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Old 05-26-2009, 03:49 AM   #1
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Confused and muddled, with memory problems

I'm a 34 yr old male, whoís lived in the U.K all my life, who was diagnosed with having M.E / Chronic Fatigue Syndrome some 11 years ago now. Prior to this time, I had always been lucky enough to have very good mental and physical health.

I've always been a bit sceptical of this diagnosis, as I'd never actually been that fatigued, but have had many neurological / cognitive complaints over this time, including persistent headaches, short term memory loss, problems with natural thought process / brain fog, etc, etc. I was however happy with the investigations that were carried out at the time of diagnosis 11 years ago, and again about 5 years ago, when I last experienced a severe flare up of symptoms. These investigations between 1998 - 2004, have included 2 MRI scans, a CT scan, and several lots of full blood tests being carried out, all of which have come back next to normal. In 2004, I also had Neuropsychometric testing, the results of which, although werenít normal, were what could be expected of someone with M.E - i.e. poor concentration, etc.

Between the summer of 2004 and December 2008, although not back to being 100% health wise by any means, I was certainly able to live a relatively normal life, in that Iíd been able to attend university part time, have a social life again, and was more than capable of taking care of domestic day to day tasks - cleaning, shopping, managing finances, etc.

Late on in December 2008, I started to experience problems with my concentration faltering a little, as well as finding things a little more difficult to process mentally than of recent times.

As the month of January 2009 progressed, I started to experience diarrhoea most mornings upon awaking. Cognitively, I started to become a little muddled and confused, along with having short term memory problems. Mental tasks, such as writing emails for example, had become notably harder.

I started to have problems selecting correct words & using wrong words more often. Written sentences started to no longer Ďcomputeí very well, and the same problem started with verbal communication, as I started to need to ask people to repeat themselves, as I wasnít able to process what they were saying to me on their first attempt.

Iíd now started to feel constantly woozy - like I was drunk.

By the end of the month, IĎd lost over a stone in weight. Iíd been around 13 1/4 stone throughout most of 2008, but had now dropped to around 11 1/2 stone.

Into February 2009, the drunk feeling had become worse, and I was now experiencing diarrhoea every morning upon awaking, and after nearly every meal, irrespective of what the meal was.

My legs had begun to feel very Ďjellyí like and I was feeling a little unsteady on my feet.

Muscles felt like they were trembling a lot of the time - especially in lower back and neck, and my hands were visibly shaky at times - especially when trying to perform intricate tasks, e.g. using a screwdriver.

Iím now feeling confused & muddled from the moment I awake, until I go to bed. Simple tasks have become mentally overwhelming, and perplexing - even just making breakfast, or having a bath.

My sleep has started to become very disjointed - Iíll sleep for an hour or so, then wake every hour, on the hour, getting an average of around 4 hours a night.

Into March 2009, the feeling of being drunk, continues to feel more and more intense. Iíve become quite clumsy, and have noticed I'm holding hands in strange positions in front of me quite often.

By now, my judgement is feeling quite impaired, and Iím feeling increasingly unsteady.

My muscles have now started to twitch all over my body, at times, quite noticeably, and for sustain periods of time.

Iíve started to mistake a conversation Iíve had with one person, for one Iíve had with someone else.

My eyes have started to cloud over at times, impairing vision temporarily, then clearing

By April 2009, my conception of time, and what day it is has become somewhat hazy. Iím finding it extremely difficult - to the point of being impossible a lot of the time - to have conversations. Increasingly, the moment I've said something, I'm forgetting what it is that I've said. Have been told Iím repeating myself again & again.

Iíve become increasingly blank in mind when asked something. Have also been told I'm becoming more blank, and unresponsive in facial expression.

My awareness of what's going on around me, along with awareness of time, date, etc has diminished significantly. Disorientated frequently now.

The muscle twitching has become pretty much constant , and much more severe - occurring in several places simultaneously. Iíve also started to experience mild involuntarily jerking during the daytime.

Now into the current month of May, and Iím in a constant daze like state, wandering around my apartment, with no purpose, not knowing half the time, how Iíve come to be doing, whatever activity it is that Iím doing.

I seem to be making lots of pointless movements. I.e. moving arms as I'm going to do something, but then just stopping. My movements are also feeling increasingly rigid and unnatural.

Finding it incredibly difficult to manage bills, and keep track of finances. Was
previously quite adept at doing so.

Iíve now started to need prompting on occasions to do normal activities, such as when to go to bed of an evening. This said, Iím still able to bathe myself, and prepare very simple meals for myself i.e. toast, soup, etc, but am having to write down when Iíve eaten meal, otherwise as crazy as it sounds, I forget a lot of the time that Iíve already eaten.

