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Old 03-27-2010, 08:56 PM   #16
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Re: weakness & strange feeling in head

I've not had a urinalysis done, even though I probably should. WIth no insurance, doctor appts. are few and far between and only when really needed. Sometimes when we get to "what else besides symptom X (reason for appt) are you dealing with" I may talk about other symptoms, last time my "other symptoms" were frequent urination and unusual thirst. Now that's gone, of course.

One theory I was thinking of the other night: with the high calcium level in the blood, do you think it could be that the excess calcium is causing muscle tightening and therefore could be partly behind the head pressure? Then I was thinking, as per your mention of it, maybe a subclinical vitamin D deficiency could be why the calcium isn't getting absorbed?

Any ideas on that?

thanks for all your help, of course

 
Old 03-31-2010, 09:17 AM   #17
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Re: weakness & strange feeling in head

hey Bill..here's what I found:

calcium use & excretion are regulated & stabilized by a "feedback loop" involving the PTH(parathyroid gland) & Vitamin D

there are two tests for calcium..drs. use the total calcium,but the ionized calcium is a better,more accurate test.

symptoms of higher calcium are:

Fatigue
Weakness
Loss of Appetite
Nausea
Vomiting
Constipation
Abdominal Pain
Urinary Frequency
Increased Thirst
Muscle Spasms
Confusion

tests that should also be done when calcium is high are:

urine calcium
phosphoroos
magnesium
vitamin D
thyroid

these tests help in finding the "underlying problem" when calcium is high.

fluctuations in calcium can cause heart to slow down or beat too rapidly.

causes of high calcium:

benign tumor in parathyroid gland
cancer
hyperthyroidism
sarcoidosis
prolonged immobilization
excess vitamin D intake
kidney transplant

your albumin was at high end>5.0(3.6-5.1)..that points to Dehydration(which would account for your increased thirst)

I hope you find this information helpful...I find it very interesting and it has helped me understand a few more things also.

I will continue to investigate the head pressure to see if it can be related in some way to this information.

Have a good day Bill

Scout

 
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Old 03-31-2010, 08:29 PM   #18
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Re: weakness & strange feeling in head

Thanks a lot for this information.

Someone on another board suggested looking into hyperparathyroidism. My TSH and T3 were normal, though, if that means anything.

As far as "prolonged immobilization" causing high calcium, that doesn't include a sedentary lifestyle, does it? Just making sure. I'm assuming that might mean being bedridden for a week or longer, etc.

The other possible cause, excess vitamin d intake being a possible cause, do you think dropping Vitamin D3 supplementation would be a good "precaution" to take? Currently I'm taking 1400 IU per day, as I was just reading that vitamin D helps to produce hormones such as cortisol, so theoretically if I have adrenal fatigue, I probably have low cortisol.

 
Old 03-31-2010, 09:42 PM   #19
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Re: weakness & strange feeling in head

after everything I read on calcium/vitamin D I think you would be wise to stop the vitamin D...then see how you feel.yeah hormones play a giant part in stress....

 
Old 04-06-2010, 09:25 PM   #20
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Re: weakness & strange feeling in head

hi Bill

got your message...I had a very rough couple of days....sinus headaches,feeling like I'm sweating then freezing....

the thing with the glossitus(sore tongue) is that it comes & goes...sometimes it's so sore & burns for days then it lets up and feels fine...it's a mystery to me why it does that????

I appreciate your help on everything...I feel so frustrated & down...just want to be well....

I seen the post with the guy who has the head pressure like you...why can't the drs. figure out what is causing it?I think that guy hould press for a brain/c-spine MRI if he has insurance...I'd like to know if he has atrophy(which can be from low B12)...I had that ,but it was fixed with the B12 shots...can't recall if I had head pressure then.

When I get the head pressure I feel like I cannot function properly...well you know the feeling....

I am waiting to hear how my EEG results came out...my dr. was off last week and the nurse said they'll call me after the dr. looks at the results....oh I hate waiting,but at the same time I'm afraid of hearing some bad news....goingcrazy8 said that if it was bad they'd probably tell me right away,but the nurse said they just got the resuts in that day when I called and the dr. was off so she wouldn't se them 'til monday(yesterday)...so I'm just waiting....

