Cardio inhibitory Neurocardiogenic syncope without syncope
Active, athletic 29 y/o male career firefighter diagnosed by tilt 6 months ago with NCS with a cardio inhibitory component. Dealing with the symptoms my whole life but were attributed to family history of blood glucose issues until recent downward spiral lead to a holter monitor, an event monitor, an interstitial BG monitor, more bloodwork that anyone should have in six months, and ended with a 30 minute tilt test which ended with twenty seconds of asystole following syncope. Treatment since includes salt tabs, added Pindolol, added Midodrine (terrible side effects), changed to Florinef, doses of both double since prescribed. Sent to Hopkins EP by diagnosing EP as symptoms continue to persist regardless of her treatments and was told that because I am only near syncopal all day and do not actually pass out, I don't really have NCS. Treatment prescribed is elevation of head of bed four inches and tilt training (stand against wall twenty minutes, three times daily). Original diagnosing EP who sent me to Hopkins gave up on me and offers no further treatment options. Family doc can only do so much as thus is generally out of his league...feeling as if there's no where to turn for answers and no hope if a cure. I have lost my passion for life and feel like people believe this is all in my head and I know it is not.
Symptoms include but are not limited to foggy head, inability to focus, dizziness, tunnel vision, muscle cramping/soreness, headaches, fatigue, hypotension, bradycardia,nearly constant near/presyncopal episodes daily, and now depression.