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Old 04-24-2009, 09:33 AM   #1
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My4girls HB User
Question I need some help with cerebral atrophy in infants

My 14 month old daughter has just been diagnosed with cerebral atrophy and with a bilateral frontal hygromas. I'm so lost right now and not sure what to think. They don't know the cause yet, she is undergoing genetic testing on Monday in hopes to clarify stuff. She was born at 32 weeks and 5 days, stayed in the hospital for 18 days. At about 6 months of age when they were doing her check ups and measuring her, they noticed that her head was growing quicker than the rest of her. They monitored her and then referred her to a pediatrician who decided to send her for an MRI, which came back yesterday with the above problems. Now I did some reasearch on the internet, but haven't found a whole lot of info. If anyone has any information for me, can you please share.

Thank you so much.

Nathalie, a distraught mother of a very special girl.

 
Old 04-24-2009, 10:09 AM   #2
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bethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB User
Re: I need some help with cerebral atrophy in infants

Quote:
Originally Posted by My4girls View Post
My 14 month old daughter has just been diagnosed with cerebral atrophy and with a bilateral frontal hygromas. . Now I did some reasearch on the internet, but haven't found a whole lot of info. If anyone has any information for me, can you please share..
Nathalie, the first thing that came to my mind was an infection of the brain..but she is so young, if it was an infection, I suspect she may have gotten it from you before birth.

I have read of similar scenarios, but the mothers often have symptoms before giving birth...some of these include MS, Lupus, or ALS like symptoms... neurological symptoms (like electrical currents/shocks, tingling and numbness, burning sensations, headaches, visual changes, auditory changes, etc.).

Unfortunately, most doctors (including specialists) in Canada don't have the expertise to diagnose this condition...unless they are a Lyme Literate Medical Doctor.

If it is Lyme, the sooner the diagnosis and treatment the better, because symptoms can be stopped or reversed. But if it is Lyme and it remains undiagnosed, the outcome may be very grave.

For your sake, for your children's sake, and for the sake of that very special child, I would hope that you would pursue this possibility further.

Blessings.

Bethsheba

 
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