I hope you are coping ok. Sorry about that I replyed so late to your last message and truly I felt overwhelmed. See lately, I havent been in touch wi e-mails as I had diffrent issues to deal with and I tryied to meditate my way through it!!!
You are really a carismatic person. so much strenght, I can only admire and respect you still have enough compation to read others people problems and answer with such a pure heart. Your boys must be very proud of you and your family admiring this!!! I will meditate and ask god to make your way though all this!!! Good people atrtact good things.... life is a constant challenge. Peace and Love to you.
Now to be quite honest I keep on having invection through the catherising crap buisness and wait 4another course of antibiotic. I m tired of cranberry juice and citrucy fruits and the drinking drinking.... but cant manage it standing or sitting; only lying that s the annoying bit.
I am well cared I supposed by the team and I have to see how I do for a while and No Way I got the suprapubic tube back.... thats how I caugh up MRSA and at the time had a fistula liking in my hip that eaten the bone.... but I m still walking!!! maybe they want to fix me later about that but when ur infected in the bone you kinda F.... excuse my French (anyway I can cause I am! lol) I know its me having the issues about beeing ok with all that but you gave me the will to give it a go until something else might turned up. I cant do this for ever so I will do all they say and leave the rest to god. You know what? a great book gave me strength ... maybe you heard about it... Its called the Secret By RHONDA BYRNE. If you havent give it a go its heartlifting. you deserve a huge hug from me! thank you Annette
God bless you and your family
Fred from London
I was able to work a very physical job right up until I had the brain surgery last year. I was a route sales person and delivered product to stores and merchandised the product. I was able to lift 50-60 pounds over my head to down stack product in the warehouse as well despite being of small stature at 5' 2". Other than having to self cath I had no other physical limitations, so I was able to work full time. Then last year the muscle weakness was increasing and I was having a more difficult time with the physical aspects of my job. Plus I was dealing with balance problems as well and thats when I went to a major medical facility who finally diagnosed the muscle disease as well as the balance problems which was the reason for the brain surgery. I was not able to return to work after that. So prior to all the weakness and balance problems I was able to work full time for many years dispite having to self cath. Are you able to cath standing up? I cath sitting on the toilet just like I would pee normally and just threw the catheters away when I was done.
That was extreemly hard to deal with as I was a very independant single parent raising my boys and owned my own home. I have been on disability through work since June of last year and have since filed for social security. I have had to sell my house and had to move in with my parents. This certiantly wasn't in the "plan" for my life at this young age, but I can't change what has happened at this point, so I have to learn to be happy as I said with the things I can still do. I look at this as a temporary thing (meaning living with my parents) and believe I WILL be out on my own again soon. I know it's not easy Fred but you can do this. Is there a support group you can get involved with so you can talk about what your going through? I know for me it helped me work through all this to be able to share what I'm going through with others who can understand and have been through similar situations. Perhaps your counsler can recomend one near by you? And again If I were you I would speak to the urologists and see if there are any procedures may be able to help your situation. It's not easy Fred, but your a surviver for a reason, maybe someday YOU will be there to help someone deal with something similar to what your dealing with. You may find there are others out there that can use YOUR help and understanding, you just never know.
I do wish you all the best, and hope you find some comfort knowing your not alone, there are many of us out here that are in similar situations and its Do-able as I like to put it.
Take care Fred,
God bless, and stay strong.