I was just curious if any of you out there have experienced bladder problems related to your MS. In the last 3 weeks I have experienced on and off problems of having the urgency to constantly go to the bathroom, but not much comes out, and the burning sensation. I finally went to my family dr after a few sleepless nights to see if I had a bladder infection, it came back positive, he put me on an antibiotic and I thought the symptoms went away. He sent the culture out and it came back negative. I now frequently have the same feelings. I read on WebMD that 80% of people with MS experience bladder problems, I just wondered if anyone else experienced this.
HI Corine. I think youll get tons of responses to this all agreeing that its something at one time or another we have all experienced. I have more urgency problems then anything else....so far, no accidents- but its always on my mind.
I think it really comes and goes (like most MS stuff) and when it is happening, its more an annoyance then anything else. I also have increased my water intake, due to staying hydrated for my injections over the past two years...Ive found that off and on, too much water, is the culprit. You learn to deal with the frequency problems, however you really have to consider if there are ways to really push to empty your bladder completely so that urinary tract infections dont start....thats not fun. Try to really take the extra minute to be sure you are emptied completely...it takes some concentration and time, but youll learn to really be sure. Sometimes, I find that I have to "go" and then "go again" to be certain..but its worth the extra effort...
Relax and know you arent alone and this will pass when its time for somthing else to take over... MS symtoms never really last that long, and this too, wil pass
I know exactly how you feel. I have the urgency, then I stand (guess you'll figure out I'm a guy) at the toilet, leaning against the wall with my head on my arm and...nothing! Then I go back to bed, and within seconds the urgency is back, and maybe, if I wait long enough I'll eliminate a bit or maybe alot or maybe nothing...then its back to bed only to wake up a few hours later and get to go through it all again...sigh Now this doen't happen every night, but often enough.
Thank you all for responding! When I was diagnosed this summer I was told my case was mild, I wasn't really expecting this type of symptom. I guess with MS you can't "expect" anything. It just seems strange how it comes and goes, I notice it more when I haven't gotten enough sleep. Just more proof that we as MS people need to put ourselves first, if possible.
Same here! I'll sit there forever and nothing will happen. Then I'll go to bed, and two seconds later I have to go that minute. Sometimes it's hard to start peeing, and sometimes it feels like my bladder just isn't emptying. Thankfully, it comes and goes, and I haven't had a UTI yet!
Avonex started 11/07,
Stopped 4/10 due to no insurance.
I went through a crazy stage 9 months ago. I would go to the toilet just as i was getting up. I though i finished. I would have to sit down and go some more.
I went to a specialist. I had urodynalisis testing. that showed nothing. Apart from my bladder not emptying completely.He put me on Ditropan tablets, along with pelvis exercises. The problem has gone. I no longer take them. MS related proprely is what he said. He also suggested it could have been from childbirth too...
I had a relapse a while ago and was on steriods. After that all bladder problems stopped.
I no longer take Ditropan either. MS plays havoc with our bodies. I take it as it comes.
Hi I have urge incontinence caused by Ms. It has worsened over the past 8 years. I use Detrusatol tablets, for an unstable bladder and I still get lots of UTI's, I had 5 last year and 3 this year. I often have the feeling that I want to go to the loo, can't and then wet myself 10 mins later. I've had several bladder scans but they have shown no residual urine ????????
I have MS and have the urgency along with small amounts of output at a time. This is what is called neurogenic bladder, according to my doctor. I use Ditropan for this. It doesn't take it away, but it does help somewhat. Another thing that I have found to help is to sit a few more minutes after voiding and allow your sphincture to relax and then you will be able to go some more. Taking a deep breath and blowing it out with pursed lips may also help, as it takes your mind off the bladder and focuses on the breathing allowing the bladder to release the urine. Good luck.
I have horrible bladder probems that are getting worse. Everytime I move some urine leaks. If I've been sitting awhile and stand up, urine just rushes out. I wear adult diapers 24/7, but I can soak thru them pretty quickly, The only med that seems to work for me is DDVAP, a drug usually used for children w. bedwtting problems. Lets me sleep through the night, but when it wears off mid-day I pee every 1/2 hr or so. Tried putting in a permanent foley catheter, but it \was uncomfortable to use, so had it taken out. As soon as I pay off my curent bill w. he urologist, I'm going to have him do a differeewernt kind of catheter. With laproscopic techniques, they insert a thin tube right into the bladder, then attach it to an external catheter bag. Fewer UTIs, and I'll \be able to swim with it. Anyone have any experience with this procedure?
I've unfortunately suffered with bladder problems related to MS for at least 3 years. I had the inconsistency problems with urgency, frequency, etc. and experienced UTI's at least once a month. I started using ditropan to help control the urgency, but I was still very frequent...most noticeable at night when I was getting up several times (6-8x)...this alone plays havoc on your body...sleep deprivation is not a good thing. I had ultrasounds done to measure how much I was able to void and found out that I wasn't voiding all of the urine in my bladder which was causing the frequency as well as the UTI's. After several years of trying everything and as much as I was determine to avoid it, I started self catheterizing 1 year ago. After years of frustration it is one of the BEST choices I've ever made. I do this 2 times a day...in the morning when I wake up and before I go to bed at night (sometimes if I'm going to be going out where I might not have as much assess to a bathroom or I want to be able to sit through a movie and not have to get up, I might do it before I go to these activities as well). After suffering from UTI's almost every month, I am now happy to say I have only had 2 since starting with the self catheterization. Even though I still do wake up during the night to go to the washroom, the amount of times are cut in half. Occasionally I still get up frequently, but for the most part I go at least 4 hours before getting up and this might be the one and only time. On average I now get up probably 2x, which is a big difference from probably 6-8 times. This process also makes a big difference in my daily activities as well. I am able to go places and not always have to worry about whether or not I will have access to a bathroom every step of the way.
This may be something to consider if you are having problems with UTI's and frequency and nothing else seems to be working. It may be the best choice you have ever made as well.
Good luck with everything
Last edited by mod-anon; 11-23-2008 at 12:40 AM.
Reason: removed quote