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Old 02-24-2008, 05:53 PM   #1
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Spastic bladder

I'm a c7 quadriplegic with an supra pubic catheter.
For about a week now my bladder starts having spasms
when I fall asleep at night.
I lay on my right side.
If I stay awake it doesn't spasm.
But as soon as I fall asleep it starts.
I wake up. In a few minutes it stops.
I fall asleep starts again.
I eventually get really sleepy & stay asleep.
Not sure what it does after that.
Whenever I wake up 3am, 4am, 5am it's not spasming.
Just at the first of the night.
Never in my wheelchair during the day.

I don't have any fever.
So I don't think it's an infection.

Any ideas?

 
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Old 02-24-2008, 10:31 PM   #2
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Thumbs up Re: Spastic bladder

Kay

I really don't know what could be causing this for sure. It's a good idea to have it checked out then you'll know what you are dealing with. My prayers are with you.

Hugs Nadine

 
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Old 02-25-2008, 08:37 AM   #3
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Re: Spastic bladder

just wondering what type of doc is in charge of your on going healthcare and coordinating any referrals to others?as you already know,once you get SCI,amazing and insane things start occuring in your body that you never ever could have imagined.i went thru this too(and still dealing on a daily basis) but i am a c7-t1 incomplete.sorry you ended up in the chair.luckily becasue i had a wonderful neurosurgeon we were able to avoid that.i am grateful.for some reason i have not beenable to figure out,when strange things are going on in other areas of my body(and i know this occurs with other SCI patients too) the bladder does some really wierd stuff.as well as the legs with incomplete.but everything tends to get a bit more spasmy like?for some reason,the bladder just seems to become affected.you could possibly have some level of infection that has just not gotten too far yet.how long has the spasms been occuring?i would at the very least here go see your primary for some simple UA and blood tests just to see if everything is normal metabolically.it is very easy to actually get a bladder or even kidney infection when you are cathing everyday.it just comes with the territory even if you are very very careful about it.all it takes is one litle bit of bacteria to be introduced into the bladder and the multiplying begins.the simple fact that what you are experiencing is just plain different from 'your" normal,it needs to be evaluated.i would just go see whever has taken over your primary care at this point and have some tests done.some SCIs see physiatrists or neuros or just stick with their actual pre injury primary for basic care.it all depends on how bad your injury is and what it is causing as to who you really see the most.i see several different types of specialists for all the flippin weirdness i now have to deal with.but i still see my pre injury primary for all the basic monitoring type stuff and we refer out as needed.you just need to find out what suddenly changed to make this start up with your bladder.it could be many things but i would definitely look at the bladder and the kidneys first.you just could be in the very early stages of a UTI.the sooner you start treating it the easier it is to get rid of.hopefully this can be treated and things will go back to more your normal again.i know with an SCI 'normal' is very highly individual now.please let me know what this turns out to be. FB
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Old 02-25-2008, 03:59 PM   #4
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Re: Spastic bladder

Kaybug,
Sorry to hear your going through this. I dont know anything about your generalized condition (being quadriplegic), but do know some about how the bladder works. I have a neurgenic bladder and have been "straight in and out" self cathing for 10 years now due to nerve damage. I also have had a suprapubic cath in the past so I do understand what that is.
THis is what I was told...(reguarding MY situation)..In order to pee, the bladder has to contract, The bladders CONTRACTION comes from the NERVE.(which is why mine dosent work)

When a bladder SPASMS that comes from the Muscle, and the bowels and bladder work off the same muscle. The only way I know when I have to cath is my bladder will spasm, I dont get an urge to go, which is believed that with me it spasms when its "overfull". The spasm is strong, and painful making my eyes water and nose run.
Do you have any bowel symptoms that come along with this spasm? When your in bed, and it spasms, to the point it wakes you or prevents you from sleeping, do you sit up in bed? And then it stops? Im just wondering if it may be a positional thing causing it? Have you tried lying on your LEFT side to sleep. (I KNOW that sounds rediculus, BUT when I was pregnant, was always told that laying on the LEFT side causes LESS pressure on the bladder)
THe fact your bladder isnt spasming while in your chair, makes me think it MAY be a positional thing going on. Or could be an early infection as FB mentioned ?
Just a thought?
I wish you the best, GOd bless and Take care,
Annette

 
Old 02-25-2008, 05:37 PM   #5
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Re: Spastic bladder

Thanks to all 3 of you for answering. {hugs}

I'm going to my urologist tomorrow for a specimen.
It's most likely is an infection.
It's just so weird for it to
only happen at night & only when I'm a sleep.
Plus no fever, no extra spasticity, no other signs.
Yes I always sleep on my right side.
Thanks Annette I didn't know that your bladder
was better off if you were on your left side.
I can't feel anything from middle of my breast down.
I can use my arms but my hands don't work at all.
So I can't feel my bladder or bowels.
So it doesn't hurt, but the shaking alerts my brain.

Annette I'm sorry about your bladder.
Sounds like you've worked it out though.

FB sorry you were injured also,
but Thank God you can walk.

Nadine thanks for the angel.

I'll let y'all know what I find out.
I appreciate y'all caring.

God Bless~

Last edited by Kaybug56; 02-25-2008 at 05:39 PM.

