Re: what is wrong with me
just wondering hon how far up that MRI was that was done on you? and did they also use a contrasting agent as well? what your symptoms are kind of indicating here is this very easily just could be stemming from some type of real issue that is NOT actually located in your low back, but could very easily be stemming from anywhere above that lumbar in either the T or C spine level too? if thay have not done a full spinal MRI with contrast on you, just considering your latest symptoms too, that really do NEED to go up that way now. trust me here when i say that there are just MANY possible issue that anyone can just 'have" or even be born with in any area of the spinal, and even wayy up in that c spine area can create many different presentations of symptoms to any place located below that c spine area if it is just impacted in any real way too? it is ONLY becasue of the much higher level of possible c spine impact that would/could just very easily be able to give symptoms any level below it. i personally have a TON of symptoms below the level of my c 7 T 1 level cord injury.
i would actualy see about getting that full spinal contrasted MRI but actually start it at the brain level on down just given the facial symptoms and what appears to also be some level of impact on what could be in the cerebellum which governs 'gait" and your ability to simply kind of 'know' where any body parts are with relation to space, and it also impacts and governs part of our vision. but the bigger thing here is for every single working area of the brain that sends signals to and from the periphery ALSO has a very real corresponding spinal 'tract' within our spinal cords that is just soo needed to be intact in order for those signals to even get too and from our brains. there IS a tract called the spinocerebellar that directly would link a possible spinal cord issue to your brain. mine just happens to be damaged from my cord surgery, along with two other very crucial tracts as well. and believe me, that spinocerebellar has SHOWN itself with my abilitys to walk at times and even being able to walk a straight line? i always tend to vear off to the left, no matter how hard i try to like stay in the middle when walking down my hallway in my house?
you are just having some type of very definite 'disruption' of signals somewhere either in that spinal area or even the brain(less likely than the spinal tho) that IS kind of 'knocking out' you walking ability from time to time that simply NEEDS to be found where its coming from. like i already mentioned here,that spinal would be the most likely and common place to have that type of signal disruption with the actual brain coming in a second to it. this just needs a fully contrasted MRI from the brain and down thru at least the very end of that T spine area since i am only assuming that your already done MRIs were "only' done in that lumbar or slightly above? i too have bladder issues from MY cord crap too. so who really knows. but getting those key areas just fully scanned with contrast would be a great type of a "baseline" and diagnositic just looking at what your symptoms have been and what you have been feeling too. this is what i would ask for right now if i were having what you are as symptoms. everything that just CAN impact what anyones true symptoms actually are simply NEEDS to be tested if for no other reason than to rule them out as possibles? or rule some type of real solid finding IN as the base of the probelm. i do hope thay will allow this from your brain on down and make certain it just IS WITH a contrasting agent too. it does help TONS to better highlight certain areas, espescially vessels within the brain and running along that cord area too. please let us know what you find out and make CERTAIN to always always obtain your very own copies of ANY real testing results like the MRI reports too? you just really DO need this stuff for alot of reasons. make sure you also obtain the other MRI reports done on you too just so you have them all in your possession. Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.