Understandably, Iím very scared as to whatís going on. However, my G.P, an M.E consultant Iíve seen twice since the turn of the year, and a neurologist I saw in April 09, donít seem to be that concerned about me, attributing a lot of the problems to either depression or anxiety. Iím worried that because Iíve had a pattern of similar symptoms over the years, although I must stress, never, ever this severe before, they see this, and just attribute my current patch of ill health to being more of the same, that will eventually
sort it itself out.

I donít consider myself to be particularly depressed or anxious presently, as the only thing thatís preventing me from partaking in normal activities, socialising with friends, etc, is the symptoms Iím currently experiencing - principally feeling confused and muddled 24/7. My doctor has put me on 75mg of Venlafaxine since February, with a view to this alleviating symptoms, but of course, itís done nothing. I was also briefly referred to a community psychiatric nurse, who promptly discharged me after 2 appointments, believing I didnít have any sort of significant mental health problem, and the very mild depression and anxiety I did have, was a direct consequence of the symptoms Iím experiencing.

My most recent lots of bloods Iíve had taken, at the end of April 2009 - thyroid, etc, all came back normal. Iím currently waiting for the results of another MRI scan, although have been told in no uncertain terms, if this turns out to be normal, that no further investigations will be carried out on the National Health Service, and Iím not in a position financially, to pay to see anyone else privately.

In the meantime, Iím having to rely on my elderly father to do my shopping, pay bills, etc, whilst it feels like my capacity to function mentally, is slipping away from me as every week passes.

Any advice, with regard to possible causes of symptoms, my next course of action, etc, would be greatly appreciated.

 
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Old 05-30-2009, 09:31 AM   #2
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Kiasmama HB User
Re: Confused and muddled, with memory problems

you seem quite articulate for someone that is having their mental abilities shrink. What tests did the neurologist do? Have you been to a neuropsychologist? They will likely do testing that will give a good idea about what is causing the problem.

 
Old 05-31-2009, 01:17 PM   #3
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londonloves HB User
Re: Confused and muddled, with memory problems

Quote:
Originally Posted by Kiasmama View Post
you seem quite articulate for someone that is having their mental abilities shrink. What tests did the neurologist do? Have you been to a neuropsychologist? They will likely do testing that will give a good idea about what is causing the problem.
I've posted this on behalf of my best friend.

The neurologist did the standard walk along a line, touch your nose, and test reflexes type of tests. Unfortunately, as he can't afford to go down the private route, we've come to a dead end on the national health service with regard to seeing any more consultants, getting different referrals, etc, due to the symptoms not being too dissimilar to what he's experienced previously over the past years.

This has left him in a very frustrating, not to mention worrying position, of whilst being told there's nothing sinister wrong, his health continues to deteriorate by the week, uncharacteristic of the original diagnosis of M.E, which was made several years ago now.

Many thanks for your suggestion.

 
Old 05-31-2009, 09:05 PM   #4
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scout316 HB Userscout316 HB User
Re: Confused and muddled, with memory problems

london...well the twitching that is going on is not a slight thing in my opinion.did the neuro not comment on that sx?

I think you definitely need to have a dr. investigate all of your sx and not just chuck it all up to anxiety/depression.

I hope you get a correct dx and some help soon.I would offer you some advice on what your sx could be pointing to,but you were not clear on what specific bloodwork you had done.

Also did you see a gastro dr. for your sx of diarrhea?

I'm so sorry you are having so many health issues~post back anytime~

Scout

 
Old 06-01-2009, 12:57 AM   #5
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londonloves HB User
Re: Confused and muddled, with memory problems

Quote:
Originally Posted by scout316 View Post
london...well the twitching that is going on is not a slight thing in my opinion.did the neuro not comment on that sx?

I think you definitely need to have a dr. investigate all of your sx and not just chuck it all up to anxiety/depression.

I hope you get a correct dx and some help soon.I would offer you some advice on what your sx could be pointing to,but you were not clear on what specific bloodwork you had done.

Also did you see a gastro dr. for your sx of diarrhea?

I'm so sorry you are having so many health issues~post back anytime~

Scout
Hi Scout,

The neurologist wasn't at all interested in the twitching, despite it being stressed that this had increased significantly over a period of around six weeks, prior to the appointment. It has actually surprised me too, that none of the doctors we've seen so far, seem to be at all interested in this symptom - especially given everything else that's going on too.

He's seeing a gastroentroligist later this month with regard to the weight loss and diarrhoea. The neurologist that we saw, was more concerned about that, than anything else, so subsequently has asked for one of his colleagues to see us. I'm just hoping something will come out of this, as I think even I'm starting to despair now, at the lack of options we're now left with.

As far as blood tests are concerned, he had just a standard lot of bloods done. Sorry I can't be more specific, but I do know this included thyroid.

 
Old 06-01-2009, 07:58 AM   #6
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Re: Confused and muddled, with memory problems

hello again london

The gastro dr.is a good idea and not just because of the diarrhea and weight loss sx.The other neuro sx could be coming from stomach problems also.So I was thinking maybe you need to bring up a possibility of a B12 deficiency problem.Most of the sx you have could be coming from that.

