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Old 11-18-2009, 05:28 PM   #31
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Hello... I have some of the same symptoms as you. I was curious if the noises you heard from your inner ear were actually coming from your jaw. have you pursued a TMJ dysfunction? I understand that would not cover every symptom, but it would most. do you grind/clench your teeth often? just a thought as i am going down a similar path as you have. I started to steer more in the direction of a jaw/muscular disorder when on top of my regular symptoms i started having neck/shoulder/upper back stiffness/soreness. Good luck with your pursuit... I know how tiring and defeating it can be.

 
Old 11-20-2009, 11:14 AM   #32
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Quote:
Originally Posted by aaaaaaaaaaaah View Post
move to a location where you feel better, why suffer?
I heard this before from doctors. I thought about it myself.

In reality, it's way easier said than done. My life is here in NYC. My career and most people I know are here in NYC. At my age (40) it would not be realistic to move to a different location and start over. Not realistic, much less in the middle of a recession.

I wish I could just move to a dryer, nicer location where my awful symptoms go away. It's not an option. I wish I had options like very wealthy people do. Unfortunately I don't.

 
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Old 11-23-2009, 04:01 PM   #33
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Quote:
Originally Posted by Julius2009 View Post
I also wanted to list a few additional symptoms I forgot to mention in my previous post:
...

Hope this provides more insight on my affliction.
Here's a few extra symptoms I've noticed over the years, but neglected (or rather forgot) to add:
  • Extremely slow breathing at night, like I'm breathing 4 times per minute, very slowly. I notice when I wake up that I have to breath deeply, since it feels like my entire metabolism has been in hibernation. It goes together with a very, very slow heartbeat when I sleep.

  • Severely decreased libido.

  • Frequent urination (but it comes and goes).

  • Constant low-level sore throat, all year round.

  • Frequent choking. It happens several times a month. Out of the blue I would choke, sometimes drinking, sometimes eating, and sometimes just for no reason or swallowing my own saliva. It's bizarre and very scary when it happens. This never happened before in my life until all these symptoms took place. The ORL doctors said there's some minor irritation, but nothing worrisome.

    I have checked my neck and looked to see if there are any lumps, but I can't feel anything out of the ordinary.

Last edited by Julius2009; 11-23-2009 at 09:19 PM.

 
Old 11-24-2009, 06:15 AM   #34
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

UM.....THYROID. definetly!

 
Old 11-24-2009, 06:25 AM   #35
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

An ultrasound of your thyroid wouldn't be a bad idea if you haven't already had one done. I get the choking myself, sometimes I aspirate my own saliva, which is bizarre and scary when it happens. I also have thyroid pain when I'm very hypo. The other symptoms are pretty classic slowed metabolism signs of hypoT. Have you had any labs done? Any luck finding a good doc?

 
Old 11-29-2009, 02:07 PM   #36
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Hi,
I am writing this post because I feel exactly like Julius2009 and it is hard to be like this. I have all these symptoms for 5 years now. In the beginning I couldn't understand what was going on. I was telling my story and none was believing me including a few doctors. I went to neurologist, nothing. I went to special doctors and they didn't see any problem. I did 3D Scan, nothing important there. I have headaches or pain from sinus and feel block deep inside my nose. My nose is dry. I have sometimes PND. Since this started I feel tired every day, have bad memory, I cant consecrate and like Julius2009 when I talk sometime I forgot what I wanted to say! I don't have sense of my self, my feelings, I think that I don't feel the like before, it is difficult to describe this, I don't enjoy whatever I am doing even things that I used to like a lot. I have done also the allergies test, negative. I have terrible pain in my sinus when I travel by plane, my skin is very dry, my scalp, also my eyes too and they are swollen, my ophthalmologist can't understand why. I have consistently sore throat. When I use neti pot the water inside my sinuses cause Swelling on the bridge of my nose, the same happen with sea water. I have done thyroid exams and they are in the normal limits. I have take antibiotics, sometimes they easy the symptoms, steroid sprays, steroid pills, the make me feel better until I stop them. My mother have same symptoms for many years. I believe that sinusitis is secondary problem not the main. I feel like I have lost the last five years of my life, I almost have forgotten how I was before..Does someone with these symptoms become well again?

