Please help I have my eeg report and I am confused
Let me begin this by saying before April, the thought of a seizure had never entered my mind. Then on that day I had a bad full blown seizure at work. I dislocated my shoulder and destroyed my hip joint in the process but I have no memory of it and the days following are pretty fuzzy due to alot of meds and surgery to rebuild my hip. I have mixed connective tissue disease which has its own problems. My sister has a connective tissue disease as well. She was diagnosed with epilepsy when she was young, then later they said she no longer had it. Now she started having them again a couple of years ago. Then I had my "episode" I tend to call it. They did an eeg at the hospital and I will be posting the results that are kind of confusing since I have not been referred to a neurologist. Maybe I am reading more into it than it is. I was told my report was "relatively benign" when I had my follow up with my rheum. but he had not actually seen the report and didnt for many months following. I just got a copy of it in my insurance forms and it doesnt sound all that benign to me. Then maybe I am just overreacting. Please look at this and tell me if this sounds like anything you have seen before or if it sounds like they are saying what I think they are saying. I also want to add that I am still having strange episodes...not like the one I had that day..NOTHING remotely that bad. I just have a real hard time when I am driving. I was having this before that day..A LOT...Not just to work but even coming home. I would literally have to fight to keep from fading out, that is the only way I can describe it. The only thing that would help is me rubbing my hand up and down my arm or face... If I stopped, I would start fading out again and literally fighting to control my eyes. I would get so dizzy too. I knew I had been having trouble sleeping and I knew it was making it worse for sure, but even when I slept I still had this problem every single day. I am still having it, but really limit my driving. I tend to have this when I try to read a book or when I am on the computer. I have given up on reading a book. It is just too hard for me now. I have to reread the pages over and over because I cant absorb what it says and then after only a few pages I give up because I am fading out again. Please let me know if you have a clue what this means. The only thing I can add is all of my childhood I had problems with passing out. I even had to drop out of violin because we had to stand and i would get so dizzy, sick and pass out. I passed out in choir a few times too. I had thought this to be because maybe I locked my knees and this could still just be the reason. I say that because it is nothing like what I have been dealing with for the last year. I am hoping someone can clarify some of this for me.
Abnormal EEG due to paroxysmal high voltage delta activity which is bi synchronous and rhythmic but not associated with a spike component. This pattern is suggestive of a tendency toward seizures. The seizure type cannot be determined by this recording alone. Should the clinical need for further characterization of this tendency toward seizures be benificial then a period of EMU evaluation may be helpful to actually define seizure type. Clinical and imaging correlations are indicated.
I left off the findings section to keep this brief. I feel that this feeling I am getting of fading out was definately increasing prior to my seizure and I am still experiencing them several times a week. They are common when I am on my laptop or driving. It have no control and it makes me very very sleepy. When they are happening over and over, I just want to take a nap after. It is very much like when you are driving after being up for days or all night but I haven't been. I just feel like I have. Does this all sound crazy?
I really hope you can shed some light on this for me. I would greatly appreciate any help you can give me. I really miss reading books. That use to be one of my favorite things to do, but I just cant do it anymore. I cant concentrate and it is just exhausting fighting off the episode.