I'm interested in what you've found cocerning B12...just send me a mesage or post on here....and hey did you ever have an EEG(brain waves test)...when I was 19yrs. old I fell off a swing and hit my head really forcefully on some very huge tree roots.It made my brain waves go too fast...I had constant pressure/tinnitus and would feel like I was inside a fast falling elevator...it was awful...the whites of my eyes were totally blue and I felt weird....so the dr. pur me on Dilantin & Valium to correct the fast brain waves....it worked & 3 months later my brain waves were normal,but the tinnitus never let up completely and the dr. said I'd probably always have tinnitus from that injury.

Well I'm thinking the head pressure has something to do with the brain,because when I get it I feel really "funny" in my head...do you have a headache with the head pressure consistently or sometimes,but not related to the head pressure?I get headaches,but they are not with the head pressure.

....and at the beginning of the day and the ending of the day nothing has changed...it's all still the same....no answers...no diagnosis...it has to get better,but we can be thankful when it doesn't get worse...at least we have that

Scout

 
Old 04-07-2010, 08:10 PM   #21
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Re: weakness & strange feeling in head

Quote:
Originally Posted by scout316 View Post
I'm interested in what you've found cocerning B12...just send me a mesage or post on here....and hey did you ever have an EEG(brain waves test)...when I was 19yrs. old I fell off a swing and hit my head really forcefully on some very huge tree roots.It made my brain waves go too fast...I had constant pressure/tinnitus and would feel like I was inside a fast falling elevator...it was awful...the whites of my eyes were totally blue and I felt weird....so the dr. pur me on Dilantin & Valium to correct the fast brain waves....it worked & 3 months later my brain waves were normal,but the tinnitus never let up completely and the dr. said I'd probably always have tinnitus from that injury.
There is strong evidence that you can't fix low B12 or B12 deficiency with shots once or twice a month, particularly if you are getting cyanocobalamin. The long explanation would be hard for me to write here, with all my brain fog. But essentially, once the B12 system is broken, it is not easily fixed, and generally the only way to heal is to "override" with active B12s. ActiveB12s being methycobalamin and adenosylcobalamin. Cyanocobalamin is factually inactive, it has to be converted in the body and not everyone makes that conversion easily.

I have never had an EEG but would like to get one. I've been getting frequent episodes of waking up with abnormal vision (lasts a couple minutes), over the last few months. This is typically accompanied by terrible head pressure (but not pain!) upon waking, so the two might be linked. My head pressure has gotten noticeable worse in the last year, so that it affects my sleep much more than it used to. And with that came the abnormal vision episodes.

Quote:
Originally Posted by scout316 View Post
Well I'm thinking the head pressure has something to do with the brain,because when I get it I feel really "funny" in my head...do you have a headache with the head pressure consistently or sometimes,but not related to the head pressure?I get headaches,but they are not with the head pressure.
I do sometimes have typical (but mild) headaches along with the head pressure, but not often. I would not be able to tell you if they are related--how could I know that? One thing I can say for sure is that I do not get classic "excruciating" migraine attacks, so therefore I have to wonder if head pressure even belongs to the migraine family.

I've had near-constant left-ear tinnitus for about 1.5-2 years now.

Six years along with this awful nuisance, no answers, I'm beginning to wonder if I should give up hope of ever finding relief. True, it could be a lot worse, but I can't deny that the head pressure + 15 or so other symptoms causes a lot of problems for me.

Last edited by moderator2; 04-08-2010 at 04:03 AM.

 
Old 04-08-2010, 10:49 AM   #22
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Re: weakness & strange feeling in head

thanks Bill...your post made me feel better...that's what friends are for.

about migraines...there's the excrutiating,painful kind,but there is also the kind that has "no pain at all";this is called a "silent migraine".Those few months I had that "derealization"....feeling was probably a "silent migraine"(I read about that on the boards here) and it makes a whole lotta sense to me...and then afterward I had the two week long headache and the derealization feeling was gone.

A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.

I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????

