Chelsea2

Thanks for your concern, Harry. The gastroenterologist suggested surgery (remove several feet of intestines) as the cure. The general surgeon sent me for more tests (already had CT scans and ultra sounds)---a barium enema and a contrast cystoscopy. They did not make him feel comfortable that surgery would cure the problem as they didn't confirm what the urologist and his partner saw. (My theory is that when the did the barium enema the barium filled the intestines too uniformally and prevented the segmentation that may be necessary for the phenomeman to occur.) The surgeon wants me to go back to the urologist (who had passed me over to the gastro) and have him do another cystoscope (look in my bladder with a camera for the uninitiated) while he observes. Problem is the urologist just left the practice he was in which was in the same building as the surgeon, so now it all gets more complicated! At least I am doing well most of the time. The burning pain is worse when I am on my feet a long time, but not always. It is not totally predictable when the irritation will occur. I can function with it, just get tired and a little worn down sometimes. Just knowing what it is makes me feel better though! Any other insights or recommendations for specialists will be appreciated. Thanks.