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Old 04-05-2010, 07:14 PM   #1
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Question 28 male/head symptoms/help appreciated

I am a 28 male with no previous history of any serious medical problems. For the past 3 years I have dealt with head pressure everyday in my forehead, both left and right sides/it shifts daily/hourly, and seems to just be getting worse. I have gone to doctors that referred me to anxiety specialist/nuro's and noone has really been able to help. I went on anxiety meds, but stopped taking those because they didn't help, plus i have never had anxiety issues. Essential tremor runs in my family and I have dealt with that since high school, but nothing has been more debilitating that this head pressure. It leads to extreme fatigue and my whole body does not feel "right". I feel like i have mood issues and it affects how i interact and do my job. I have seen doctors that dont feel i need any brain scans, mri's, because I seem perfectly normal when they interview me but at the same time everything they try to prescribe does not relieve this head pressure. I was a scholarship golfer in college and now my coordination is just terrible, i cant do anything athletic anymore because the head pressure just cripples my body. The only thing i can think of that possibly could be causing issues was when i was 13 i slid into third base playing baseball and cracked one of my vertebrae. this astonishingly went missed diagnosed for years untill i had a body scan for another baseball shoulder injury, and they found this on the bone scan. by then i was pain free and have been forever, but thats the only serious thing i can think of that may be causing these issues. do any of you have any thoughts on this? thanks so much for any help in advance, its appreciated.

 
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Old 04-05-2010, 07:57 PM   #2
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Re: 28 male/head symptoms/help appreciated

I am also 28 male and have had, more or less, this exact same problem. But I've had it for 6 years. Don't know about yours, but I have it 24/7. It appears to get gradually worse over the years. It is incredibly annoying, ruins the quality of my life (of course, this problem is nothing compared to what some people go through, so i can't complain *too* much), and makes for terrible brain fog and short term memory problems. Also, my coordination is affected, I'm fatigued a lot of the time, and as you mention, I simply don't feel right. It appears to be a similar problem.

The cause for mine is unknown, however I've not had many tests due to no insurance. Others have been through here with the same problem but they have no diagnosis, either.

Keep in touch and let us know if you discover anything.

 
Old 07-10-2010, 12:11 AM   #3
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Re: 28 male/head symptoms/help appreciated

follow up....

I tested positive for lyme disease and 4 other coinfections along with epstien barr. all from a tick. if anybody has my symptoms above, please consider finding an LLMD, lyme literate doctor, and getting your blood tested. I am starting to get better after one month of treatment, still not back to normal, but 1/4 of the way back.

 
Old 07-10-2010, 10:51 PM   #4
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Re: 28 male/head symptoms/help appreciated

Thanks willowpoint for your update. Congratulations on winning through. It is so frustrating when you know there is something wrong but the docs won't believe you. I have been following Benits thread with interest as I have the same problem head pressure. As you will have read on that thread I improved a lot on antibiotics but have gone backwards since coming off them at the beginning of May.
Was it a specific blood test for Lymes disease you had to have? Was there any other sign in your blood of infection?
Thanks again

Gjoy

Last edited by gjoy; 07-11-2010 at 12:18 AM.

 
Old 07-10-2010, 10:58 PM   #5
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Re: 28 male/head symptoms/help appreciated

Hi willowpoint, Me again,

I see that Lyme disease is not prevalent in my part of the country and I don't think I have ever had a tick bite. What were the other things you tested positive for?

Thanks

Gjoy

 
Old 07-11-2010, 09:36 AM   #6
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Re: 28 male/head symptoms/help appreciated

gjoy,

How long were you on antibiotics? Apparently the way the lyme bacteria works its very hard to kill and continues to adapt to elude antibiotics. I have read where people have needed years of antibiotic therapy before they were finally better.

the blood test that showed my positive results is called Western Blot. Lyme disease testing is very inaccurate though so you need to find a lyme literate doctor that knows the other infections to test you for that usually go along with lyme disease. I was lucky and my blood showed the lyme, but for many it doesnt, and goes undiagnosed for years and years. Also, I see your from Australia, have you done any traveling to the states or maybe Parts of Europe? 50% of people dont remember, or know, they were bit by a tick leading to even more misdiagnoses, so think hard where you have been the past 10 years and see if you were in a more prevalent area.

