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Old 03-31-2011, 04:26 PM   #1
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scrappydoopug HB User
post brain tumor

My Mom had a grapefruit size sphenoid benign meningioma removed about 5 years ago...she has had some mild to moderate personality changes post surgery. She is somewhat "automated" she does not show much emotion. This is quite different than what she was before surgery. My family does not want to admit this change. I'm not sure what to do, since she probably wouldn't do anything the Dr. would suggest anyways. I'm not sure I will even bring it up at her appt. next month. Any suggestions?

 
Old 03-31-2011, 06:23 PM   #2
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Re: post brain tumor

No two tumors are alike, nor are the recoveries, but I think it's safe to say our brain is our most personal organ. However successful a surgery, until you've had your brain tinkered with, it's so hard to understand the after effects and very important to be mindful of after care. I'm 7 years post op and it has been super hard. My first question would be what are the prescriptions she's taking? If any, please research and carefully assess them. Is she watching any/lots of T.V.? If so, I don't think that's helpful in recovery b/c we zone out. I've hardly watched TV in 7 years. It takes a long time to stabilize and if the after care hasn't been with lots of love and nurture the process is even harder. Educating myself and talking - to anyone who would appear to be listening was helpful. A traumatic brain injury group was the best I felt in relating to anyone, but I didn't stay with it - it scared me & all hell was breaking loose in my life. Nothing like being around others who know the drill tho. Maybe a good therapist? Anything to get her engaged in life again. I have some very strong opinions about BigPharma, Doctors, Surgeons and the Medical Boards too, for that matter.........ghrrrrrrrrr. Love and laughter doesn't come in a bottle but when it's authentic it goes a very long ways. Physical affection. A real hug...one that feels like a squeeze, every hour on the hour!

Last edited by LaDeeDah; 03-31-2011 at 06:24 PM. Reason: forgot something

 
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Old 04-01-2011, 04:21 AM   #3
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Re: post brain tumor

Thanks for your perspective. Everything you said makes a ton of sense. She is not on any meds. She is such a trooper though, she never complained a bit about anything that happened. She had to have occupational therapy after surgery because of weakness to her left side. She had Stevens-Johnson syndrome because of the dilantin. So all in all she has had a spectacular recovery. It is just this personality piece that is missing. It would be nice it she was back to what she was before, but she has had so much trauma to her head that I don't think it is possible.

 
Old 04-01-2011, 07:12 AM   #4
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Re: post brain tumor

Quote:
Originally Posted by scrappydoopug View Post
Thanks for your perspective. Everything you said makes a ton of sense. She is not on any meds. She is such a trooper though, she never complained a bit about anything that happened. She had to have occupational therapy after surgery because of weakness to her left side. She had Stevens-Johnson syndrome because of the dilantin. So all in all she has had a spectacular recovery. It is just this personality piece that is missing. It would be nice it she was back to what she was before, but she has had so much trauma to her head that I don't think it is possible.

 
Old 04-01-2011, 07:25 AM   #5
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Re: post brain tumor

It's refreshing to see your care/concern & willingness to reach out. I was left much to my own devices post-op - my family totally checked out. I've consistently read of short attention span which effects our personality b/c we can lose interest in any number of things leaving us to feel quietly frustrated. I've learned to allow myself to be flighty that way - kind of a ho hum / what's next? Dilantin just about destroyed me. All of the drugs given pre/post op are intense and can leave lasting effects. If you choose to explore activities with her maybe try to make as if you're doing it for yourself - we don't like to feel like charity cases because we already feel out of sorts. If you can pay attention to timing, e.g., times of the day where she's at her best that might be helpful in finding something(s) that stick - - - for a while anyway. Yes, it is a life altering experience. No, we are never back to who we were. It's a long strange trip. I wish you & your family all the best - it is a journey for sure.

 
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