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Old 05-04-2009, 05:44 AM   #1
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Weird...don't know how to describe it

I am really really freaked out and scared.
I've had something going on since I was about 16 years old off and on and I"m 35 now. I'll describe as best as I can.
I get these weird episodes where it feels like everything around me speeds up and everything is going twice as fast as it should.
Sometimes my arms feel heavy. My ears always ring especially my right ear and I get headaches on the right side of my head and a fullness on the right side of my head.
My doctor told me once that he thought I had pinched nerve in my inner ear and sent me to an ear specialist who couldn't find anything.
I went to the hospital to the ER and they said they couldn't help me unless I was having one of these episodes.
The problem is I don't know when they will happen, they just do. I can go months or years without one. Its been several years since I've had one but I'm scared that they are going to start up again. I'm sure its not fatal because I've had these for so long but it seems like each time they come back they are a little worse and last a little longer,no more than 10-15 minutes but it is so scary! I feel like I'm the only one in the world that has this!

 
Old 05-04-2009, 08:20 AM   #2
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Re: Weird...don't know how to describe it

since this has been going on this long, has any doc ever thought to actually do any type of actual scan on your brain? seems like the common sense thing to do considering, ya know? getting that ball rolling with just a contrasted MRI really would be the best place to start in finding out what could be a 'wiring" issue up there or something more.

there are just soo many possibilitys here that it just needs to be further looked into with at least that contrasted MRI. it would show certain areas of the brain that could be being affected by something. its just kind of basic for what your symptoms are and have been, ya know? just tell your doc that "i need some kind of answers here" and ask him or her to refer you for that MRI. it should not be any huge problem wih your history of ongoing symptoms. good luck and please keep me posted hamilton. sometimes we just have to really speak up for ourselves with our docs just to really get the needs met. this has just gone on wayy too long and needs to be looked into. marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 05-05-2009, 10:59 AM   #3
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Re: Weird...don't know how to describe it

Hamilton92...
Hi, first i would like to say that i'm sorry that you're going through this. I hope that you can find some answers soon. My son, 17yrs just recently had a similiar experience & he has always had very good health, no medical problems besides being a bit overweight, which hes currently been working on. He describes his experience as "weird" also. His symptoms just sounded crazy! The symptoms just hit him out of nowhere. He wasn't even sick, just felt these weird symptoms that he found hard to describe. In his words his one eye felt somewhat blurred & he described his eye perception being off. For example, he told me that while looking at me while i was sitting right across from him that i seemed far away. He said that when he scratched his head or his arm that he couldn't really feel how hard he was scratching. Said that it felt numb. He said that his hearing was going in & out. He said that his arms & his legs felt heavy. I never heard of such a thing! I told him that i would make him a Dr.'s appt. but later that night he started complaing that it felt like his heart was racing, or beating too fast. Well that was enough to scare me so i took him straight to the ER & the Dr.'s ordered an MRI & said the reason being is because they wanted to make sure that he didn't have a brain tumor or any brain lesions. The MRI came back fine! Then they tested his blood pressure, vitals, fever, etc. all fine! Then they gave him an eye test, fine! Tested his sugar, fine! They couldn't find anything wrong & yet hes still having these symptoms. The ER Dr told me to take him to a neurologist. So he will see the neurologist on the 11th. They are very weird symptoms & just out of nowhere! I hope that you get to the bottom of your problems & that all turns out to be ok for you. I hope that my story has helped in some small way. Take care.

 
Old 05-06-2009, 07:59 AM   #4
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Re: Weird...don't know how to describe it

angelique, did they use a contrasting agent with the MRI? if you don't know just obtain all of his medical records from that ER visit and find out(you should be gathering up all medical records for something like this anyway). using a contrast agent when doing any types of scans in the brain is just pretty important since certain things like vessel areas can be somewhat 'hidden" from view if they are not actually highlighted with contrast.

there is also whats called an MRA where they simply 'just" only look at all the arterial structures within the brain and nothing else like the soft tissue? this is how my aneurysm actually showed up. it was hidden by other things and was also kind of in the bend of an artery too, which just made it much harder to actually see upon the MRI. there just could actually be 'something' up there that may not have actually showed itself. given the really strange symptoms has been presenting with, everything needs to be looked into right now and checked out. even the c spine area? when the spine area becomes involved somehow at the cord level,very very strange symptoms can result,trust me on that one. all of the governing signals that just go too and from the brain are actually all carried thru that cord area.