Neurologists don't seem to know anything about the head pressure so I think an endocrinologist or an ENT dr. would be better at finding a dx for head pressure...neuro's just look for their specialty(MS,Parkinson's,etc.)

I'm waiting on the copies of my blood tests...I shoud get them today/tomorrow...I can't wait to look at them...that sounds funny,but I want to compare them to my other labs from August last year...see if anything changed.

Well right now I'm not doing a thing about the B12...since it was 605 I'm not concerned...I don't seem to have any low B12 sx right now...I just don't care for the way all my drs.have made mistakes at the expense of my health.

So did you ever notice if certain foods trigger any of your sx,Bill?I'd start keeping a log of what you eat/drink and see if anything points to that....did you stop or cut down on the Vitamin D yet?

Well I haven't seen any new activity as far as the waiting room is concerned.It will be beneficial once more people are there.

Well tinnitus is another thing we have in common..mine is in my right ear though...I noticed when it's really bad my legs ache(shins) and my hearing is very sensitive to every little noise.

Wonder if your head pressure is a constant, silent migraine...I'll see what I can find on that...

Scout

 
Old 04-08-2010, 08:15 PM   #23
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Re: weakness & strange feeling in head

Quote:
Originally Posted by scout316 View Post
A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.
Thanks for all your advice, scout. In any event, though, I just don't think I should try another exclusion diet without the advice of some kind of professional. I tried the candida diet before and possibly dropped to 130 pounds, and as a 5'9" male, that just doesn't look good. There was an energy increase but no effect on head pressure or anything else. With all that weight loss, I could barely keep my usual clothes on at that point.

The idea that a few specific foods could be triggering my vision abnormalities, head pressure, and other problems certainly has merit. But how could I know which one(s) are the trigger? Call me lazy or entitled, but I don't want to keep switching things around in terms of diet until I can find more specific evidence. Everyone tells me to get rid of caffeine but I dread giving up these meager 2-3 cups per day, which is down from 5-6.

One thing I know for sure, anything with lots of added sugar makes me tired and fatigued, and I'm better off without it. That's one dietary change that makes sense for me, and I've kept to it, with noticeable benefits. Again, though, it doesn't reduce head pressure. Nor does exercise. But I stick to both habits because they have proven benefits, regardless.

Quote:
Originally Posted by scout316 View Post
I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????
That's interesting, my head pressure is also at its worst when lying down. Lately I've been trying to elevate my head, which helps a little bit.

I have explored the sinus issue, but cannot find any concrete answers within that topic. Basically I can't figure out which way to approach it. Basic remedies like nasal spray never did anything. Options are too limited without insurance.

 
Old 04-09-2010, 08:52 AM   #24
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Re: weakness & strange feeling in head

Bill...have you been on any anti-biotics since your head started having pressure?If not I think a trial of anti-biotics might be helpful to you.You can have consistent head pressure from sinuses that are thickened...when I had head pressure my brain MRI showed "a mild thickening of the sinuses"...yeah...so I think that might have something to do with your head pressure...also your mentioning how it gets worse when you lie down....

Can you give your dr. a call and ask for an antibiotic for a sinus infection?Did you tell your dr. on your last visit you still had head pressure?...if you did then just call and say you still have the head pressure and could you try an antibiotic to see if it helps...I don't know,but if I were you I'd be willing to see if that'd help.

Scout

 
Old 04-09-2010, 08:10 PM   #25
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Re: weakness & strange feeling in head

Quote:
Originally Posted by scout316 View Post
Bill...have you been on any anti-biotics since your head started having pressure?If not I think a trial of anti-biotics might be helpful to you.You can have consistent head pressure from sinuses that are thickened...when I had head pressure my brain MRI showed "a mild thickening of the sinuses"...yeah...so I think that might have something to do with your head pressure...also your mentioning how it gets worse when you lie down....

Can you give your dr. a call and ask for an antibiotic for a sinus infection?Did you tell your dr. on your last visit you still had head pressure?...if you did then just call and say you still have the head pressure and could you try an antibiotic to see if it helps...I don't know,but if I were you I'd be willing to see if that'd help.

