Thanks for your response. But you may have misinterpreted something in my last post. I mentioned that my neurologist called it "a chronic daily headache with migraine features." As well, I asked specifically if it was a tension-headache, and she seemed to think it was more of an atypical headache with some migraine features. In other words, she hasn't come up with a clear diagnosis as yet. I wonder if she'll be able to do so based on how I respond to specific drugs.
About getting trigger points checked, do you really think a neurologist would do this? My impression is that a lot of specialists don't bother with anything that might be called an "alternative therapy," etc, perhaps because of time constraints.
Hi Benit, you mention tension in your first post. Neurologists and some orthos are about the only specialists who know what trigger points are. It is not an alternative therapy. It is something they forget to check as the cause of a problem. It is certain areas on a person, that when pressure is put on them, brings on the symptoms they are having a problem with, which means that is the source. For example, the last time I had my problems, was just last year, I saw an ER doc who argued with me saying neck and upper back problems wouldn't cause my symptoms, then I saw another doc, do not remember her specialty who argued with me also, neither checked me where I was having symptoms. I then saw my doc at the spine clinic, he checked me finally, and asked me what worked before for treatment, and referred me. I went to physical therapy again, and they now have a new treatment that is very gentle, that releases the tension in the muscles and taking the pressure off the blood vessels, which is what causes my symptoms. I know it is hard to believe for some people, because they expect to have all kinds of trouble with their neck in order for that to be the problem, yet many times, they have either had trouble in the past and let it go, or have neck aches that come and go and just forget about it thinking nothing of it, this is what the guy had, who was mis-diagnosed with mieneres disease. He spent a year with this diagnosis, and nobody thought to check these. He went back to his neuro and specifically asked to have these checked, and found his symptoms came on strong then. The neuro then sent him for treatment. It is not a new problem, but seems to be overlooked by many doctors. I hope the meds help you. All I am saying is, it cannot hurt a person to have these areas checked, when the doc is not even sure of the cause, and treating you for something they are not sure about.
It is good to hear your brain is perfect. I wonder how many people they can say that to. No MS, no tumours, no sign of stroke and no aneurism. That should be a relief.
I have thought about this a lot. You will need to look at the pros and cons for each and decide on the best path for you. Only you know how bad you feel and how desperate you are for help. I know your funds are limited and that does limit your choices.
It is great you have found a doctor who is willing to help. They are hard to come by. Unfortunately what she knows is western medicine, which relies on dispensing drugs to alleviate symptoms. It does not look for the underlying cause of symptoms. To keep her on side you may need to go along with her recommended treatment. Did you ask how long do you need to take these drugs to see if they work? I know you mentioned three months but surely you would see improvement before that. Originally it sounded like a short term thing. If they donít work, I wonder if she will she be looking for something else, or will she put it down to anxiety. I may not have got into the mess I am in if I went along with doctors advice on meds. Mind you I would probably be a zombie in a psych ward.
I have checked the main meds and side effects, also patient comments on each. Some people think they are miracle drugs, others find them their worst nightmare. You will only know if you try them how you will react.
Now you have the scripts you donít have to rush in to start. Maybe you should think about Kaseys idea on the trigger points. A myotherapist specialises in that. It would be logical if your muscles, tendons or ligaments in your neck are inflamed, as you have said you use the computer too much. Maybe you should do some reading on it. It seems to be considered a natural therapy. The doctors I see wouldnít believe it, however if it works it doesn't matter.
You have some decisions to make. I am happy to discuss it any time, if that is a help. I will be away from the computer for a few days this week, as I was last.
Thanks for your continued interest in my case. I've been having a lot of conflicting thoughts about the plan, and can you believe after all this, I'm stuck on picking up the phone and calling the neuro's office to ask a question. The question I want to ask is if I can just start with the steroid and the muscle relaxer, and once I run the 6-day course with those, then I'll start the Topamax. I just think it's not wise to jump in with all three when I've already got Paxil in my system. SO... that's the question I need to ask, and I find myself stalling.
Perhaps I'm worried that the doctor will find it odd that I didn't start the medications yet. I don't know, but this makes me anxious. I need to make that call.
I think your question is reasonable and it is better for the doctor to explain why you should or should not do that, than just doing it. You had better make the call today as it will be another weekend, and you wont be able to get on to her. If she is as good as she sounds, she should get back to you today.
I'm sure if you say you were worried about taking all the meds together she will understand, and that is why you haven't started them. She will probably be pleased you want to discuss it, rather than do your own thing and not let her know.
Good luck with it. I'll be waiting to hear how you get on.
