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Old 06-09-2008, 08:09 PM   #1
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Unhappy Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

I'm getting very confused as for the past week I'm doubled up after passing urine. Had v bad infection but GP says now clear. Do have Irritable bowel Syndrome so wondering if pressure is an issue, also have endometriosis waiting for probable hyserectomy and to remove any endo present. Problem is I've had the other conditions for years and used to what they feel like but this seems different.
I can go into retention so am used to catherising normally single use but found if I put an insitu cathether in the pain is greatly reduced.
Not sure what to do as if go to the hospital they normally bounce me between endometriosis and irritable bowel ward but the pain definitely happens after passing urine but it doesn't burn to go!
Going to have to do something as this is the 2nd in 3 nights I've got no sleep at all due to the pain but don't really want to be admitted as on loads of meds as also have v bad back and hosp don't like my levels of analgesia.
Reasonably ignorant re bladder did have full thickness endometriosis on there years ago which was stitched with the wrong stitches which then didn't dissolve and I spent 18 months with them floating round my bladder and irritating the lining but that was a long time ago. Thing is no1 has looked at it since so don't know whats the problem.
Pain is also made worse by eating so my I.B.S. tends to look like its involved so trying not eating at all with an insitu catether whilst trying to think what to do next.
Docs tend to ask me what I think it is as I have such complicated conditions. Any help would be greatly appreciated, I'm just going to have to go to a&e at this rate

 
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Old 06-11-2008, 08:52 AM   #2
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

I hear ya on those bladder spasms. I sometimes get them before peeing and after. I all comes down to having my colon clean in a certain area. If is a hard stool stuck in a certain area, it shuts off the ole pee'r. Yeowch!!!!! I've got a question for you. I have kinda scanned briefly though some of your other posts. Do you definitely have Chrone's disease? When someone says they have IBS it could be a variety of different kinds pertaining to this ailment. Also are you on a gluten free diet? That would be my first guess. Sooo many people are becoming allergic to Gluten these days, almost as bad as Dairy allergies. Write what diet really messes with you and which one seems to help.

I'm going to put you on my list for emails. And I'll try and read your other post. I've had these type of times with health, it's scary and no fun. Diana

 
Old 06-11-2008, 09:08 AM   #3
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

I've got a lazy colon with constipation always knocking on the door. Take 600mgs of Magnesium citrate and a good fiber powder every day for that. So like I said, if I don't keep the colon clean I can't urinate. I've had two surgeries at 35 and 36 for the same problem. Endometriosis growing on the outside of the uterus. Forming chocolate tumors the size of a volleyball. It grew back with in a year, the same size because I didn't have a total hysto. the first time around. Doc said the female organs were making it. I had major bowel trouble after the second surgery. Totally impacted colon, 4 enama's worth of rock....gross or what!lol. Totally caused a huge mess, ended up bleeding internally in the surgical site, couldn't empty my bladder. Oh what a mess I was in. And the pain was unbelievable, no meds were touching it. This bladder pain came after the bloodclot formed inside me, then they found the stopped up colon and figured that is what started the bleed to begin with. Believe me I've learned to have a good colon cleaning before any surgery! I had to wear a cath bag for two weeks strait about 7months after this mess! My bladder quit contracting and my colon muscles wouldn't work either. It's taken me years to get it right. I think I've finally got it now. So ask away, I may just have an idea or two for you. Hopefully you'll find the answers you seek. Diana

 
Old 06-11-2008, 12:54 PM   #4
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Quote:
Originally Posted by drs View Post
I hear ya on those bladder spasms. I sometimes get them before peeing and after. I all comes down to having my colon clean in a certain area. If is a hard stool stuck in a certain area, it shuts off the ole pee'r. Yeowch!!!!! I've got a question for you. I have kinda scanned briefly though some of your other posts. Do you definitely have Chrone's disease? When someone says they have IBS it could be a variety of different kinds pertaining to this ailment. Also are you on a gluten free diet? That would be my first guess. Sooo many people are becoming allergic to Gluten these days, almost as bad as Dairy allergies. Write what diet really messes with you and which one seems to help.