 
Old 02-26-2008, 06:17 AM   #6
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Re: Spastic bladder

Kaybug,

Yes at this point being 10 years with self cathing it has become second nature to me. But intionaly was rather dawnting. Could have been MUCH worse, that I know.
It amazes me how the body works with you not being able to feel the pain, but your body will shake in responce to the spasm. I have always been in tune with my body, knowing when something wasnt right, "listening to my body" I had major balance problems as well as muscle weakness, and went to a major medical facility to FINALLY be diagnosed, turned out I had a congenital defect, in my inner ear, and had a craniotomy in June to repair it as well as a muscle biopsy diagnosed a auto immune disease called "inflammatory myopathy" which my immune system is attacking my muscles, this is a progressive disease ,( my grandmother was in a wheelchair in her early 50's due to weakness and balance issues but was never diagnosed properly) so "listening to my body" may give me a few more years not being in a chair with proper treatment?
It's truely a blessing that your body has the ability as well!
Please let us know how you make out with your appt!
Wish you the best, take care,
and GOd bless,
Annette

 
Old 02-26-2008, 02:42 PM   #7
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Re: Spastic bladder

Hi Annette,

You've had alot to deal with sweetie.
Good thing you stay in tune with your body.
I'm really in tune with mine too now.
I never had to deal with any problems before sci.
So I'm not sure if I was tuned in before or not.
My whole body didn't shake. Just me bladder.
Do you know about autonomic dysreflexia?
Where any problem below your level of injury (mine c7)
causes signs (high blood pressure, sweating, etc.).
Which alerts you that you have a problem.
AD is really cool!
If you don't know google it.
Anyway AD will wake you up for sure.
I left a urine sample with my Urologist this evening.
I also have 2 benign tumors (angiomyolipoma) on my left kidney.
1 last year, had a sonogram & xray which caught it.
Then ct scan to verify for sure that was what it was.
He said it was & not to worry.
Went for my sonogram & xray this year.
Another angiomyolipoma, which is rare to have 2.
He said don't worry see you next year.
I was thinking, don't know about this?
So I went to a SCI Urologist.
He seems to think that's all it is too.
But he said to get another ct scan and look at it again.
So I scheduled it for March 4th.

But I feel grrrrrrr8888!

The God Lord's watching over me!

I'll let you know what the tests say.
Thanks for caring. {hugs}

Kay

 
Old 02-26-2008, 02:45 PM   #8
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Re: Spastic bladder

Guess that words no good here. lol

Then search the internet for AD.

 
Old 02-26-2008, 03:34 PM   #9
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Re: Spastic bladder

Kay,

Just looked that up, that is amazing how it works. I did read that bladder distention can also cause AD, as well as bladder irritation. Are you having enough urine output?
With my situation I have major issues whenever I have any surgery, and they use a foley catheter with me, my urethra is at a 90% angle(which for me is a good thing, (if it wasnt I would have free flow of urine and would have to wear a bag) BUT because the foley is flexable, any weight in my bladder causes the foley to kink, and backs up urine into the kidneys, so I have to make them aware.
I recently had part of my lung removed being told it was lung cancer. By the GRACE of God it wasnt cancer, but a rare type of infection that presented like cancer. The mass was in an area where it couldnt be biopsied, so this was the only way to find out. This was one time I was glad the Doctors were wrong! I had major issues with the foley during the recovery, once I was able to move around, I had them remove it so I could cath on my own.
Im glad your SCI Uro is staying on top of these tumors in your kidneys. Better to be safe than sorry! If I've learned anything with all the medical issues, WE are our own BEST ADVOCATES!
You GO GIRL! You sound like you have a very positive attitude, and that will take you far!
Take care, and GOd bless,
Annette

 
Old 02-27-2008, 07:55 AM   #10
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Re: Spastic bladder

just wanted to mention something about sympathetic nervous system damage from SCI?i recieved alot of damage to the c8 junction area(this is the place where alot of the nerves,including the SNS meet?)as a result,my SNS was significantly damaged along with a few other odds and ends.the thing about SNS and AD is they share alot of the same types of symptoms,since they both govern autonomic type functions.the BPs become affected along with sweating ability,either too much or very little?there are other issues too.this also triggered a nasty little syndrome called RSD or the newer came CRPS?its alot of burning,deep pain that somehow gets triggered with SNS damage along with having a vasomotor malfunction of some sort.you may want to just do a little research on the SNS too,just to see what may be causing what.

just an FYI for ya but having kidney problems of certain types can also cause the high BPs without it even being from the AD or SNS damage.this can just go hand in hand with the kidneys since the kidneys are what actually control BP by the release of renin.i too have a kidney and a liver disease as well.it seems were all just full of fun stuff here aren't we? FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-27-2008, 12:06 PM   #11
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Re: Spastic bladder

Thanks Annette, Praise God it wasn't cancer.
God's a good God!
Cool your cathing worked out good for you!
You sound very upbeat & positive too.

(((HUGS)))

Kay


Quote:
it seems were all just full of fun stuff here aren't we? FB
lol funny gotta laugh to keep from crying

Thanks FB

what does all the initials stand for? real name?
so I can look them up


Thank

 
Old 02-28-2008, 07:26 AM   #12
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Re: Spastic bladder

Kay,

Any word on the Urine culture? I know you have an appt the 4th, but would think "IF" there was infection they would want to start antibiotics sooner?

God bless,
Annette

 
Old 02-28-2008, 01:24 PM   #13
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Re: Spastic bladder

Hi Annette,
No not yet. Cultures take several days.
Surely they'll start them as soon as they know.

Thanks for asking. I'll let you know.


Have a nice day,
ttyl, Kay

 
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