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Old 10-14-2008, 09:00 PM   #16
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Lightbulb Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

Hey everyone! I'm new to the boards and I'm encouraged to know that others are in the same boat I am and that some have found treatments that work for them! Anyway, here is my timeline and symptoms:

----TIMELINE----
2001 -Age:16- Took Accutane for a period of months, worked well to get rid of Acne.

2002 -Age:17- First developed TMJ-like symptoms, my jaw still clicks to this day.

2002 -Age:17- First experienced slight dizziness symptoms. Was a little strange but didn't really think anything of it.

OCTOBER 2006 -Age:21- Noticed slight "off" feeling while typing mid-term paper. Felt like I was going to fall to one side. This feeling did not go away for a while and became more and more frequent. Eventually began to feel tired and crampy. Slight "dullness of touch" feeling in arms and legs. Went to doctor who ordered an MRI and referred me to a cardiologist and a neurologist. All the doctors and the MRI said their was nothing physically wrong with me and chalked it up to anxiety. Doctor said I was probably stressed from school and gave me a script for Prozac. Symptoms eventually went away in February 2007 and I discontinued the Prozac in May of 2007.

MAY 2008 -Age: 23- While at work had a vertigo spell and a rush of "panic" came over me. Symptoms never totally went away and eventually became worse.

JUNE 2008 - Went to ENT who, after some testing, diagnosed me with Meniere's disease. Started diuretic and anti-viral to treat. Symptoms improved for a while and then got worse after the diuretic was discontinued in July.

AUGUST 2008 - Went back to same ENT who put me back on the diuretic. Started very low-sodium diet and exercise plan. Went to a highly recommended neuro-ot for second opinion (Meniere's expert). Neuro-ot said he did not think it was Meniere's, more likely to be headache-less migraine related. Said to stay on ENT's original treatment for a few weeks to see if diuretic helped.

SEPTEMBER 2008 - After there was no improvement, went back to second doc (neuro-ot) who put me on Verapamil. No immediate improvement (I've heard this drug can take a while to work once you get up to an effective dosage).

OCTOBER 2008 - Still on Verapamil with follow-ups scheduled with neuro-ot. Have been on for about 3-4 weeks. Still no significant improvement. At dose of 240mg/day as of 10/12/08. Will likely continue to up dosage as doctor sees fit.

----SYMPTOMS: (1 - 10 rated 10 being most severe) (note 24/7 frequency where indicated)----

Dizziness/Unsteadiness/”Off” Feeling: (3-7) 24/7 – Varies a lot. If I am stressed or very tired, it seems to be worse.

Ear Pressure: (2-5) – Usually pretty slight, but noticeable at times. Not a major symptom for me.

Ears Popping: (8) 24/7 – All the time. Popping, cracking…you name it.

Hearing Loss: (4) – Not documented, however it seems like I have problems hearing, especially on the phone. Could be related to the distracting mind-fog.

Tinnitus: (3) – Mostly unnoticeable, except on occasion when I’m in a very quiet room.

Head/Sinus Pressure: (6-8) 24/7 – Actual feeling varies a bit. Most of the time it feels like my sinuses are irritated. Sometimes it feels like I’m wearing a pair of sunglasses on my head (but nothing is actually there).

Brain/Mind Fog: (8-10) 24/7 – Has become the single most debilitating symptom I have had. It’s the worst when I’m at work as the day goes on. It’s also bad in public or social situations when I have to pay attention to a conversation. Overall, this symptom involves problems with concentration, trouble finding words, slightly slurred speech, feeling overwhelmed, sensory overload.

Dreamlike/Spacey Feeling: (8-10) – Usually goes hand-in-hand with the brain fog. This is more like a total disconnect with everything that is going on around me. I have problems interacting with other people (ie holding a conversation) when this is happening. This can last for just a few minutes or for hours.

Neck/Shoulder Pain: (3-7) – Varies a bit. Some days I have hardly any. Other days my neck and shoulders can get pretty cramped up. Sometimes this is associated with a tension headache.

Hands/Arms/Legs/Feet/Face Cramping/Dull feeling: (6-9) 24/7 – Sometimes it feels weird just to move the mouse on a computer like my wrist is cramped or my coordination is off. Other times it feels like all my limbs are slightly numb or dull to touch. Sometimes it feels like both of my forearms are cramped. Sometimes face feels flush or slightly numb. I even had the feeling like my arm is “missing” but not tingly and numb. Very strange. Some days it effects one side of my body and the next day it may affect the other. Rarely are both sides effected at the same time.

