Please help...No one can help my husband - Brain Tumors Message Board

trista1984 · 11-28-2008, 11:37 PM

Hello,

This is the first time I have posted here and I am desperate. My husband is 27 years old and has had a 7 year problem with migrane headaches. He is on percoset for this. He has also in the last 3 years developed a new symptom. He is having seizures. He had his first about 3 years ago and it was a mild one. His next was last year. And he has had 2 this past week that have all been grand mauls. He has been to over 12 doctors/neurologists and no one can figure out what is wrong. He has had about 15 CT scans and xrays. He is on the medicine Topomax to stop him from having them but this is not helping in any way.
I know that the two problems have to be related. I am so scared for him that he is going to be in the car next time this happens. (He continues to drive even though he has been ordered not to. But not that frequently.)
If anyone has had similar problems like this please help me and let me know what you have done in the past. Any and all help is appreciated.

By the way. We live in Tampa FL. If anyone knows of any good Doctors in this area please send me the information.

Please forgive my spelling errors on the medicine.

Thank you for any help you might be able to give me.

~Trista

jon h · 11-29-2008, 12:47 PM

hi t, was there any major change in your husbands lifestyle, for example job, or did you move house around the time he started having the fits? from experience i know that GM fits can be caused by blood pressure drop, prob induced by the tablets for the migraine. the headaches are possibly caused by cervical vertabra misalignment which restricts blood flow to the head in certain positions. does he suffer from double vision?

trista1984 · 11-29-2008, 01:46 PM

Umm, the first time he had one we were helping clean up a community center. We were moving tables around. The next one he was just sitting in his computer chair. The third was after we had just got done painting a desk. There was plenty of ventaliation. And this last one he was alone at home sick and had just been laying around watching TV all day.

So aside from the first one there wasn't really any strenuous movement that day.
He has only been back on the Topomax (migraine and anti-seizure med) for about a week now. The percecet he has been on for about 5-7 years

~T

trista1984 · 11-29-2008, 01:49 PM

one more thing I forgot to list in the first post. Ever since his first seisure he has been a completely different person. He used to be outgoing and funny. Used to be very active. Now he is not. He can't focus on anything, he forgets simple things like how to operate a microwave. He has pretty dramatic mood swings. With this, migraine headaches and the seizures there has to be a common link somewhere.

scout316 · 11-29-2008, 09:14 PM

hello Trista

Just try to stay calm

You mentioned that he has had lots of x-rays and ct scans....did he actually have a brain and cervical MRI?Okay if he did then let's move on from that...has he been checked with complete blood labs?Have they checked all his electrolytes?B12 level?Also has he had an EEG(brain wave test)...and if he did how did that come out....did it show a seizure pattern or any abnormalities?

Next...try to keep a log of what he eats everyday....sometimes(20%of the time it can be related to what you eat....especially these foods>nitrates(in luncheonmeats,hot dogs),MSG,peanut butter/nuts,beans,yeast in cakes/cookies or bread made with brewers yeast(like home made kind),chocolate,peas,citrus fruits,caffeine,fish,whole milk,some cheeses(processed).....I know this seems crazy,but these foods can cause migraines and simple sensory seizures(focal) and other seizures...especially if you have a history of migraines.

So other than what you told us does he have any other health problems and what about other symptoms...any muscle weakness,pin 'n needles feelings in hands/feet,fatigue,confusion,nausea,taste/touch impairment,muscle twitches,neck pain,swelling in hand/legs,urinary/fecal incontinence,joint pain,numbness anywhere,sore/glossy tongue,muscle spasms,heart palpitations.........sorry to ask so many ????,but it's Very Important to know if he has any of these symptoms.

Please post back~want to help~

Scout