Woops got my time zones mixed up, you are probably already into the weekend. Sounds like a job for first thing Monday.Tuesday is a new month and for us a new season. Sounds a good day to start something new,
how are things going for you now? I haven't been on the boards for quite sometime...just went through a few weeks of severe migraine/sinus pain and dizziness also loss of balance.....that was so frightening and depressing for sure.
I am wondering if you are feeling better yet?Did you try the medications?Hope you are okay....I feel so badly that I haven't been in touch with you and gjoy...please understand that I have been in a lot of pain....I hope to hear from you so that we can discuss our health concerns.
sorry to hear you haven't been feeling well. it bothers me that your case remains so hard to solve.
as for myself, i recently started the medications. this is day 5. i've been taking the steroid dosepak and, well, half the dose of Skelaxin that I'm supposed to be taking (I'm only taking one pill, as opposed to the suggested two.) It made me too drowsy and fogged and didn't seem to help, anyway. There has been no noticeable improvement with the head pressure from either the steroid or the muscle relaxant. The neurologist said that might happen, though. In any case she said these initial 6 days wouldn't bring lasting relief anyway, it's more just to "break the headache."
In a couple days I'm supposed to start taking Topamax. Obviously I have some reservations about that, but we'll see.
thank you for letting me know how you're doing.It is so hard to start new meds because you are hoping they will work,but afraid of negative effects from them.I think you are so brave to try what your dr. suggested.I do know a few people who took topamax for migraines(but haven't been in touch with those people for a long time)...so I have no idea if the med worked for them or what...so sorry.
Maybe you could ask the pharmacist how safe it is?They usually know quite a lot about side effects from meds.Topamax is a very popular med used for headaches.Hope that it will help you,but you won't know that until you try it.
So I went to see my GP doc a few weeks ago...I drilled him with tons of questions of course!He did three tests for autoimmune stuff.They all came out at the very high end.Since they're in the range he said they're "normal"...same old answers...soooooo frustrating for me.
I researched those tests and found that high end results could point to lupus,multiple myeloma(cancer),even asthma and thyroid problems.He did a few thyroid tests which were in range also.Just feel like a weirdo that I can't get some help with my problems.My B12 is at 411(back to normal...before it was spiking to a high 1100 then 605...think it was from the nutragrain bars I was devouring...so funny...)....ohhhhhhhhhh I am just so tired of all this dr. nonsense......
How do you cope with the head pressure?I have been so "off balance"that I feel like I'm drunk....I get head pressure and the shins in my legs feel so weak sometimes and I noticed the tinnitus in my right ear acts up during that time....I feel like a zombie...just want to feel normal again(whatever that is).My heart and my stomach have been okay lately...but as usual when some things get better other things act up.....doesn't feel fair,but what can you do...
have a good night....
No, I haven't found anything. I still have practically no idea how to get relief from it. My MRI w/ contrast and MRA came up normal with no abnormalities found.
I would not pursue the Chiari idea that the other poster writes about, not unless you also have extreme pain or some other truly disabling symptom along with the pressure. Relatively speaking, very little is known about Chiari Type 1, the surgery can be dangerous and you can end up much worse than before. Doctors don't even agree on how to diagnose it. The disorder is very much "up in the air" at this point.
There have been several cases of people who allegedly had Chiari 1 on this board who got the surgery and then had to go on to get more surgeries and procedures done (shunts to drain fluid build up and so on.) It seemed to be an absolute nightmare from what I read.
This morning I visited the physio. She has given me an exercise to strengthen the muscles in the front of my neck so I can maintain a better posture. She manipulated the top of my neck for sometime. It was quite painful. when I sat up my head was so light -it felt amazing. That feeling did not last very long but now I know for sure I am on the right track with the head pressure. I am sure it will soon be a thing of the past.
Sorry I haven't been able to get back to you sooner.
To have correct posture I was told to rock my pelvis back and forth and stop in the middle. This causes your spine to straighten. Then I need to lower my head a bit so it is in a normal position. I was told to be conscious of my posture at all times.
Now I have been given an exercise to strengthen the muscles in my neck so it is easier to keep my head in the right position. It is not just lowering my head but pulling it in so rather than tilting I am pulling in. The physio said I should be able to feel the muscles in the back of my mouth tightening if I do it properly. I do that at least 5 times twice a day when I am laying down without a pillow. I have a very sore spot towards the top of my neck which is some way up the back of my head. She said the mechanics of my neck is wrong, even though it looks pretty normal on the MRI. I am sorry I have not explained very well. It is only a small movement with the neck muscles. You probably need a professional to help explain and demonstrate however it would be interesting to see if it helps you at all. Still no major difference, but I am hopeful,