Vision: (7-10) 24/7 – Eyes have problems focusing on a fixed object (tend to want to dart around a lot). Overall “fuzziness” in vision, not like I need a new pair of glasses, but more like slight, faint, tv static. Slight "heavy" feeling in eyes and eyelids at times.

Weakness/Tiredness: (8-10) 24/7 – Overall feeling of physical and mental exhaustion. Feel weak in the arms and legs at times.

Anxiety: (8-10) 24/7 – All the time now. During bad episodes it feels like I’m sinking or all the walls are closing in on me (impending doom!). Probably won’t get any better until some of these symptoms are under control or at least improve.

Thanks for everyone’s help. Let me know if you have a comment or question! AND PLEASE KEEP SHARING!

Thanks again,

-E

 
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Old 10-15-2008, 09:56 AM   #17
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

Hey E,

I just left a note for you on another thread. I see now how long you have been messing with this. I have had MAV going on three years. I hope it helps you to know that I can relate to EVERYTHING that you wrote. It is a terrrible illness. My one piece of advice to you would be to do everything in your power to get control of the anxiety. It makes all the symptoms much worse. Hang in there. Hopefully the Verapamil will kick in shortly.

CK

 
Old 10-17-2008, 10:06 AM   #18
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

I'm new to the board and I've been experiencing these same symptoms. Brain
fog, dizziness, pressure behind my eye, and also pressure in my nose. My whole left side also feels numb. I have no idea why this is happening to me. About 4 months ago I started worrying about different things and the doctor prescribed me anxiety pills. I took them for about 3 months at night on and off I completely stopped taking them about 4 weeks ago and thats when I noticed my head starting to feel massive pressure behind mostly my right eye, nostril, temples, and back of my head. I've been back and forth to the doctor taking countless examinations including blood work, and an MRI on my brain. All normal. This is really scary. I also got all four wisdom teeth pulled about 4 months ago too, i don't know why I let him do that. I know initially it left the bottom right jaw numb but could this also have something to do with my head hurting and dizziness, pressure in my nose etc? I have no clue.

 
Old 10-17-2008, 11:12 AM   #19
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

You should see a neurotologist for your dizziness...it may be that you are dealing with inner ear problem or likely migraine...doesn't have to cause headaches. My current migraine/inner ear problem started the day after a root canal. One NY dentist thinks that many migraines are caused by swelling above the upper molars. I doubt this causes all migraines, but no doubt it aggravates the condition in those prone to it. Some neurologists (headache specialists) are aware of the migraine associated vertigo (MAV) issues also.

good luck!

violet

 
Old 10-19-2008, 01:28 AM   #20
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

My sympathy goes out to you all...

I've been suffering with these symptoms for over a year. Mine are 24/7 and it's hugely affected my life.
It all started when I was at the gym. After a session i was in the shower and felt a sudden feeling of pressure in my head behind my eyes. It was like a structural change. The feeling of pressure never went away. The other upshot is that my vision is slightly affected. Like many people on the boards have described, everything seems dreamlike at times and it sometimes takes a bit of time to focus.
The other thing, which all have you have mentioned, is the ANXIETY.

I've been diagnosed with MAV too and given medication. None of it really helped.
My main advice to you all is try and beat the anxiety. Eat healthy. Talk to people. Try and exercise. Laugh. And try not to worry too much.

I hope you all get better. I swish they knew more about what happens in out heads too. Its a very complicated part of the body.

 
Old 10-22-2008, 03:08 PM   #21
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

Quote:
Originally Posted by dogboy1 View Post
My sympathy goes out to you all...

I've been suffering with these symptoms for over a year. Mine are 24/7 and it's hugely affected my life.
It all started when I was at the gym. After a session i was in the shower and felt a sudden feeling of pressure in my head behind my eyes. It was like a structural change. The feeling of pressure never went away. The other upshot is that my vision is slightly affected. Like many people on the boards have described, everything seems dreamlike at times and it sometimes takes a bit of time to focus.
The other thing, which all have you have mentioned, is the ANXIETY.