some of his symptoms could also be an affectation of the sympathetic nervous system at some level as well. look up what that sympathetic just governs and compare symptoms.

but i would see about getting a true full look at his spinal column(this would go down to the cord/nerve level) with MRI too, you just do not have a freaking clue as to just what is in your own body til some type of scan incidentally finds it. this was my case, and my sons with a few different things. that doc just needs to check out every single possibly involved area that could produce the symptoms your son has, and then kind of track it back to the generating source. i do wish you luck in finding out whats causing all his symptoms. please keep me posted,Marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 05-06-2009, 03:07 PM   #5
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Re: Weird...don't know how to describe it

feelbad,
Hi, thanks for your post i really appreciate it. I never knew all those things! Thanks so much for the heads up! I will for sure discuss this & all of my concerns with the neurologist on the 11th. I'm not sure by what you mean when you say "contrasting agent". I'm going to assume & say that i think what you're asking me is if the ER Dr made my son drink some chalky liquid before his MRI? If my assumption is correct, no, he didn't drink anything before his MRI. They just took him right in. The Dr said it was to check for brain lesions & tumors. But what you're saying does make perfect sense & i really appreciate your support & knowledge. Thanks so much. Also i'm very sorry about you & your sons tests/medical problems. I hope that you're both doing well. I will keep you posted as to what i find out on the 11th after we see the neurologist. Best wishes & i'll keep you in my prayers. Take care.
Angelique

 
Old 05-06-2009, 03:13 PM   #6
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Re: Weird...don't know how to describe it

Hamilton92,
Hi again...I just was checking in to see if you had posted again since your last post. Please keep us posted if you find out anything, or even if you don't. We are here for you & wishing you well. Take care.
Angelique

 
Old 05-07-2009, 08:02 AM   #7
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Re: Weird...don't know how to describe it

i too am wondering where hamilton is?

th contrasting agent they use for MRI is different than what you are talking about with the barium contrast? this would have been given by an IV and introduced that way. they usually will do one set of MRIs without that dye then do another set after they administer it. its a good way to really compare what is seen with it and without it too. but do start keeping and getting all and any medical records for this. its just really helpful in alot of different ways,trust me. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-07-2009, 05:33 PM   #8
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Re: Weird...don't know how to describe it

feelbad,
Hi again...I came back to correct something that i previously said on my posts. I feel so stupid but i made a mistake. I was talking about it with my husband & he corrected me, my son did not have an MRI, he had a Cat Scan. Don't know why i was thinking MRI? I just wanted to come back & correct myself & also thank you for your replies. I will get all of my sons medical records from the night that i took him to the ER for this, thank you. But yes, i was thinking about the "barium" contrast. Why was i thinking this? lol Good Lord, have i lost it? lol
I too, was checking to see if Hamilton had posted again. I wonder where she is? I hope everything is ok.
Well i'll check back later. Until then i guess its just you & me lol. Take care of yourself.
Angelique

 
Old 05-09-2009, 09:09 AM   #9
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Re: Weird...don't know how to describe it

that DOES make a huge difference in just what is even possible to actually be seen with only a CT. usually with CT when someone presents into an ER, they are simply trying to rule out stroke or some type of brain bleed, it does NOT actually show alot from what an MRI would at all. he really does NEED that contrasted MRI right now just to see all the soft tissue structures and the vascular structures, these just don't show well at all with only CT. honestly, considering the symptoms he had then, they should have skipped the CT and went right to a contrasted MRI instead. that was kind of a no brainer ya know?

but DO obtain all the ER records and start some kind of a folder type thing where you can keep getting all records and any test results in. this just comes in sooo handy in so many different ways when you have any type of ongoing condition or in the diagnostic mode you are in right now? if there ends up being another ER visit at some point(tho we hope not) all you do is grab that folder and go ya know? bringing this folder to like every single doc or specialist appt too really helps when you get asked a question that you cannot remeber the answer to? you just pop into that folder. i had to do this when my son was going thru liver failure back in 99 and when all my ongoing stuff happened for me too. i now have to see five seperate specialists, so that folder really helps tons with all my huge amount of info.