Scout
I was given some sample packs of antibiotics for sore throat w/ cold, about 2.5 years ago. Can't really place the time frame. But yes I definitely had head pressure then. However, I don't think the antibiotics helped the pressure. I don't remember the name of the product, but I'm pretty sure it was not Biaxin. I think I only took the antiobiotics every day for a week, tho.

Next time I go I'll have to remind him about the head pressure, and see what he recommends for it. I'm not sure if I should suggest it is caused by sinus problems, though, as I don't know for certain.

Can one really have chronic sinus problems without a stuffy nose or pain? Because I don't have either symptom.

I also find it interesting that you've mentioned multiple causes for head pressure that you've had throughout your life, one time from the mild head injury you had when younger, once from sinusitis, and more recently from some unknown cause. What a sly, sinister symptom this "pressure" really is.

 
Old 04-10-2010, 11:21 AM   #26
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Re: weakness & strange feeling in head

there was no pain or stuffy/runny nose when I had the bad pressure and went to a sinus specialist dr. and was given Biaxin...it was just tremendous head pessure...and it cleared up in 24 hrs and I took the full course of the antibiotic...the only thing I felt besides the severe pressure in my head was it also felt like I had a terrible toothache(I went to my dentist and there was no problem with my teeth)...he told me to see an ENT dr...so I did.Do you have any pain in your teeth at all????

Also you know the nose,ears & eyes are all connected and when one acts up it can cause problems with the head.Have you ever seen an ENT(ears,nose,throat)dr.?They specialize witrh all that...forget the family physicians...they're really not educated to handle anything more than common aches,pains,colds,flu,etc.

If your eyes,ears,throat bother you also then I'd see an ENT dr....the head pressure is coming from somewhere and that type of dr. should be able to figure that out for you.

So did you stop taking the vitamin D yet?...just wondering....

I did get the copies of my blood tests in the mail.Well let me tell you this...that dr. is full of nonsense too!My blood showed an elevated protein level,low lymphocytes,borderline low platelets,high MPV(mean platelet volume) and the biggest shock was that my B12 level was 998....yeah and that was on March 4th(last B12 shot was on Jan.4th)...then onMarch 8th my B12 level was 605....what do you think about that?Strange how it dropped like 400 points in four days....I wonder what the level is now....

I was upset because that dr. didn't check my iron or ferritin,but my magnesium was good at 2(in the past I had been low on that at 1.6).

Well I'll keep searching to find more info on consistent head pressure.....

Scout

 
Old 04-10-2010, 08:54 PM   #27
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Re: weakness & strange feeling in head

Quote:
Originally Posted by scout316 View Post
there was no pain or stuffy/runny nose when I had the bad pressure and went to a sinus specialist dr. and was given Biaxin...it was just tremendous head pessure...and it cleared up in 24 hrs and I took the full course of the antibiotic...the only thing I felt besides the severe pressure in my head was it also felt like I had a terrible toothache(I went to my dentist and there was no problem with my teeth)...he told me to see an ENT dr...so I did.Do you have any pain in your teeth at all????

Also you know the nose,ears & eyes are all connected and when one acts up it can cause problems with the head.Have you ever seen an ENT(ears,nose,throat)dr.?They specialize witrh all that...forget the family physicians...they're really not educated to handle anything more than common aches,pains,colds,flu,etc.
A lot of this is interesting to me. Yes I do get pain in my teeth from time to time and it is usually when the pressure is really bad. My eyes have also been bloodshot and dry for a couple years (I cant wear contact lenses anymore, because of constant dryness) and now it looks like the red tissue in the corners is inflamed. Sometimes when I'm lying down at night, trying to sleep, and the pressure is utterly killing me, that's also when I seem to get sinus drainage.

Quote:
Originally Posted by scout316 View Post
If your eyes,ears,throat bother you also then I'd see an ENT dr....the head pressure is coming from somewhere and that type of dr. should be able to figure that out for you.
How would I get the referral, though?

Quote:
Originally Posted by scout316 View Post
So did you stop taking the vitamin D yet?...just wondering....
I quit the 1000 IU of D3. However I'm still taking a capsule that has both 10,000 IU of Vitamin A and 400 IU of D3 (fish-oil derived, not beta carotene.) I was thinking maybe the Vitamin A could help with the dry eyes but I haven't noticed any effect. Not to mention I think low Vitamin A can cause dehydration, or something. Should I skip this one too?