I've been diagnosed with MAV too and given medication. None of it really helped.
My main advice to you all is try and beat the anxiety. Eat healthy. Talk to people. Try and exercise. Laugh. And try not to worry too much.

I hope you all get better. I swish they knew more about what happens in out heads too. Its a very complicated part of the body.
Have you had an MRI With & Without Contrast, of your head & neck? You may have a salivary gland tumor. I had one, & had many of these symptoms that I suffered from for many years. It was not caught on a CT Scan! Check on this! Hope this helps!

 
Old 10-23-2008, 01:52 PM   #22
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

NOTICE: Please read for yourself, I am the original poster, have I found the cure? Read this fully and let me know what helps you, sorry it’s long…

***First off how many of you have TMJ (TMD is its true name) dental problems, uneven bite, and bad posture?*** As you well know TMJ affects many of the nerves that produce other symptoms that mimic inner ear problems, head trauma, etc. as well as pain within the head and neck. BONE SPURS if you have had them this can be a problem as you may have a pinched nerve or more then one pinched nerve, and/or poor circulation in and around the cranium and the neck, more latter...

***Also if you don't have TMJ or TMD have you been tested? Do you have an overbite?*** If you have an overbite your chances of having TMD or TMJ increase a ton.

***Now many of you have misaligned eyes (one eye looks or actually is higher then the other eye)?*** As this is knows as Orbital Dystopia (doctors who work on facial surgery and the bones of the face call it this name) or Vertical Heterophoria Syndrome, VHS, (doctors who are eye doctors call it this name, there are only THREE in the US that test for this) VHS has been know for hundreds of years by a different name, Hyperphoria, (many doctors over the years called it this last name until more recent names where given) this name is no longer used. Searching for any of these by the names above will get you results...

***Do you have one ear higher then the other?*** this is a sign of and often includes other problems like Hyperphoria, VHS, or Orbital Dystopia. Also it is common along side with a crooked jaw, and other facial features not in alignment.

***If you put a baseball cap on your head does it feel firm in the front and back, but a little loose on the sides?*** This may mean your skull is longer or smaller then most (don't forget to add in the hair factor, of course someone with a lot of hair will "seem" to have a bigger head but what about there skulls, are yours smaller, also take into consideration to over body size, someone who it 7' tall should have a bigger everything then one who is 5' 2".

Cranial disorders normally checked out for at birth, can occur, like mine did, starting in our teen years. Plus when most of us where born, as long as you were alive and the right color, have good breathing and an equally good heartbeat then not much else was thought of as being wrong. These cranial disorders, such as having an abnormally long skull, an abnormally short or small skull, or skulls that have a little of everything and skulls that are twisted and distorted having one eye higher on one side one ear lower on one side and jaws that bite on one side but not the other unless moved around (crooked jaw) can all have symptoms like we do.

***Cranial Dysfunctions?*** There are a bunch, so far mine look mostly like Hemi facial microsomia, but there are MANY, MANY More, look up MACROCEPHALY, SAGITTAL SYNOSTOSIS, flat head etc,. Again, most of these ARE TREATED AT CHILDHOOD! But a lot are not, and I have found I am not the only one as my own brother is having very similar issues that are getting worse and he had a crocked jaw and one eye, like mine, that is higher then the other!

In this case I assure you, there is more for doctors to look into then you may have thought originally and most specialists out there only know there specialty so they don't know what else is out there.

My Mass General ENT who is very good, did not know that I would be suffering a great deal coming off KLONPIN at 3mgs a day for 15+ years, cold turkey! Why didn’t he know? Because he hasn’t worked a great deal with Klonopin

Dystonia can cause a lot of what we have, look it up...that’s why I saw a specialist on moving disorders, no Dystonia, but there are very perplexed at a lot of my testing!!!

I am just two months into trying to solve this hell that we live in once and for all. And like yourselves I run into very smart people that don’t have a clue as to what I do.

I have an appointment, after a 12 year give up on doctors campaign, with every possible doctor I can, I just had my third vestibular testing "full vestibular" at Mass Eye and Ear. My first two where 15 and 12 years ago.

I have seen a moving disorder specialist/neurologist which I am following up with next week regarding the constant hand feet tingling sensation.