the other infections I tested postive for were..
Rocky mountain spotted fever
enrilchia
babesia
and a couple others that arent considered serious and are easily treatable.

another dead give away were the high levels of EBV AND HHV in my blood. These are strans of the herpes virus(not the sexually transmitted one) that all people usually have exposure to, but a healthy immune system is capable of fighting it off, and when that happens you have immunity. In my case these are very prevelant in my blood which means my immune sytem is very week, and is just another guide for a doctor to come up with a diagnoses. If you dont have Lyme then your doctor can explore other avenues as to why these showed up, and could lead to a diagnoses that way.

dont give up on your search. I almost did, but it will get better. It may take extensive research on your own, but im confident you will find answers like I did. Good luck

 
Old 07-11-2010, 05:46 PM   #7
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Re: 28 male/head symptoms/help appreciated

Thanks very much Willowpoint for your encouragement and the info. Although I don't live in a tick area I have camped in many. I have been saying for a long time the head pressure is an infection, but even when I improved on antibiotics and went backwards again without, I was told to go back to the psychiatrist. I took 8 courses. I think women have more trouble fighting the anxiety tag.

I have had this problem for many years, I believe more than 25 but it has got worse in the last few and I have had the other symptoms, sound and light sensitivity, dropping things, difficulty walking, shortness of breath. When the throbbing starts in my head I often get a pain in my lower back. Have you had any of these probs? I am seeing another doctor tomorrow and I am feeling more encouraged. I won't walk out of his rooms without some action. I have been patient enough.

Thank you

Gjoy

 
Old 07-11-2010, 08:32 PM   #8
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Re: 28 male/head symptoms/help appreciated

As much as I may be a pessimist, I don't think that head pressure has much in common with Lyme Disease; while Lyme Disease can be a mysterious disease and affects people differently, it has its own core set of symptoms.

I myself do not have any of the typical Lyme symptoms, other than chronic fatigue. Lyme Disease has been the new catch-all diagnosis on the Internet, and elsewhere, for quite some time. Unless you have a number of symptoms compatible with LD, I wouldn't pin your hopes on it... or at least, I wouldn't.

It goes without saying, my Lyme Titer test came back negative. I'll probably get a Western Blot test soon, now that I have insurance and can afford any number of blood tests. But really, I am not pinning my hopes on getting a LD diagnosis.

 
Old 07-11-2010, 09:08 PM   #9
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Re: 28 male/head symptoms/help appreciated

Benit,

I am here following up on my original post from when I was looking for answers to my head pressure because I am hoping to help someone out. I see post all the time about symptoms but the person never comes back with answers, so hopefully I can tell you with my experience what my diagnoses was, and how I was treated to get better...I had your same exact outlook on Lyme before I finally became desperate and got tested. I think there are alot of cases out there where people pin Lyme as their diagnosis, when all reality they dont really know. Bottom line, I had extreme head pressure for years and my blood work came back positive, by the CDC standards, for Lyme disease. I dont know how you can say head pressure and lyme are not related when I am a prime example of how they are related. Alot of my symptoms are not only from Lyme; my coinfections I also tested postive for are a huge contributor; my doc actually thinks most of my core symptoms could be caused by babesia or bartonella, which I contracted with the Lyme, from the same tick. Most people that test positive for Lyme do have chronic fatigue, but most people with Lyme also have high levels of the Epstein Barr Virus, which is probably causing my fatigue as well, not necessarily the Lyme.

What test did you have to find you were negative? Were you tested for any co-infections? what other symptoms do you have? again, im just here to follow up and make people aware that the weird symptoms could be Lyme disease, what you do with the info is up to you.

Last edited by willowpoint; 07-11-2010 at 09:27 PM.

 
Old 07-11-2010, 09:26 PM   #10
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Re: 28 male/head symptoms/help appreciated

Quote:
Originally Posted by gjoy View Post
Thanks very much Willowpoint for your encouragement and the info. Although I don't live in a tick area I have camped in many. I have been saying for a long time the head pressure is an infection, but even when I improved on antibiotics and went backwards again without, I was told to go back to the psychiatrist. I took 8 courses. I think women have more trouble fighting the anxiety tag.

