Severe bladder ache following passing of kidney stones - Cancer: Bladder Message Board

catsnow · 06-21-2007, 08:14 PM

So many of you - especially Allie - have been so helpful and sympathetic about my son having kidney stones that didn't show up on a ct scan back in february. Well, in May he passed three stones, each about a week apart. and felt great for awhile - then about four days after passing the last stone, he got a bladder infection - fever, chills, burning sensation plus bladder ache.

I gave him macrodantin immediately and took him to see his urologist/surgeon who ran blood and urine tests, did an in office ultra sound of kidneys and a bladder scan. Well, he looks "perfect" and no traces of anything in blood or urine, no infection, nothing.

doctor still acts like stones - which I didn't catch although I chased one around a toilet bottom and the largest one caused such a large ping in a movie theater urinal that the guy peeing next to my son said 'whoa" - were not real.

So anyway, son feels better for a week and then he gets another, milder infection. I give him more macrodantin and it is helping but SLOWLY. we are leaving town for 8 eweks (my daughter going to summer school and we are going along) and I am concerned about continual, sometimes worse than others BLADDER ACHE.

is this part of an infection? could it be bladder stones? (even tho nothing showed up?) any ideas? the poor kid is so sick of hurting all the time one way or another.

Thanks guys!

cats now

glowing4 · 06-22-2007, 04:44 AM

Has any doctor said anything about bladder spasms? One urologist told me that they are quite common, especially after stones and infections. There is a medicine (sorry I forget the name) that can relieve that. Just a thought, but it might be worth asking about. Sorry he is having such a hard time and I know it is hard on mom too.

glowing4

catsnow · 06-22-2007, 11:27 AM

Allie and glowing4 thank you both so much. Allie, with all that you have going on with you, I can't tell you how much I appreciate the time you've taken to help us!

Yeah, I know the stones not showing up on scans thing - the kidney stones never did. I just thot once he passed them, so bravely etc. we were home free. But no.

Although according to the doctor he is "perfect." um... when he can go up and down the stairs without hurting, then he'll be perfect. so frustrated.

>I'm so sorry your son is still going this ****..

thank you

I will get a referral for dr. in Honolulu. my daughter is going to UHI and we rented the apt and everything long ago he was so hoping he could surf all summer, this was a reward for both of them after so much **** last year. such a bummer.

The spasms, as you said glowing 4, could be helped with that spasm med. i have some (also forget the name, down in med cabinet from when he had surgery LAST October) he hates it because it makes him moody, but if it would help the pain - i like the word "common" - so hope it just ends. but what i dont like is the come and go and return to infection. maybe we just took him off the macrodantin too fast (8 days)

I feel strongly that something stronger than macro - keflex or something - would work better but dr says urine is clean, blood clean, there's no problem - this is a major, major urolgist and he always acts like it must be something in MY head or my sons. Five weeks you were on macro, huh, allie. well then i might just keep my son on it until we come home, sigh.

>Bladder spasms are very common with stones...and spasms/pain is common with infection...you want to make sure he doesn't get a kidney infection...

I so cannot tell. I am so hoping he didn't get bladder stones from the irritation of the kidney stones which I've read about on line, that worries me. I know if we went for a cysto it would probably show up and i said when we get back, if he isn't better, he has to do that - i would assume bladder stones would show on a cysto!

(but maybe its best not to assume)

>The one thing you need to watch him for is obstruction....I can't stress this enough..

thank you, I will. It's so funny, when my daughter was 12 i stressed good grades and all that stuff. i told him i dont care if he gets D's instead of A's all this next school year, I just want him to be well again. health issues really make - i know you know! - everything else seem so silly.

>Post when you get back unless they have internet there..throw us an update..

we will!

thank you so much!!!!

please take care of yourselves, I'm sending you the best

genie
catsnow

catsnow · 07-13-2007, 04:21 PM

The first thing I saw when I got on this site today was no Allie -- hope all is well!

Just to update on my son - he passed a small orange stone - looked diff than kidney stone but of course he passed it - in the shower, couldn't catch it. all of a sudden had strong urge to void, and push something out and - there it went.

so he was fine for a week. totally fine. then bladder began to hurt again. says he feels a stone in his bladder this time. bladder jsut aches. non invasive tests show nothing - and we are in Honolulu now and am not dying to have a doctor he hasn't seen before do a cysto on him.

any ideas?

i researched that bladder stones can be caused by stent or other irritants - in other words by the passing of the kidney stones he passed on his own over three month period, or by the stents he'd had after surgery.

any thoughts etc?

thank you all again. never thot - especially after his week of climbing, surfing etc feeling fine - we would be here AGAIN.

catsnow