Also I personally found a doctor who specializes in Orbital Dystopia and Vertical Heterophoria Syndrome and Hyperphoria and have an appointment on November 11th or so. They detect and treat this disorder with special glasses, long term solution would be seeing a facial surgeon and have them see how bad your orbital dystopia is (I see one in a couple months) The folks I am seeing first are located in Michigan, I have to have a friend drive me out there (16 hours or so, fun If the glasses don't help then I know the surgery will not.

I am seeing a TMJ specialist, but of course finding a real good one can be a task, however he is with Mass general, as is most of my other docs.

I have a crooked jaw (not a major twist but enough to cause serious problems, it is noticeable if you are looking for it.

I will be talking more with my ENT an Otto neurologist, and an neurotologist as well as facial surgeons to find out what my off balance crooked ears might be causing.

I made almost all of my appointments and asked for referrals to docs I already did homework on myself, because it takes forever for a doctor to start ruling something out, so I have them all working together at the same time to figure something out. But you have to keep on them and on top of everything else.

DO NOT STOP DOING YOURRESEARCH AND KEEPING A LOG OF EVERYTHING THAT’S HAPPENED TO YOU AND HOW IT EFFECTS YOU: THE DOCTORS WILL NOT DO THIS ON THERE OWN, YOU HAVE TO TRACK DOWN THE DOCTORS AND THE REASONS WHY YOU ARE LEGITIMATELY SEEING THEM, YOU ARE YOUR RESEARCH TEAM, YOU ARE THE CURE, GET ALL YOUR RECORDS, GET SOME ANSWERS AND REMEMBER.... once you stop looking for a cure, you are guaranteed not to find one, cause no one else is going to help you, I stopped for 12 years, nothing good happened, its only gotten worse.

I pray that there is something we all have in common that can lead us to an answer this disorder.

MAV, Vestibular migraine, blah, blah, they are treated by drugs to help treat the symptoms NOT THE CAUSE! The doctors are normally looking for one thing, to stop or lessen your symptoms, but you can't treat the symptoms if you have 24/7 dizziness, ears are and popping, eyes hurt mostly from behind, lines and worms and cells moving thru your vision, brain fog, weakness, etc.

The doctors are always going to treat the symptoms, if you are not dying physically they’re only going to get you as best as they can and that’s it, plus some docs seem to want you to have the one disorder that pays them! My TMJ doc really downplayed everything else until I saw another TMJ doc who said, you probably have more then one problem causing everything and that’s why it never has been treated properly.

DOCS SAID I HAD Post Concussive Syndrome in 1993.... Hmmm.... another nice syndrome that means we acknowledge you have something wrong, we can try and treat the symptoms but it’s permanent and we don’t know really what it is.

Something I effectively treated to get me to 60% (that’s as high as I go) using what I self prescribed myself, because all the docs kept giving me was anti-depressants and pain killers to treat the symptoms. I asked for a prescription of 3 mg Klonopin daily. After I took it within a week I felt better and the doctors thought I was faking a recovery because they couldn’t explain it! This was 13 years ago.

Do note that all of these things require an expert’s advice, but even undetected asd’s can because similar problems, and you can bet I am getting tested for these as well.

The point is, most likely you or someone like me will find the answer before the medical community does, so instead of being a support group for the cause try as best as you can as a lot of you are good at it at becoming a solution for the cause.

Thanks for reading, I will keep you all informed as the testing progresses and how test in Michigan come out in November.

SEE YOU ALL SOON!!!

Tyler Krahon

Notice to all: I have read your posts and am glad too see some hope, believe me when I say, if there is a cure for this thing, we will find it first, not the medical community. If they do, we will be the ones responsible for them treating us correctly, either way, we all win, keep posting!!!!

Last edited by krahon; 10-23-2008 at 02:09 PM. Reason: typos

 
Old 10-23-2008, 02:13 PM   #23
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

HI ballovescat!

You say you had a salivary gland tumor? Thats very good news to us I am sure it wasn't so great for you but I am glad to hear they found it How long did you have it? And what were ALL the symptoms? Did you drool a bit? I just ask because I do. My Fiance loves when I drool all over her ................Just kidding In fact its highly annoying.
Let me know the details! As this is just another thing for me to put on the list, and I thank you...
ALSO I had an MRI yesterday after coming of Klonpin for 15 years cold turkey for 7 days to take some Vestibular tests as well as an MRI and CT.

