Hello, Sorry that you are going through such a great deal pain and stress right now. I have similar symptoms to you. Headaches with migraines, dizziness that include swinging feeling. When the migraine gets so bad I get sick I am on Topamax for them which helps however if my neck pain is flaring up and I don't not get the pain under control the head-pain turns in to a migraine and it is horrible. I get really bad mood swings at time but I think they are from lack of sleep and being in pain, and this lovely thing called limbo-land. I had a MRI and they did not say anything was seriously wrong just that they were going to keep a eye on my headaches. I which you luck keep us posted.
In 2010 I had a routine eye exam and I usually dont get the extra scans they offer of your optic nerves.. I dont have insurance. But there was a special so I got the works! They saw some swelling and said it could be a brain tumor. Freaked me out but she asked if I had dizziness and bad headaches? I didnt so I just let it go. But in 2011 I started having what I describe as vertigo like I just got off the merry go round,double vision and spiking headaches. SO I finally went to an eye clinic, where I was told it could be a brain tumor and I could die any minute..
I needed an MRI but with no insurance and no way to pay for one I was TSOL.
So I agreed to get checked out by their specialist which was an ophthalmologist who came there twice a month. SO after two weeks of thinking I was gonna die any minute, I saw him. He saw slight elevation and thought it was sinus and or my thyroid. I do have severe low thyroid symptoms but never such bad dizziness, double vision or the headaches?
So I saw another specialist at the clinic which I had to wait two weeks to see (a ENT ear nose and throat) he says its my thyroid. The doctors I had seen prior for my thyroid didnt give me my new test results that showed it was severely low. And he thought I had sleep apnea. So he said I needed to get the right medication and that would probably cure the symptoms and the apnea.
Ok so basically I took new meds and after a couple months the symptoms subsided a little but not completely.
So I went back to the eye clinic. They said that I still needed an MRI because it could be brain swelling or inter cranial pressure also known as pseudo tumor cerebri.
I still didnt have the money for the MRI, But June 2012 I broke my ankle really bad and had to have emergency surgery. They would not do surgery until they did an MRI to make sure I didnt have a brain tumor. So they did one and it came back clear.
So now Im dealing with the ankle and Im down for three months so the symptoms subsided a little more. Its been 7 months and now Im going back for another ankle surgery. And after that I have an appointment with a Neurologist. The clinic I go to doesnt have one so Im going to one almost 5 hours away for help. Hopefully he can do a Spinal Tap and give me a proper diagnosis!
The ophthalmologist explained it to me this way. When you brain produces fluid it travels through you brain cavity down through your spine and out toward your joints and then dissipates into the body. When the fluid does not flow and dissipate it stays in there and builds up thus causing pressure because your brain cavity is only so big. It puts pressure on the optic nerve and causes swelling and vision problems.
The following user gives a hug of support to seventh sister: 2young4paininOH (02-13-2014)