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Old 11-09-2010, 03:51 PM   #1
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Join Date: Nov 2010
Location: NC
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cherokee3074 HB User
Question oligodendroglioma tumor & Temodar

Hello everyone, My name is Amy & I'm here because i'm not sure of what to expect from the chemo pill temodar. I was diagnosed with a grade 2 astrocytoma brain tumor back in 2003 when i was 29 y/o. They couldn't remove it because of it's location they said it would do more damage than good to try. So, I received 7 weeks of radiation treatment & the tumor shrunk considerably & stayed that way up to now. My last MRI showed new growth & the tumor is back again. Almost 4 weeks ago i had another biopsy at Duke Medical in Durham NC. The tumor is now called an Oligodendroglioma. This time they want to treat it with chemo the temodar pill. I'm starting next Monday & i'll have to take 3 pills a day, 5 days a month, for a whole year & i'm really scared! At first it was only 1 pill daily, then they said 2 pills & today i got a call & they want me to take 3 pills. I was nervous with just the thought of taking 1 pill! Please, if anyone here has taken temodar & would share they're experiences with me i would really, really appreciate it! I live in a very rural area here in NC & we don't have access to any kind of support groups in my area & I need to talk to people that have gone through the same stuff that i have the past 7 years. anyones input would be appreciated & Thanks for listening! Amy

 
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