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Old 05-08-2013, 04:40 AM   #1
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valerie2013 HB User
Constantly dizzy

My husband got diagnosed with a benign brain tumor 5 years ago. Its attached to the brain stem....so they cant remove the whole tumor.
After his first operation they told us it wont grow back for 20 years....it grew back within 6 months...Hes had 3 operations and he had a shunt put in a year ago. Now his problem is hes constantly dizzy, his walking is unsteady, he has balance problems and his speech is slurry...No DR can give us a an answer to why hes feeling like this... They keep saying he'll improve....The strange thing is when he lays down the dizziness goes away.

Has anyone been through something similar.

PS: After his first operation he got meningitis and MRSA.

 
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Old 05-11-2013, 05:37 PM   #2
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Here4u2 HB User
Re: Constantly dizzy

I'm so sorry to hear that. The brain stem is an area where balance and dizziness and speech would be effected, as is the cerebellum. So why they say they don't know WHY he has this problem is baffling, given that is where the tumor resides.

Can you ask him to explain the type of dizziness, is it a constant type spinning, do things seem to jump in his vision, or does he feel like HE is moving and everything around him is still, meaning not in motion.

Being very descriptive of his personal dizzyness description is best because people ( individually ) tend to compensate different then others and sometimes don't even realize how much compensating they do, and so while ONE may compensate in one area effected by dizzyness, others do at different rates. I hope that makes some sense.

Can you ask him to be as detailed as possible, even with all his first presenting symptoms, dizzy related or otherwise and come back here, it could help MANY and thank you for sharing!

 
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Old 05-11-2013, 05:45 PM   #3
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Join Date: Jun 2002
Location: Tampa
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Here4u2 HB User
Re: Constantly dizzy

I'm so sorry to hear that. The brain stem is an area where balance and dizziness and speech would be effected, as is the cerebellum. So why they say they don't know WHY he has this problem is baffling, given that is where the tumor resides.

Can you ask him to explain the type of dizziness, is it a constant type spinning, do things seem to jump in his vision, or does he feel like HE is moving and everything around him is still, meaning not in motion.

Being very descriptive of his personal dizzyness description is best because people ( individually ) tend to compensate different then others and sometimes don't even realize how much compensating they do, and so while ONE may compensate in one area effected by dizzyness, others do at different rates. I hope that makes some sense.

Can you ask him to be as detailed as possible, even with all his first presenting symptoms, dizzy related or otherwise and come back here, it could help MANY and thank you for sharing!

 
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Old 05-11-2013, 10:29 PM   #4
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valerie2013 HB User
Re: Constantly dizzy

He says the best way to describe the dizzyness is like your very very drunk.
And sadly that's how he sounds and walks like he's drunk.

His symptoms before being diagnosed were mainly very bad headaches that wouldn't be relieved with strong pain killers.

 
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