Tyler Krahon

Last edited by krahon; 10-23-2008 at 02:17 PM. Reason: typos, clarify

 
Old 10-29-2008, 08:24 AM   #24
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

Howdy Everyone!

This is a great thread, and I really appreciate reading what all of you are going through.

My symptoms started June 6th (almost 5 months ago). I was getting ready to go on vacation, and started to get a spinning feeling in the evening. I thought I was just tired, and went to bed. Woke up with the room spinning so hard I couldn't move. Wound up in the ER.

From there I was on a steroid / meclazine / valium / and anti-nasuea drug I can't remember cocktail for a few days until I could get in to see my ENT. I also ended up with severe diplopia (double vision). It took me a couple of days until I could get up and walk unassisted to the kitchen or bathroom. I was in a cycle of taking meds, crashing out, waking up, eating enough so I could take my meds, then crashing out again.

I saw the ENT, and he told me I could either stay on the meds and not get any better, or drop all meds and "face this head on" and that after a couple of weeks of stumbling into things I might get better.

He also sent me to a Neurologist, who was very concerned about my diplopia. I had my first MRI, and it came back clear.

A month passed, and no relief in symptoms. Dizzy in the 7 range, 24 x 7. Brain fog in the same category. The neck pain also set in at this time.

I went back to the ENT and had the full work up. He sent me to a Vestibular Rehab Therapist who I worked with 3 days a week for 2 months. She put me back together so I could function. When I walked in, I couldn't stand in place with my eyes closed, I would fall immediately. I would never have passed a field sobriety test since I couldn't walk heel-to-toe for more than two steps. Anyway, after the 2 months I could stand for 30 seconds with my eyes closed and walk around pretty well. During this period, my Neurologist sent me to have my carotid arteries scoped to check the bloodflow to my brain, which came back fine, as well as an imaging EKG, which was also good.

Which brings us to the last two months. My symptoms have decreased to about a 4 out of 10 across the board. I am now able to put in a full day at work (I was out of work 100% for the first month, then started doing mornings at the office, home at lunch, crash out for the afternoon, then do some more work in the evenings). My diplopia has pretty much cleared up.

My biggest problem is I can't drive. Being the passenger in a car doesn't bother me, but when I get the wheel in my hands my brian seems to know I now need to control everything, and it starts to overload real fast. I've tried a couple of times in a parking lot, but even with no other cars or traffic lights to deal with I am drained after 10 minutes and have to go lie down. This sucks. I like my car and I like to drive.

I really miss my evenings as well. When I get home from work I'm toast. The dizzyness and brain fog have increased, and all I want to do is eat and vegetate. I can't fall asleep, though, so I just have several hours of being out of it every night.

I have been off of all meds except my hypertension prescription and daily aspirin (which was upped to 325mg by my Neurologist). I do keep Valium and meclazine for when I travel (I've had to fly three times since I got this) so I dope up just before getting on the plane, and arrive feeling ok at the other end.

The most honest appraisal of this entire condition was one I got from my Rehabilitation Therapist. I asked her if I might wake up some morning and this would all be gone.

She told me: "We get people in here all the time with a condition like a broken arm, where it has been in a cast and due to atrophy it is now at 50% of its original stregnth and mobility. Through weight training and stretching, we can get this back to 100% in most cases. You walked in with a 50% decrease in function of your vestibular system. If we can get this up to 75%, we will count that as a successful outcome."

I went home and cried. I couldn't fault her for being honest, she's worked with vestibular cases for 20 years. I just want a road map back to 100%, and I haven't had any of my docs give me one.

Anyway, over the past month I've gone back to the ENT, and had two steroid injections direct into my bad inner ear. No help, just really a scary procedure. I have also tried accupuncture with some positive results.

The bottom line I have learned from this is we can't get any kind of definitive diagnosis as to what triggers this (I didn't have a cold, flu, a flu shot, caffeine, or alcohol before mine started) and we can't get any definitive answer as to when it will end. I do know this has brought my family and I a lot closer, and I have a lot of friends that show their concern in many thoughtful ways. We all need to take this a day at a time and look for the good things, which are abundant.

Sorry for the long post, but it feels good to get this out there.

Good luck, and God bless you all,

Tex

 
Old 10-30-2008, 07:01 AM   #25
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

Thought I would add my 2 cents - especially as I have had a long period of NO SYMPTOMS in the past

Aug 2005 - Aged 22, in my first job - started feeling weird like I was getting the flu. It was like a rush over my body - almost a spin but not?

