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Old 06-20-2012, 12:32 PM   #1
Join Date: Jun 2012
Location: Minneapolis, MN USA
Posts: 1
smartiepants HB User
Wondering What To Do?

Hello, my name is Dana. About a year ago, I was having chest pains and went to Urgent Care where they did an ekg and discovered that I had a congenital heart condition called Wolf Parkinson White. I ended up having a procedure and getting it ablated, but afterward I kept getting migraines (ironically without pain, just vision disturbance). When this continued to happen the cardiologist ordered a MRI. After the results came back, she informed me that I had Chiari Malformation, but she knew nothing about it, but I could schedule an appointment with a neurologist to go over the results. Well I did that, and he seemed to think it was fine, and that many people are born with this and have no symptoms. Well I do have several symptoms, but I have always attributed them to a car accident I was in years ago. I since suffered headaches and would go to the Chiropractor after they went on for days, and that would usually help. Now I am wondering if the symptoms I suffer are from the Chiari.

I would like to find out if the Chiari is causing this. Do I just go to a regular Neurologist? Do I try to find a specialist?

These are they symptoms I face, it seems like a lot of you have similar symptoms.
• Frequent headaches from the base of my head
• Neck and shoulder muscle pain
• Dizziness/feel drunk/unsteady gait/bump into walls
• Tired/low energy
• Sleep extremely light
• Annoyed by loud sounds, especially if sounds are multiple
• Brain fog
• Cold all the time
• Shoulder ache
• Shiny tile floor makes me feel dizzy/weird
• Sinus issues
• Frequently choke on saliva
• Hoarse voice
• Sleep Apnea
• Word recall problems
• Heartburn/gas causing shortness of breath

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Old 06-30-2012, 01:05 PM   #2
Join Date: Jun 2012
Location: Conroe TX
Posts: 1
zimmy101c HB User
Re: Wondering What To Do?

I'm not a doctor, but I would find a neurologist who specializes in several neurological conditions, including of course, Chiari. He could tell you which of your many disturbances is caused by the disease. I'm a religious person so if I were you I'd pray daily. I will remember you in my prayers. God Bless.

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