I'm going to put you on my list for emails. And I'll try and read your other post. I've had these type of times with health, it's scary and no fun. Diana
Wheat free seems to help, haven't tried diary free. Wheat can certianly make it worse when it plays up, they were debating whether I can colitis but thought overall it was mild colitis or I.B.S. didn't mention Chrones. Getting very confused given me more antibiotics on my 5th lot!!
Wondering about asking for referral to urologist if still in this much pain after second strong course of uti antibiotics will definitely if I'm not in hosp first that is. Really fed up as taking more and more morphine then having to struggle with meds to help constipation to not make ibs worse. Had first meal in 4 days! Bladder pain is terrible though coming through 40 mg mst 12 hrly and 20 mg 4 hrly plus paracetamol, dihydrcodeine and ibruprofen max dose. Really considering hosp if no better in couple of days.
Thanks for reply would welcome any advice
:-(

 
Old 06-12-2008, 04:05 AM   #5
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Hey I've got a recipe for your for bladder that may help, forgot I even had it.


BLADDER INFECTIONS:

Take two tablespoons of cinnamon powder and one teaspoon of honey(I'd mix this first the add to water) in a glass of lukewarm water and drink it. It destroys the germs in the bladder.

I have a whole list of things that honey and cinn. are suppose to be good for. Wouldn't hurt to try it I suppose huh?

I imagine that all your good bacteria you need to digest your food is gone now with all these antibiotic's, can you eat some yogurt or take something by mouth to replace your friendly bacteria to digest your foods? Or at least take a digestive enzyme of some kind.

If your noticing that wheat is messing with you then I bet anything with gluten is also a problem.

Like I said, when my colon wasn't working and I was stopped up, it really messed with my bladder something terrible! The only thing that gave me any relief is when I got that colon emptied first. I'd try that honey and cinn. It may help those antibiotic's work better at least.

Let us know if your going to go back into the hospital, I'm going to be gone this weekend but I'll be back on Monday. Hope you feel better really soon. Diana

 
Old 06-12-2008, 08:31 AM   #6
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Going to try your receipe. Sticking it out so far aas really don't want to go into hospital, better now I've got the cathether in but its definiteky not the answer, may go to docs tomorrow.
Thanks for all your help :-)

 
Old 06-13-2008, 02:34 AM   #7
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

It really sounds painful. I hope you get some relief soon! I'd try that recipe am and pm. But that's me. I know when I had a problem with something like this, it was miserable for sure. Keep in touch. Oh, one more thing to add, I would also get some magnesium citrate, take at least 400mg, if that doesn't help move the bowels I'd take more, for me and my sluggish colon I take 600mg's a day, you just have to find the right amount for you. It will maybe even help with the spasms in your bladder too. It relaxes muscles. Keep in touch. Diana

Last edited by drs; 06-13-2008 at 02:38 AM. Reason: added information

 
Old 06-15-2008, 03:53 AM   #8
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Hi Diana,
Good news been able to remove the catheter and pee on my own woohoo (its sad but I'm really chuffed) LOL I got in touch with my docs, they changed the antibiotics and these seem to be helping. I never want 2 go through that again. Still really uncomfortable but not agony like before. It was mainly you guys and a very understanding partner who got me through this. I take manevac for bowels which, touch wood seems to keep things reasnably under control but if I forget to take it, I remember the next morning believe me as the pain can be interesting!!
Woould appreciate any of your list of cinnamon and honey if u don't mind typing it.
Haven't tried it 4 my bladder sounds woosy but didn't feel up to it before will do today though.
Can now eat v small amounts so going to do the yoghurts and probiotic drinks. If I try to eat a normal meal I'm back in a lot of pain again.
Overall though things r on the up.
Hope u r ok, I'll keep u posted thanks again 4 the advice

 
Old 06-15-2008, 03:05 PM   #9
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Scraggy, I'm so glad your feeling like you may live! I do know that feeling. Boy do I.

Last edited by drs; 06-17-2008 at 05:45 PM.