Nov 2005 - Diagnosed with labs VN. Told to do VRT - little improvement over the next year.

Oct 2006 - Diagnosed with migraine equivalent. Prescribed Pizotifen. Symtpoms gradually dissapate over a period of 4/5 months. I would say I lead a care free life by Jan 07.

July 07 - Short 5 day relapse after massive drinking session at festival. Symptoms horrific but dissapeared. Very lucky!

Sep 07 - Off all meds - still at 100%

May 08 - Sitting in car & almost spin like sensation comes over me & feel nauseous. Diziness returns & I feel spaced out, heavy headed, jumpy vision. Generally feel out of it. Try pizotifen again - doesnt work this time.

Aug 08 - Start Epilim Chrono

Oct 08 - Large improvements - feeling 90% at time. However, past week has been bad for some reason. Maybe I have a cold.

Nov 08 - will increase dose of Epilim and review meds in Dec 08. Praying it goes again.

Other illnessess: Interstitial Cystitis (no cure) for 1 year. Very painful. Rare in men. Interesting that chinese med says ear & bladder related.


My symptoms are heavy head, spaced out, derealization & general off feeling with headaches.

I feel that meds bring you out of the 'cycle', but arent a full time cure. Anything can trigger you back in after long periods of wellness.

I think I will beat this one day, but it will take time.

 
Old 10-30-2008, 08:10 AM   #26
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

Hi, DR--

I just wanted to say that mine also started with the weird flu-like/feverish feeling. About 10 minutes or so of that and then the dizzies set in--not super rotational, but quite spinny feeling nonetheless. In bed 2 weeks--couldn't move head about; very nauseated for about a month, couldn't read, etc. Feelings never stopped but sloooooowly improved over next 10 months. Do you think that yours was VN to begin with? It makes sense to me that the VN kicked off the MAV but who knows, maybe MAV can feel like the flu. ??? (My doc thinks VN kicked off the MAV in me, but it's all guesswork in a way.)

I'm glad to hear you are doing better! I'm also doing a bit better...I'm taking prozac and it seems to be clearing away the depersonalization feeling...will see what it can do for me long-term.

Take care & keep up the great adventuring!!
Violet

 
Old 10-31-2008, 10:01 AM   #27
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

DR / Violet,

Fascinating about the flu symptoms, and it seems to confirm a viral onset. My ENT said it could have been a viral event or a vascular event that caused the degeneration on my bad side. I prefer to think of a virus instead of an isolated stroke which is an option both my ENT and Neurologist threw out, but as we know they don't know so it is just a theory.

My severe bout started on a Friday evening, with me ending up in the ER Saturday morning. During the day on Friday I had a couple of small jolts of disorientation / nausea. Nothing major, just thought I had a spot of a flu or had ate something bad. No other symptoms, and nothing more for several hours until I started to spin that Friday night.

It is good to hear that folks are getting better after a few months. My symptoms are decreasing after 5 months, but I'm not out of the woods yet. You are all at least giving me a glimpse that there may be something beyond the woods.

Take care,

Tex

 
Old 01-04-2009, 02:00 PM   #28
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Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

I guess I am late to the discussion, but I thought I'd add this for anyone who is reading this after the fact. I have TMJ also, and have been taking Celebrex for pain. This has greatly reduced brain fog symptoms, and the sinus/ear fullness problems and pressure around and behind my eyes. I still have ringing in my ears, but I can hear a lot better on Celebrex, my nose is much less stuffy, and the pain in my face is practically gone. I still have the visual disturbances and dizziness though. I have also been taking Flexeril at night.

 
Old 01-05-2009, 03:42 AM   #29
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kyle 80 HB User
Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

I have been having the same exact problem. The only diffence is it feels like its gas in my head.

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Old 02-05-2009, 08:32 AM   #30
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mrcrescentfresh HB User
Re: Brain fog, dizziness, fullness in ears, pressure behind eyes, things moving: Base

For starters I am really glad that I found this site, and hope I didn't find it too late to join in discussion.


As for my symptoms, well, I, like others here, too accutane-i wonder if this is a connection? I did so in 1999 when I was 18. In 2003 I recall sitting in class and all of a sudden having a disconnecting fog come over my body, and since that day I have not been the same, in any regard.