Thanks again for all your help.

regards,
Bill

 
Old 04-11-2010, 10:21 AM   #28
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Re: weakness & strange feeling in head

hi Bill

if you don't have insurance then you shoudn't need a referral at all.What you can do is go to a web site for a hospital in your area...they usually have lists of drs. and what their specialty is.....then you can read about the dr. usually and pick which one suits your needs...an ENT in your case.

Well as far as vitamin A goes...I was low when they checked mine a couple years ago,but the dr. told me to eat foods rich in that,because vitmin A can be very toxic....so you should definitely stop that one.I think a good multi-vitamin has enough A in it anyways.

Plus I was thinking about the problem you have with the "derealization" thing and I read on here that it might be caused by sinus problems and also can be a "silent migraine".

Well I'm realy hoping that you can get in to see an ENT dr....you've been suffering a very long time.....

Bill I'm positive when you tell the dr. your head pressure gets worse when you lie down and some of your teeth hurt too(just tell the dr. you saw a dentist already and your teeth aren't the cause of it)that the dr. will prescribe an antibiotic for you.

You could also ask the dr. for an antibiotic that isn't very expensive(I think Erythromycin is very cheap,but biaxin used to be very expensive and they are similar antibiotics...or ask if a generic would work as well..sometimes the generic isn't as good,but the dr. will know which one to give you).

 
Old 04-12-2010, 02:52 AM   #29
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Re: weakness & strange feeling in head

Dear scout,

thanks again for your insight. your collaboration on this problem is invaluable.

i just wanted to ask, and i know it's a ridiculous question, but just asking your opinion. but would you place your bet on my case of head pressure being most likely caused by a sinus issue?

i would need to get the courage up to get another doctor's appointment soon. the ENT doc looks unlikely, isn't seeing a specialist a lot more costly than seeing a GP?

but suppose i tell my regular doc the stuff discussed here and i do get a script for strong antibiotics. i want to be sure this is a sinus issue, here's why: a long enough course of antibiotics can kill the good bacteria in your gut and you can get candida and even oral thrush from that. or so, that's what i've heard.

not to mention sometimes antibiotics don't even help a bad case of chronic sinusitis. if i have a sinus issue, it wouldn't be the acute form. not with head pressure daily for six years... that's not acute.

thanks,
bill

 
Old 04-13-2010, 05:04 PM   #30
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Re: weakness & strange feeling in head

...yeah a specialist would cost more I agree.

yesterday I spent hours researching consistent head pressure....I found a few things that possibly might help you....

there was this 44 yr. old man who was in the army...his head pressure started not long after he went overseas.He had an eye exam,CT scans,allergy testing,head x-rays and they couldn't find out what his problem was.Even after he was through in the army and went home the drs. couldn't figure out what was causing it.

He said that he had a heavy/tight feeling from his eye brows,temples to the back of his head.He would wake up with it everyday and it only let up when he was outside exercising.He was sensitive to bright light,had tinnitus,was lightheaded also.

One dr. said it might be a "left-over" inner ear viral infection or a mild,chronic tension headache or a eustachian tube problem(ears).He had about 6 posts I think on there,

but he never posted back to let anyone know if he finally was dx or he got better.He had similar sx as you so it was interesting reading his posts.

I read a bunch of other things and here's what I found so far:

try using saline nose spray(no medicine in it)to see if that helps...give it at least a week to get results

could be coming from the neck(several people were dx with neck problems,loss of natural curve in neck was mentioned)

anti-depressants can cause this(I heard of that before...actually seen a special on TV about it...years ago...)

you can try sudafed to see if that helps

could be related to the back also

well my friend I guess there are a ton of possibilities why you have consistent head pressure

as far as antibiotics go,that is a personal choice for you and if you'd rather not take them for whatever reason that's your choice,but you are right about the side effects...if you knew you'd get better with them I'm sure you' take them,but I can see you're not a fan of antibiotics(that makes two of us).

Scout

 
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