i am pretty certain when you see that neuro that he or she will be sending him for that MRI. just make certain they use the contrast. it really shows the vascular structures really well vs without it. please keep me posted hon. good luck,Marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-09-2009, 03:07 PM   #10
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Re: Weird...don't know how to describe it

feelbad,
Hello again, thanks for responding. Thanks for all of your help & knowledge & i really appreciate the "tips" for the folder. I will do this! It makes perfect sense to me. I will be taking my son on Monday at 4p.m. to see the neurologist & i will come back & post again & let you know what/if anything that i find out. And you can best believe that i will be going into this visit with a set determination to get to the source of whats causing my son these symptoms. I will not let them just blow me off! I will see what the neurologist has to say & whether he will actually order up an MRI/contrasted if he doesn't i will insist that he do one! If he refuses i will tell him off & surely move onto the next neurologist lol. If it's one thing i don't like is to get one of those Dr.'s who treat you like you're crazy & refuse to listen to your concerns or the ones who act as if they know everything yet refuse or neglect to do the most obvious test, ya know? Idon't stand for that. This ismy sons health & i will not play with it.
If ya don't mind me asking, why was your son experiencing liver failure? Is he ok now? What was going on with you? Are you ok now?
I will try to come back tommorrow to see if you're posted. Otherwise i will post again Monday night. Take care & thanks again.
Angelique

 
Old 05-12-2009, 02:22 AM   #11
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Re: Weird...don't know how to describe it

feelbad,
I took my son to the Neurologist today & things went pretty well. The Dr seemed to be a really nice, much older gentleman which gives me a little more comfort because with his age, hopefuuly comes more experience! He seemed to know what he was talking about. I didn't even have to show him any paper work that i had recieved from the ER visit because he had already requested it himself. So, he started doing a series of tests on my son, checking my son out pretty throughly, checking all of his reflexes, etc. All of the tests were normal. Though he wants to see my son back in 2 weeks because he wants my son to have some more blood work done to check his thyroid. We have to take my son to get his blood work done before his next appointment in 2 weeks. He did diagnose my son with "Paresthesias". The Dr said that the cause of my sons symptoms is due to a energy drink that he drank the very day that he started experiencing his symptoms. My son was given this drink while he was with his friend at our local mall. My son was attending a movie premiere that he had standed in line for 30 hours for the shot at winning a free ticket to see the premiere & meet the actors who starred in the movie. When he was given the energy drink he gulped it down because he was thirsty & right afterwards is when all of these weird symptoms started happening. The Neurologist told us that all of those power/energy drinks are really bad for us & that people have died from drinking them! Now, heres the thing, my son was diagnosed with ADHD when he was 6-7 years old. For awhile , a few months, we had him on Strattera for the ADHD but my son said to me "Mom, i don't want to take these meds, i just want you to let me be normal" & i took the meds away, after speaking to his Dr. Well, i had assumed that my son had grown out of the ADHD because he seems fine but the Neurologist told us that once you have it you always have it & because he has ADHD when he gulped down that energy drink the way he did it rattled his nerves & shook up his system. It sorta shocked his system. Therefore causing the symptoms. The Dr said that he just has to get it out of his system before the symptoms go away. He was going to prescribe my son some medicine to calm his nerves but then decided against it as he wants a little more blood work to check his thyroid. He told my son that when he gulped down that energy drink it was like hitting himself in the head with a hammer 5 times! He said there is really bad stuff in those power/energy drinks & told my son to stay far away from them. My son thought from the very begining that it was that drink that caused this too. So, this is everything that we were told by the neurologist today. I feel relieved in knowing that he didn't find anything wrong with my son. But at the same time it just seems really weird that a drink could cause this, ya know? Well the drink along with my sons ADHD. It reved up his system & his nerves.
I will let you know what/if anything we find out after his next visit. I'll keep you posted. I hope that all is well for you.
I'm wondering where Hamilton is? She never came back. I hope shes ok. I'll keep checking back. Take care.
Angelique

 
Old 05-15-2009, 05:34 AM   #12
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Re: Weird...don't know how to describe it

