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Old 05-24-2006, 06:09 AM   #1
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Question CFIDS and Tremors or bladder/sexual dysfunction anyone?

Hi, everyone. I'm relatively new to this area of the boards and was hoping you could help me with a couple of questions. I'm a 50+ year young female who was recently diagnosed with CFIDS and FMS, "in addition to whatever neurological problems (I) might be facing."

I won't bore you with a long history, but I was wondering if anyone here has experienced tremors (shaking of the legs, hands, or head) due to CFIDS.

I was also wondering if anyone here has experienced bladder stress incontenience and/or a neurogenic bladder (frequency and/or urgency) due to the CFIDS.

I read somewhere that men can have erectile dysfunction due to CFIDS, but no mention was made about female sexual dysfunction. So ladies, if I may ask, has your "Good Girl" gone on a permanent vacation? Do you have little or no stimulation response to touch or any other methods you and your partner use?

I know these last two are very personal questions, but I really need to know. I don't think anyone has documented any of these symptoms, but that doesn't mean they're not out there with this.

Please, be an angel and let me know if you have had any of these symptoms and if they were or were not linked to CFIDS, and if not to what were they linked. Thank you so much.

Debra

 
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Old 05-27-2006, 09:14 AM   #2
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Re: CFIDS and Tremors or bladder/sexual dysfunction anyone?

Well, since no one has responded, I'm guessing that these experiences are my own and have nothing to do with the CFIDS/FMS, but rather have something to do with my degenerative disk desease/herniations/spondy or another as yet undiagnosed neurological problem. For those of you who believe, please pray with me that God will open that bigger and better door that I might receive the proper diagnosis and healing of these afflictions, "for where two or more are gathered in His name, it shall be done." Thank you for standing with me. God bless you all.

Debra

 
Old 05-31-2006, 01:01 PM   #3
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Re: CFIDS and Tremors or bladder/sexual dysfunction anyone?

Not terribly savvy re: IM, so I will respond here. Thank you for the information. I do not eat or drink anything with aspertame and haven't unless accidently in many years. Terrible stuff. I prefer stevia or other natural alternatives. I've been on all kinds of supplements for years and bio-identical hormone replacement therapy for my thyroid, etc. Will be adding L-Carnitine soon and working up to 3 grams per day along with Gensing, NADH, and light therapy. I may try accupuncture, but want to try adding these other things my doctor recommended first. She has me on Glutathione/ATP 1 cc with 2 ML B-12 IM once a week. I have taken heavy duty multiple vitamins, minerals, and supplements for years that include all of the B vitamins, fish oil, calcium, magnesium, zinc, CoQ10, Ginkgo Biloba, etc. My standard diet has consisted of lean protiens, nuts, legumes, beans, fresh or frozen (no sauces) vegies and fruit. Dairy is limited to organic milk on my steel cut oatmeal and the occasional (rare) icecream.

I have many food allergies so my dietary restrictions are not all voluntary, but I have learned to enjoy the benefits of healthy eating. In fact, I've eaten this way for so long now that the occasional treat can often upset my stomach if I over indulge.

I have been told by several doctors that I may have MS, but so far for circumstances out of my control and that I won't bore you with, I have not been able to get the testing needed to confirm or deny that and several other suspects. I understand that the initial tests don't always show the markers anyway, so it's probably best for now. I'm sure God will open that door for me when it's the right time. I find I'm happiest and feel better physically when I don't worry about things over which I have no control.

Thanks again for your response.

Debra

 
Old 05-31-2006, 01:02 PM   #4
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Re: CFIDS and Tremors or bladder/sexual dysfunction anyone?

Not terribly savvy re: IM, so I will respond here. Thank you for the information. I do not eat or drink anything with aspertame and haven't unless accidently in many years. Terrible stuff. I prefer stevia or other natural alternatives. I've been on all kinds of supplements for years and bio-identical hormone replacement therapy for my thyroid, etc. Will be adding L-Carnitine soon and working up to 3 grams per day along with Gensing, NADH, and light therapy. I may try accupuncture, but want to try adding these other things my doctor recommended first. She has me on Glutathione/ATP 1 cc with 2 ML B-12 IM once a week. I have taken heavy duty multiple vitamins, minerals, and supplements for years that include all of the B vitamins, fish oil, calcium, magnesium, zinc, CoQ10, Ginkgo Biloba, etc. My standard diet has consisted of lean protiens, nuts, legumes, beans, fresh or frozen (no sauces) vegies and fruit. Dairy is limited to organic milk on my steel cut oatmeal and the occasional (rare) icecream.

I have many food allergies so my dietary restrictions are not all voluntary, but I have learned to enjoy the benefits of healthy eating. In fact, I've eaten this way for so long now that the occasional treat can often upset my stomach if I over indulge.

I have been told by several doctors that I may have MS, but so far for circumstances out of my control and that I won't bore you with, I have not been able to get the testing needed to confirm or deny that and several other suspects. I understand that the initial tests don't always show the markers anyway, so it's probably best for now. I'm sure God will open that door for me when it's the right time. I find I'm happiest and feel better physically when I don't worry about things over which I have no control.

Thanks again for your response.

Debra

 
Old 05-31-2006, 02:43 PM   #5
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Re: CFIDS and Tremors or bladder/sexual dysfunction anyone?

I have FMS and possible CF and lupus. Though i dont know what good my answers will be to you.

I too dont know what neuro problems i totally have as ive seem to have casted off doctors due to being put aside. I do have tremors/shakes in my arms, legs and head. Though i do have epilepsy i dont think the two are related!

Bladder frequency and urgency is also a yes. Its so bad that im going 3 or 4 times an hour when i do drink. I dont really drink that much, definately not the regular 8 glasses a day as reccommended.

Now with the "Good Girl" issue... im so flat lined in that section of my life it isnt funny. (I so hope fiance aint readin this..) lol. It's hard being any age and not even feeling adequate enough for your better half

I hope you find your answers soon

Last edited by KittenPaws; 06-01-2006 at 10:04 PM.

 
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