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Old 02-11-2009, 01:47 PM   #1
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Pineal Cyst

I was diagnosed with a 1.5 x 2 cm pineal cyst in 1999. My followup MRIs have all been stable, but all have recommended followup due to an enhancing ring around the cyst, and due to the fact that it is either a bilobed cyst or 2 separate cysts. There was also a nodularity noted next to the cyst.

Does anyone else have a cyst this size, bilobed, or with an enhancing ring?

It seems that nothing is changing with the cyst, although my last MRI was in 2003. I continue with headaches daily, and occasional visual dysfunction.

Would love to compare if you have been diagnosed with a pineal cyst.

 
Old 11-07-2011, 07:20 PM   #2
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Re: Pineal Cyst

i have a pineal gland cyst too, a little bigger. i get severe headaches, as well as minor.

 
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Old 12-06-2011, 11:13 AM   #3
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Re: Pineal Cyst

Quote:
Originally Posted by kenziecamille View Post
i have a pineal gland cyst too, a little bigger. i get severe headaches, as well as minor.
Have you had MRIs? What does your neurologist say about it?

 
Old 12-06-2011, 02:09 PM   #4
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Re: Pineal Cyst

I get followup MRI's done. they've all said nothing has changed. i have the pineal gland cyst, and a white matter lesion on my frontal lobe on the left. (but we think that's got to do with my possible disease). My neurologists havent said anything. i've seen multiple. they jus said not to worry about it. but i mean my headaches have gotten so bad i've had to go to the ER for pain relief. so i don't know. i don't think anyone in my family has a pineal gland cyst. & i also have vision issues. i get blurred vision frequently. but we don't know if its from the headaches or my possible disease (im in the process of being diagnosed with a disease)

 
Old 12-08-2011, 07:55 AM   #5
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Re: Pineal Cyst

I also have terrible headaches and occasional blurred vision. The headaches they say are due to chronic sinus congestion. This is seen on all of my MRIs in the ethmoid and maxillary sinuses. The vision issue they say is caused by astigmatism. Never had astigmatism before last year. Hmmmm....

I also have memory issues, loss of words, and occasional trouble staying asleep. I have hallucinations that come and go as well, both during the day and night.

I, like you, have seen many neurologists. They all say the headaches are not due to the cyst. The most recent neurologist doesn't want to see me back for 5 years.

 
Old 12-08-2011, 08:57 AM   #6
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Re: Pineal Cyst

they havent said i have a a chronic sinus issue. i also have the memory issues & sleep problems. i wish my neurologists here would do something. i had an EEG done last week & my primary care doctor doesnt even know what it says. like he doesn't understand the terms they used cause hes a pediatrician

 
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