 
Old 11-30-2009, 06:18 AM   #37
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Quote:
Does someone with these symptoms become well again?
Platonis, the answer is yes but getting to the bottom of the diagnosis can be very difficult for many. Those of us who do not fit squarely into the usual diagnostic critera can have a very hard time of it.

Since this is another's post, why not relate your story on your own post and others can comment and share what's worked for them.

 
Old 12-08-2009, 01:26 PM   #38
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Finally got some interesting answers after getting different tests from two different specialists. I will report more info soon, but apparently I am getting a one-two punch from two different conditions, a perfect storm.

I will report soon in detail.

 
Old 12-11-2009, 06:59 AM   #39
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

OK, here is the brake through that you have been looking for...I hope. One person mentioned getting your thyroid levels checked and specifically mentioned T4 and T3. I was waiting for that person to mention getting your Reverse T3 checked as well. My thought is that you will find your T3 and T4 in the low but normal range, but your RT3 is going to be way too high. This is slightly controversial so you have to think outside the box. High RT3 causes a condition known as non thyroid disease, or Euthyroid Sick Syndrome. T3 and RT3 have the same moleculer make up, except that too much RT3 blocks the receptors and takes the place of the real T3. This conditions mimics to a "T" a throid disorder, even though the T3 and T4 are in acceptable levels. The solution is to go on slow release T3 or Cyclomel synthetic T3 to drive the RT3 down to a lower level. Finding out what your RT3 is a common lab corp blood test. They don't normally test the RT3 because they are !@#%@!! Think about it, after this many years, what do you have to loose.

 
Old 12-30-2009, 05:55 AM   #40
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

OK, so let me make a long story short. I still don't know for sure what's causing my problems, but I believe I'm closer to know. Allow me to simplify a complex story:

- Met with two specialists, a highly recommended and very expensive Thyroid specialist in NYC, and an Inner Ear NeuroOtology specialist at NYEE Infirmary.

- The Thyroid doctor did a very extensive study with a detailed battery of blood tests. He mentioned my symptoms are consistent with a thyroid deficiency, but the blood tests showed normal levels for thyroid function. Nevertheless, the Testosterone levels came out very low for someone my age. That would explain the low energy and some of the lethargy. Apparently I have low-T like a man 20 years my senior.

The doctor prescribed me Androgel, and wanted me to try Cytomel (5 MCG) and Synthroid (50 MCG). I took Cytomel for a week, and I felt an instant jolt of energy. Then I added the Synthroid 50 MCG and things became very scary. I mean, very scary. I had to stop taking it after 3 days. Not sure if it was the Synthroid alone, or a combination of both, but it was terrifying: palpitations, nervousness, hair falling off by the handful, in patches, couldn't sleep for three straight days. I mean 3 full nights with not a minute of sleep. I thought I was going to kill over. Very scary. Synthroid is not for me, definitely.
The doctor suggested I stop taking them right away, and try again in a few weeks to see if there's a difference.

Two weeks after the experience, the palpitations have decreased, but my hair keeps falling off in clumps, like a victim of radiation exposure. I wonder when will it stop. Does anyone know when your body flushes out the Synthroid for good? This was a bad experience.

In addition, these drugs did nothing for my cognitive problems. They improved energy levels, but not attention or concentration.

(TO BE CONTINUED)

Last edited by Julius2009; 12-30-2009 at 05:59 AM.

 
Old 12-30-2009, 06:52 AM   #41
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Julius - I have the exact same symptoms as you. I too have not figured things out. Do you notice that when you exercise, the next few days are worse for you? Lets compare stories and get to the bottom of this. Can't take this much more.

Fuel

Last edited by moderator2; 12-30-2009 at 07:09 AM. Reason: posted contact info - please read the posting rules

 
Old 12-30-2009, 07:29 AM   #42
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

(CONTINUED)

- The other doctor at NYEE, the neurootologist, conducted two different types of test. The auditive test came out flawless. My hearing is top notch, excellent for my age. Now, the balance test discovered something of interest: I have a vestibular inner-ear problem with a disbalance on the right side over 20%. This would explain a lot of the cognitive and concentration problem. As your natural mechanisms for balance fail, part of your brain takes over to maintain the balance. Other functions of your brain suffer as it needs to take over such a basic function. In many cases it results in concentration, memory and depression problem. I think this may be culprit for some (or most) of my problem. Not all of them, though.