A direct B12 level blood test plus an MMA(methylmalonic acid)level should definitely be done also because many people will have a low normal B12 level and still be B12 deficient.

People with low B12 are very often given a misdiagnosis of being depressed/having anxiety/or some psychiatric disorder.

What is standing out to me is your sx of not knowing what position your hands are in and the "jelly" feeling along with the twitching/muscle trembling.....these and most of your other sx are classic low B12 sx.

Unfortunately MRIs,CT scans can't give you a dx for low B12.By any chance though did you have any mild brain(cerebellar)atrophy showing up on the MRI?

I have written several posts here along with RainbowsEnd where we have shared very valuable information concerning B12.If you like I will post the sx of low B12 again.

Have to run....but I'll be checking back in later today.

Scout

 
Old 06-02-2009, 01:11 AM   #7
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londonloves HB User
Re: Confused and muddled, with memory problems

Quote:
Originally Posted by scout316 View Post
hello again london

The gastro dr.is a good idea and not just because of the diarrhea and weight loss sx.The other neuro sx could be coming from stomach problems also.So I was thinking maybe you need to bring up a possibility of a B12 deficiency problem.Most of the sx you have could be coming from that.

A direct B12 level blood test plus an MMA(methylmalonic acid)level should definitely be done also because many people will have a low normal B12 level and still be B12 deficient.

People with low B12 are very often given a misdiagnosis of being depressed/having anxiety/or some psychiatric disorder.

What is standing out to me is your sx of not knowing what position your hands are in and the "jelly" feeling along with the twitching/muscle trembling.....these and most of your other sx are classic low B12 sx.

Unfortunately MRIs,CT scans can't give you a dx for low B12.By any chance though did you have any mild brain(cerebellar)atrophy showing up on the MRI?

I have written several posts here along with RainbowsEnd where we have shared very valuable information concerning B12.If you like I will post the sx of low B12 again.

Have to run....but I'll be checking back in later today.

Scout
Hi Scout,

We're going back to doctors surgery in a few days time, so I'll be sure to find out then, what the blood tests were for that were carried out and the results, along with getting a copy of his MRI report.

I'll post the results once I have them, but you've been most helpful in the meantime.

Last edited by londonloves; 06-02-2009 at 01:13 AM.

 
Old 06-19-2009, 02:35 PM   #8
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londonloves HB User
Re: Confused and muddled, with memory problems

Everything has come back normal with his MRI scan of the brain, so we're still none the wiser as to what's going on...?

 
Old 06-27-2009, 03:00 AM   #9
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londonloves HB User
Re: Confused and muddled, with memory problems

Addtional blood tests - including tissue transglutaminase, calcium, magnesium, zinc and ESR, all normal. So, still no answers...

 
Old 06-30-2009, 09:45 PM   #10
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Finest1104 HB User
Re: Confused and muddled, with memory problems

London, I was searching boards for 'brain mri' and happen upon your post. Your friend has many of the symptoms I had been experiencing for approx 8 yrs before being diagnosed with Lyme Disease. I'm not sure if it is an issue where he lives but it couldn't hurt to be tested. My symptoms are so many and I had gone to multiple drs. I was diagnosed with Fibromyalgia 5 yrs before the Lyme. I thought they just wanted to give my symptoms a name so they said Fibromyalgia. I've also suffered from gastric problems and horrible abdominal pain. I was treated for the Lyme (which was left untreated for yrs) back in Oct 08 for 3 months. I just started treatment again since the 'brain fog' started up again with the weakness, shaking, short term memory loss, imbalance/dizziness. Hope your friend finds answers. Good luck.

 
Old 07-26-2009, 11:14 PM   #11
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Question Re: Confused and muddled, with memory problems

Dear London,

I am writing because my mother in the past year has had all the same symptoms that you are having except the diarrhea. Her problem in that area is the exact opposite! But other then that it is all the same! We have been to several doctors (primary care, Neurologist, Cardiologist, Psychiatrist, etc) She has had a MRI and it came back completely normal. Has had many blood tests, all normal. And at the doctor she is seeing now(cardiologist) she has had a hulter monitor recording 24 hours, a stress test and an echocardiogram. We are going this Thursday to get the results from the tests and if they all come back normal, like your situation, they have no further tests they can do! If the tests show anything I will be sure to let you know in hope that it will help you with your illness! If you have any ideas or recent discoveries PLEASE let me know!

Don't worry you are not the only one out there with these issues!

IN waiting,

Amy

 
Old 07-26-2009, 11:17 PM   #12
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Question Re: Confused and muddled, with memory problems

it double posted sorry

Last edited by AmerzJL; 07-26-2009 at 11:19 PM. Reason: double posted

 
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