I've been to many doctors and a neurologist and nothing 'official' has been declared. Not so much as a reasonable hypothesis.

I used to be a very talented individual and used words like an artist does paint on a canvas, but now I pause for many seconds at a time trying to think of the most simple words mid-sentence. I've even noticed my ability to type diminishing. I have to retype words and often interpose letters.

HOW LONG WITH SYMPTOMS: 6 years

Dizzyness/Unsteadiness: (3-4) I rarely get dizzy, only some times if i pop my ears which are stuffed constantly. I may get dizzy if I stare at something for too long.


Ear Preasure: (6-8) 24/7 My ears definitely always feel as if there is some pressure on them. There are times that are worse than others. If I think really hard I may feel the pressure behind my ears and eyes have more force.

Ears Popping (6-7) 24/7 i too somtimes feel the fluid in my ears. there are occasions where i try to pop my ears but can't and the pressure doesn't release.

Hearing Loss: (2-4) i can tell i have lost some hearing as well. I went to an ENT for a test one time and they confirmed that I do have hearing loss but based on one test they did it confirmed that the cause is not ear drum damage but some other source, potentially fluid trapped in the ear drum.

Tinnitus: (2-6) 24/7 noticeable in a quite room, but some times becomes very loud for a minute and then vanishes. mostly in the right ear.

Head Pressure/Sinus Pressure: (9) 24/7 This and the brain fog are the two worse. The pressure gets worse with the more complex thoughts I'm processing (mental math, long reading, etc..) I too hear the cracking sounds from time to time. Especially if i get hung up on something and i'm thinking really hard to recall it. This pressure occurs without pressure behind my eye and ear but sometimes those additional pressures will accompany it. Some times I feel as if the pressure is rhythmic and coinciding with my heart beat.


Brain Fog: (7-10) 24/7 I can't recall things as I once could. Some times its what word to use, or what a word means or i'll even forget words for simple objects like pencil. It is also more difficult for me to do even the simplest of math (a field in which i was always quite good) in my head. I forget names all the time. Some times I'll have to read a sentence two or three times just to understand what is being said. This can occur with even simple sentences. If I try really hard at reading or performing a mental task i may hear a slightly different popping noise or crack than when remembering. I can feel it too.


Dreamlike/spacy feeling: (7-10) 24/7: I feel detached from the world and it is almost as I am viewing everything from outside. I often feel as if i'm either high or drink when i have been partaking in neither. I never feel completely awake.

Neck pain: (4-5) 24/7, also at the base of my skull. when i feel the really heavy tension in this area and move quickly I hear a cracking sound that is similar to but slightly distinct from the other cracks and pops I hear.


Anxiety: (3) 24/7 Its getting worse and I find myself experiencing it even more so when i start focusing on the symptoms at hand. There was a point where I had abnormally low anxiety. My blood pressure is now up at 140/90 on average and I am an otherwise very fit indiviual with good diet and plenty of exercise.

Weakness/Joints/muscle pain, Hands/Feet: (1 - 3) 24/7 They always feel fatigued.

Eye Pressure: (9) 24/7, More prominent when I'm focusing mentally on something or when I become worked up due to the anxiety. Some times I can feel a pulsing behind it.

Visual AURA (7-10) 24/7 I also have the snow or worms that appear. i've always described the worms as little threads of light that are being weaved in my field of vision. At night time a 'halo' around lights. the brighter the light the worse the halo is. At first they suggested it was vision related so even though I have 20/20 I got glasses. The halo is still apparent with glasses on. Some times the auras are more reduced than normal, and this happens on the days I feel better.



As has been said, I have had the MRI with nothing found and am not sure what to do next. At times I wonder if it is an effect as a result from marijuana use (i was a heavy smoker at times in college) but those who were also users with me and have continued to use do not display the same set of issues.

Perhaps we could all work to find a common link between us? something in health or something that has happened? Perhaps even share figures of our blood work? I don't know, but the symptoms are too similar for us not to have the same thing. Especially given the visual effects and the brain popping, as these are very unique symptoms. I feel that the major symptoms are too common and thus we often get misdiagnosed. If we had a better understanding of what was taking place by comparing notes perhaps we could provide the proper information to a doctor and get resolution.

I hope others can continue to post here although its been months since the last post.

 
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