They'll perform a skull MRI soon to see if there's a physical problem causing this inner-ear damage.

But there's more I have discovered....

(TO BE CONTINUED)

Last edited by Julius2009; 12-30-2009 at 03:18 PM.

 
Old 12-30-2009, 11:06 AM   #43
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Julius, do you have your most recent thyroid labs to post? Also did you get your ferritin tested? Low ferritin can cause problems with hair loss and intolerance to thyroid hormones. Also low magneium can cause hair loss in patches- you should try magnesium citrate to bowel tolerance. I'm curious if your endo did a reverse T3 test for you too and how about your adrenal function? If your adrenals aren't up to snuff you won't do well with the hormones.

 
Old 12-30-2009, 03:14 PM   #44
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

Javelina, no I don't have the results with me, but the doctor explained my thyroid and hormone levels in detail, and apparently they were normal except for testosterone. Despite the normal levels, the doctor decided to put me on thyroid meds to see if I would notice any difference. Unfortunately, the effect wasn't positive.

Regarding the hair loss, please allow me to explain: No, I have never had a problem of hair loss. Luckily, I have had a nice head of hair, and never experienced any kind of hair loss... until three weeks ago. It happened immediately after taking Synthroid. Quite literally the next day after my first dose. I believe this medicine that was quite toxic for my organism.

Javelina, the next day after taking my first dose of Synthroid I had huge lumps of hair in my hand, and bald patches all over my head within two days. Synthroid just wasn't for me, and together with the palpitations and the 3 days without sleep (nearly 72 scary hours without a minute of sleep), it felt like an atom bomb in my organism. I can't explain how much these side effects scared me.

Now, I haven't taken Synthroid or Cytomel for two weeks, and I still experience hair loss daily (lumps of hair everywhere when showering). It's not as awful as it was during the days I was on the medicine, but still notable. Palpitations have come down considerably. Does anyone know how long will this happen? How long after you stop taking thyroid medication the side effects go away?

Last edited by Julius2009; 12-30-2009 at 04:03 PM.

 
Old 12-30-2009, 04:03 PM   #45
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Re: Help! Severe brain fog, lethargy, sleep & skin problems for a decade! Thyroid iss

(CONTINUED)

- In addition to the above tests, I took a trip to one of those places where my symptoms used to improve, as I explained in my original post. I recently took a two week trip to Spain, and was ready to write down every detail I experienced about the usual improvement of symptoms....

Well...

Nothing happened. This time, unlike in previous experiences, none of my symptoms went away while I stayed there. Concentration, lethargy, memory... they all stayed the same. No improvement. This was extremely frustrating and made me feel like I've been chasing a red herring all along.

Nevertheless I was able to notice a couple of interesting facts: Lethargy, memory and attention issues got worse those days I slept poorly. The jetlag helped notice this effect quite clearly. Also, the more my sinuses were congested, the worst I felt overall.

So, in conclusion, these are the things I have learned about my condition over the last month of research:

- Blood tests show that I have low testosterone, which explains some of the low energy, lethargy and lack of libido.

- Hearing and balance tests show that I have inner-ear vestibular damage that creates a lack of balance over 20% on the right side. This is a serious matter and the doctors are going to look into the reasons for this problem and how to tackle it. This type of vestibular problems tend to produce concentration, memory, mental fatigue, and even depression.

- I do have mild sleep apnea and sinus issues... but added to the previous two issues I describe, it increases the overall ill feeling and cognitive problems.

- Not sure I have thyroid problems, but the low-T definitely hints at an issue. We'll look into it. In the meantime, the trial of Synthroid was a very scary experience. Definitely not for me.

I think this narrows the sources for my health problems, or at least most of them. I will keep following up with my doctors and see if there's any progress. I will keep posting any advance.

Last edited by Julius2009; 12-31-2009 at 12:26 AM.

 
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