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Old 03-05-2010, 05:22 PM   #1
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Location: Bethlehem, PA, USA
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amoeba430 HB User
distal polyneuropathy with axonal and demyelinating features

After about 2 years of all sorts of tests, from mri's, to spinal taps, to lots of blood work, to eng, emg's, etc, etc, i am being referred to a "movement disorder" neurologist, by my own neurologist who doesn't know what is causing the neuropathy nor the bad balance problems i have. i also have a tremor, but i've had that for 10 yrs. the balance/sidesteppping problems started 3-4 years ago but got worse in the past 2, and probably are still slowly getting worse.

so, i got some of my files to take with me, and for the first time really got to read what some of it said.

and, "distal polyneuropathy with axonal and demyelinating features" was the conclusion from the emg, so i'm wondering if anyone wants to elaborate on what that means in their own life, or in things that could be causing it, or anything else they want to add. all i did was look up the words so know what it means in that sense.

i'd like to just know what is causing the problems. all that has ever been accomplished has been ruling out things, which certainly is nice in some ways to know (no brain tumors, MS, lyme disease, etc, etc) but also as he narrows it down and mentions that there are really only hereditary disorders left... it's not too reassuring either.

thanks

 
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