I was wondering the same thing.
As for my experiences being of any help, I have drawn another blank. I saw another neurologist. She agreed to an MRI this time with contrast. The result was the same as last time, normal except for fluid in the right mastoid cells. She said things like I know it is real to you. So I continue to put up with my head pressure and other weird problems, and hope you may find the solution for us both.
I think I may finally be on the right track after years of trying to find a solution. I think this works for you also. It was suggested I see an oral specialist to see if the pain and pressure in my head are coming from my jaw. He poked around at my head and neck and said it should not be so tender. He wrote a referral to a physiotherapist. I have seen a physio before who was no help. This one seemed to understand what I was talking about when I mentioned head pressure. He said it is like a hangover. You wake up and feel like you haven't slept. He said my neck is not normal and called me to another session where he talked about posture. He showed me on a skeleton how my neck is and how I need to straighten my back so my neck is in a normal position. I am trying but it is difficult to break bad habits of a lifetime. He said he will give me exercises with weights to strengthen my muscles. I had suggested my neck to the last neurologist but she was stuck on a psychiatric disorder. I believe it is helping some and it makes sense. I have had so many tests that have come up negative. I have only seen the physio twice because of the holidays but intend to see him regularly until he says my neck is normal and hopefully I will be feeling normal too.
I really believe we are on the right track. Some people with neck problems just have pain, we have this weird head pressure. I know I have had it to a greater or lesser degree since I was a teenager.I am glad I don't have bad neck pain, especially for all this time. If I did they may have been able to understand what was going on.
I am not sure how your health insurance works but often doctors refer to physiotherapists. Maybe you could talk to your doctor. Do you think this could be your problem too?
I think a bad neck/posture is one of the 3 or 4 most likely causes for the head pressure. I'm a very stiff, anxious person to begin with, and I use the computer far too much, probably in the wrong posture. TMJ is another possibility, my jaw snaps to the left, and I clench teeth without knowing.
I could see the GP again and ask for a referral, but I have trouble with his questions. He often asks about career and how things are going, and so on. I've had to make up some things here and there--I'm afraid if he knew the whole truth, he might not be so willing to help me. My situation is just that bad.
I do see the psychiatrist again on February 21st. Last time he said he would refer me to another neurologist if my current one didn't work out. I could ask about a physiotherapist, but I'm not sure he's knowledgeable in that area.
I think the psychiatrist will probably be happy to refer you to the physiotherapist. However I suppose you could go the other way and see the neurologist and ask about your neck and whether they think it could be causing the head pressure. They love dispensing drugs but may also be happy to refer you to a physio. Would your health insurance cover it? The quickest way would probably be to go through your local doctor, even though I know you find it difficult. He may also know of a local physio who is good, where as the specialist would probably not. I definitely think it is worth pursuing. I hope you can find some relief,
So I've posted a couple times on this thread, I too, have had this pressure in my head and neck for over a year.
I had a spinal tap yesterday and it was all normal, most importantly to me was that the opening pressure was normal.
I've constantly now for four month focused on my posture and trying to stretch my neck, trying to lengthen it, bend it any way possible that exacerbates the pressure. This has helped immensely and my pain and discomfort had gone from a 6 to about a 3. I think this is really the reason, and after having every test known to man I can't imagine it being anything else. Go to a physical therapist who can show you some moves. Let me know if you have any questions hope this helped a bit... This pressure is miserable I know...
The Following User Says Thank You to kelsifyer For This Useful Post: Benit (01-10-2012)