I have had this problem for many years, I believe more than 25 but it has got worse in the last few and I have had the other symptoms, sound and light sensitivity, dropping things, difficulty walking, shortness of breath. When the throbbing starts in my head I often get a pain in my lower back. Have you had any of these probs? I am seeing another doctor tomorrow and I am feeling more encouraged. I won't walk out of his rooms without some action. I have been patient enough.

Thank you

Gjoy
I have had almost all the symptoms you are speaking of. shortness of breath, anxiety(panic attacks, 2 visits to the er because i thought i was having a stroke), vertigo symptoms, and the loss of coordination was the most depressing because I cant enjoy playing sports like I once did, hopefully soon I will be able to go back to my active lifestyle. After 2 weeks of antibiotics I can honestly say I havent felt near the anxiety and my vertigo symptoms have virtually disappeared. Please post how your appointment goes.

 
Old 07-12-2010, 02:00 AM   #11
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Re: 28 male/head symptoms/help appreciated

according to the mayo clinic site, inflammation of the membrane surrounding the brain can be a symptom (not always), thus that could explain the pressure you are feeling.

it is definitely worth looking into!

hope you get well soon!

i am going to the mayo clinic soon for a complete workup myself and will be looking into lyme in addition to many other things. would love to know all the things they tested you for. (i do know i have tested positive for epstein-barr three times - years apart, with titers greater than 100 at least, and sometimes greater than 300, which is really high - and they said i would only test positive once in my life!!!)

thanks.

 
Old 07-12-2010, 07:19 PM   #12
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Re: 28 male/head symptoms/help appreciated

Well I must have spoken wrong, so for the record... yes, obviously head pressure and any number of unusual symptoms could be caused by Lyme Disease and/or coinfections. It's just that it is not a typical symptom of Lyme Disease, or at least it isn't based on my readings on the Lyme forums.

The test I got was simply called "Lyme Titer" and the result was "negative." Perhaps the Western Blot is more reliable?

 
Old 07-17-2010, 03:47 AM   #13
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Re: 28 male/head symptoms/help appreciated

Hi Willowpoint,

Just updating. I have seen two helpful doctor this week. The rheumatologist has done the tests for all the autoimmune diseases. See what comes of that in 3 weeks. The second, an ENT, I talked to about the head pressure and the throbbing behind my right ear.He talked to me like a real person which has been rare. He tested the pressure of my ears the right being abnormal. He has given me 6 weeks of antibiotics. I see they can be used for lyme disease.I am happy to take anything at the moment that will help. The doctor said we don't know everything. Sometimes things have surprising results. He has suggested i could have a grommit in my ear to try to improve the pressure. I am not so sure. Will see how the antibiotics go. He has also referred me to a good neurologist. They are going to ring with an appointment. Certainly a good week after 11 months of no progress.

Hope you are continuing to make a good improvement.

Gjoy

Last edited by gjoy; 07-17-2010 at 03:52 AM.

 
Old 07-17-2010, 07:22 PM   #14
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Re: 28 male/head symptoms/help appreciated

Quote:
Originally Posted by gjoy View Post
...
Will see how the antibiotics go. He has also referred me to a good neurologist. They are going to ring with an appointment. Certainly a good week after 11 months of no progress.

Hope you are continuing to make a good improvement.

Gjoy
Dear gjoy,

Glad to see you have--potentially--made some strides. Please keep us updated in this thread, let us know how the antibiotics work for you (after some time has passed, of course), and so on.

 
Old 07-17-2010, 10:45 PM   #15
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Re: 28 male/head symptoms/help appreciated

Hi Benit

I wanted to say to you how the doctors responded to head pressure. They didn't bat an eyelid as if I had said I had a sore toe. It was quite refreshing after other bad experiences. The rheumatologist wants to refer me to a physician and the ENT to a neurologist. You need to find out who the best doctors in your area are and make appointments. It doesn't matter how long you wait if they really are good because they will know how to help or who to send you to. The neurologist is booking for November however he has a registrar who will see me and he comes in for the last 20 minutes. Sounds a good system to me. You can always cancel appointments if you no longer need them.

Hope to hear of some progress soon.

Gjoy

Last edited by gjoy; 07-17-2010 at 10:46 PM.

 
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