Hi Everyone, I'm sorry for not posting any updates until now, had a few computer problems and its been down.
I am still trying to work into getting into the doctor, hopefully a neurologist but without insurance I can't afford it right now, I am trying to find a doctor in my area that isn't too expensive but just an office visit is almost $175!
I am just really worried what this could be. It started as a teenager at 15 and I am 35 now so I'm sure its nothing too serious.
Every time I've described it to my primary care physician he's said it sounded like a pinched nerve in my inner ear but I've seen two ear nose and throat specialists and they didn't find anything.
I always have this weird feeling on the right side of my head before these feelings start in. Its at the base of my skull on the right side. I constantly have ringing/tinnitus in my ears too. I remember always asking my mom when I had these feelings of everything going too fast around me, I feel like I"m talking, walking and doing everything at hyperspeed and I always asked my mom if I sounded like I was talking too fast but she always blew it off like it was nothing major. Maybe, hopefully it is just an inner ear problem but I would feel so much better once I finally get a diagnosis.
It means a lot to me that everyone has posted and you are concerned, I really appreciate it and I will keep you all updated.

 
Old 05-16-2009, 01:26 AM   #13
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Re: Weird...don't know how to describe it

Hi Hamilton! Welcome back. I'm really sorry to hear that you haven't been able to get in to see a Dr about this problem due to no insurance. Thats really rough, especially when you're having such a horrible problem. It would be best to try to get to the root of whats causing your weird symptoms, even if it turns out to be nothing serious, just for your peace of mind. Yes, it's going to be real expensive with no health insurance. Especially since you need to see a specialist. Neurologists are expensive but i believe that a neurologist would be the best place to start instead of going to a regular MD.
I will keep you in my prayers & i hope that you find a way to get into the neurologist soon. Does your city or state provide free clinics or health care services to those in need? You might want to check into this. Do you have a Salvation Army in your city? I know they help people out alot with not just food or groceries. Maybe you could check this out. I know they have foot the bill for a friend of mines prescriptions before when she had no way to fill them on her own. Maybe they could give you a few good resources? It's worth checking into. Take care of yourself & please keep us posted.
Angelique

Hi feelbad...How are you?

 
Old 05-19-2009, 04:57 PM   #14
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Re: Weird...don't know how to describe it

Update...
Hi everyone, how are you? How are you Hamilton? Hey feelbad, how are you?
I just wanted to give an update to my sons situation. He says that he is no longer getting any of the weird symptoms! I guess the Neurologist was right when he said that it just had to work its way out of my sons system! That evil sports/energy drink.
I hope that everybody here is doing great. I will check back in a day or two just in case anybody needs to post or reply. Take care everybody.
Angelique

 
Old 05-21-2009, 09:31 AM   #15
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Re: Weird...don't know how to describe it

hey guys, sorry i have not been able to pop in here like i wanted to. i am aon alot of different boards on here only because between my son and myself,we have wayyy too much knowledge and xperience with certain things. at least i can help others with what we have had to deal ith.

i really am suprised that one energy drink could have done to your son what were his level of actual symptoms. he has been completely fine since then to date? absolutely NO parasthesias at all then? paras are usually a secondary symptom caused by something effecting nerves somewhere. i really would continue to just kind of monitor him tho. his symptoms were very very pronounced ya know? and they did not actually ever really do that MRI either as far as you have stated. you just want/need to make certain that there is not something more behind all of this. i am glad that the neuro seems to think this just was an islated incident, but just to be safe, well, you know. when it comes to our kids,we can never be too careful. i do hope things continue to improve for him. please keep me posted angelique.

hamilton,glad you are back. i know it has to suck having the no ins crap to have to deal with when you simply NEED a good solid diagnosis on something. i really do think tho that obtaining that one MRI with contrast if this is at all possible would truely be the very best place to try and even begin at just 'seeing' into the area that is giving you the symptoms, you know what i mean? this would be the "ideal" here,thats all. but seeing at least a good neurologist, well he or she may be able to do some of their own types of other testing that could find the source too. but i seriously would at the very least, try for the neuro and no other type of doc at this point. that is who you simply need right now to be the most help in sorting this all out for you. this just really sounds very head/brain releatred in some way that the neuro would be your very best bet.

given the way healthcare is right now and many many people just not having the benefit of ins, many docs,espescially when people have to see specialists, they are much more likely now to REALLY work with you as far as working out some type of a payment plan. things are just not the way they used to be ya know? if they simply DONT work with patients on this, they would probably lose a ton of their patients at this point. so that works out well for you anyways. but get yourself to a good neuro hon. this IS your best bet for any real solid answers for your particular symptoms right now. good luck,and do keep us posted. Marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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