 
Old 06-17-2008, 05:47 PM   #10
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Maybe you can just start out mixing a couple of Tablespoons of honey with the cinn. then add warm water. I bet a hint of lemon juice would be tasty too. Hope you continue to do well. Diana

 
Old 06-18-2008, 12:26 AM   #11
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Gone back down hill, now have catheter back in back to being painful when pee v. fed up
Suppose need to go back to the docs again! Already had 3 courses of antibiotics but they should have the results from the lab 2 so hopefully that'll show something.
:-(

 
Old 06-18-2008, 03:24 AM   #12
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Oh, Scraggy, I feel so bad for you. I sure hope they find out soon what is going on with you. Come here and let it all out if you need to. It does sound like you need to be in the hospital. If you do end up going in and getting some help, please let us know how your doing when you come back home too. Coz I know I'll be sitting here wondering and worrying. Your very blessed to have an understanding partner to be there for you. Please take care of yourself. Hopefully the doc's will figure out what the heck is going on. Diana

P.S. Magnesium prevents some antibiotics from working if taken close to dosing times. If you do take any, for one make sure it's a citrate. Number two, take it either two hours before or after your antibiotic. I just found this out myself, didn't want you to just start taking something without all the information. About 320mgs is the adult size dose. Just in case you were thinking of it. Also would need some calcium if your taking the Mag. Cit. Mag. can lower the calcium in the body.

Last edited by drs; 06-18-2008 at 04:02 AM. Reason: Adding on information.

 
Old 06-19-2008, 09:20 AM   #13
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Hi Diana,

Good news been to docs no infection. They've thought it may b bladder spasms, given me tablets, told me to take more morphine and insisted I took catheter out. Waited till now to take out as having bathroom done and not easy to have to run 2 loo with workmen here. As soon as took out got mid abdomen pain. Pain really bad, decreased some now as took another 10mg morphine as instructed but rung docs again 4 advice. Receptionist say go to a&e but don't want to do that if can be avoided as got pte appt with endo specialist in Birmingham on tues and if go into hosp now not likely to be out by then. If they opened me up and found endo, cov aren't likely to do much with it so things getting a bit complicated.
Docs said yesterday keep upping morphine to cope and try to go on tues as the specialist may have some ideas how to deal with this. Gr8 but its a long time till tues 1600hrs!
Concerned what if its something serious as haven't even been examined!
Can tell pain on lower rhs if press but pain central abdomen normally. Hope to goodness not appendix!!!
Will let u know how things pan out.
Thanks for continued support, you're a gem.

 
Old 06-19-2008, 09:26 AM   #14
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

Forgot to say, had allergy test results back, do have sensitivity to wheat as I thought but only moderate not high so think will have to keep buying stuff rather than get it on prescription! Gr8 the NHS at times.
Pain is calming a bit now, feeling slightly calmer which is probably relaxing muscles and so vicious circle broken. Not much fun though. Haven't even tried going to loo yet!!
Do appreciate an ear though
:-) x

 
Old 06-19-2008, 06:52 PM   #15
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Re: Help!VV bad pain in groin after emptying bladder,no sleep 2 of 3 nites

OMGsh Scraggy...how frightened you must be!

I wonder what the heck they will find?! If they are not detecting any kind of infection with a blood test then it doesn't sound like appendix does it? Wouldn't that show up as an infection? They must of done a blood test right?

I remember that painful time in the hospital I had when I couldn't pee at all, waited all night to see the doc in the morning and absolutely nothing would touch the pain. I'm sure your feeling similar to that. It was the worst of my life, worse than labor. My stomach was soooo distended, they had me on an IVdrip all night and I couldn't pee! I had to have some test done for internal bleeding on a surgery site after all this happened in the hospital, they made me hold my water before having a vaginal ultrasound and just holding it in my bladder put me in such a spasm that I couldn't get rid of it unless I bared down my hardest, broke blood vessels in my eyes and it was extremely painful. So like I said, I can relate to what kind of pain your in and do feel so badly that your having to go through all this.

I hope they have a miracle solution up their sleeve for you soon.

Do you have endometriosis?(spelling?) I'm trying to remember if you mentioned that in a post. A sister in law of mine had a bunch of scar tissue removed do endometriosis scar tissue growing like fingers in her abdomen and pulling and intertwining into her bowels. But I'm thinking her pain came and went not continuous like what your having.

Something is going on that is for sure! I can't imagine waiting to find out with the kind of intensity of pain your going through. How awful....

Have they done any testing of nutrients in your system? Not sure if that would cause massive spasms or not, maybe.

Please hang in there and know my thoughts are with you.
Diana

 
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