out from blood work.

Chiari,low B12 and MS all have similar symptoms.I truly hope you get better soon.....it's just so frustrating trying toget drs. to really listen to you these days....we know when we are not well,but finding a dr. to really thoroughly investigate our symptoms is so hard.....just not right.Well hang in there and don't give up hope....something has to show up.

Also I agree with you....a migraine wouldn't last months...a chronic neurological problem would though....and could get worse.....as does anemia and B12 deficiency also.Like I said B12 ,MS and Chiari..all are neurological problems presenting the same symptoms.

Take care chell.......we're here for you.

Scout~

Scout~

 
Old 10-23-2008, 11:53 PM   #12
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Re: why does my head burn

Quote:
Originally Posted by chell1999 View Post
Wow,, I just had to call my husband in here to read this because I felt like you just completely described me. My head burns and it was numb last night. I do have that rug burn feeling sometimes. My skin is flushed alot. I thought I was about to go crazy. My next step is to mention this to my neuro. How do I go about doing that without him thinking I am crazy. We have alot in common. How long did you have symptoms before you were diagnosed?
Regarding the Topamax working on the head pressure, that's interesting. However I have looked at the list of side effects for that drug and it does scare me a bit.

Regarding the above bolded print, what do you mean your skin is flushed a lot? You mean your skin has a reddish appearance often? Is that tied in with the rug-burn feeling?

 
Old 10-25-2008, 09:06 PM   #13
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Re: why does my head burn

Quote:
Originally Posted by Bill Zenith View Post
Regarding the Topamax working on the head pressure, that's interesting. However I have looked at the list of side effects for that drug and it does scare me a bit.

Regarding the above bolded print, what do you mean your skin is flushed a lot? You mean your skin has a reddish appearance often? Is that tied in with the rug-burn feeling?

I'm sorry Bill I should be more specific. I wasn't actually looking in the mirror when I wrote that. It is actually tied in with the rug burn feeling. It drives me nuts. The topamax does have alot of side effects. I take the good with the bad. The most frustating thing for me is the "stupid" feeling I get. I forget how to spell things all the time. I also can be talking to someone and just forget what I was about to say. Thats a little uncomfortable when it happens to be your boss. lol On a positive note Topamax does cause weight loss. I have lost 15 pounds..

 
Old 10-26-2008, 01:26 AM   #14
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Re: why does my head burn

Quote:
Originally Posted by chell1999 View Post
I'm sorry Bill I should be more specific. I wasn't actually looking in the mirror when I wrote that. It is actually tied in with the rug burn feeling. It drives me nuts. The topamax does have alot of side effects. I take the good with the bad. The most frustating thing for me is the "stupid" feeling I get. I forget how to spell things all the time. I also can be talking to someone and just forget what I was about to say. Thats a little uncomfortable when it happens to be your boss. lol On a positive note Topamax does cause weight loss. I have lost 15 pounds..
Thanks for clarifying.

Also, please let us know of any new developments on your case... I'll be sure to do the same.

 
Old 11-07-2010, 09:19 PM   #15
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Re: why does my head burn

A Chiari malformation can definitely account for the burning and weakness, as can any condition that impedes the normal flow of CSF (cerebral spinal fluid.) MRI is probably the best tool for imaging the CSF flow (along with ports, channels, and sinuses.)

Other conditions such as pernicious anemia (persistently low B12 levels) and low Vitamin D levels can result in similar symptoms. It's probably a good idea to get a complete blood analysis done to rule out diabetes, other anemias, severe mineral deficiencies, Wilson's Disease, systemic lupus, parasitic diseases, and chronic infection. A spinal tap might be necessary for checking for neurological conditions (including MS and Lyme disease.)

It sounds like your doctors are doing the right things, but don't hesitiate to ask questions. You are likely going to be a very important member of your diagnosis and treatment team, so make sure they allow you to get involved.

Topomax and Neurontin are likely to be useful drugs, and possibly Lyrica and/or Tegretol (or a slightly more well-tolerated "cousin" called Trileptal.) Anti-seizure meds like Klonopin or Zanaflex may be helpful even if your underlying condition isn't related to seizures.

Jeff

 
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