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Old 01-27-2010, 02:10 PM   #1
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Rectal prolapse, rectocele, & bladder/vaginal cystoceles

To be blunt I am scared to death, physically drained, financially tapped and emotionally spent.

5 months ago, I asked to see a gastroenterologist when my PCP was unable to find an rx's to treat my constipation and severe bloating/abdominal pain. It took 2 months for the gastro specialist to get me in.

I told the gastro during my consult that I was sure I had either an obstruction or fecal impaction. He told me no, he was the specialist and it was just IBS (which I told him I had had for a decade and this was much more severe). But he said, I was wrong and instructed me to cut out dairy and take laxatives twice a day. We made a deal that if that did not work, he would do a colonoscopy/endoscopy 5 weeks later though he insisted it would not come to that because there was no possible way it was any more than simple IBS.

After 3 weeks of being unable to leave my bed due to immense pain, bloating and a complete inability to defecate, the gastro finally scheduled me for a 5 day sitz marker test. We got the results and 21 days after our original appointment (29 days after my last real bm) I was finally diagnosed with fecal impaction.

The impaction was then dealt with. However, a few days later, I had gone to urgent care and told an urgent care doctor that following the weeks of straining to have a bm, now I had something coming out of my rectum when I try to have a bm. I told them I looked on Google images and to me it appears to be a rectal prolapse. The doctor did an exam and told me it was internal hemorrhoids. I spent the next several weeks calling and emailing the specialist and my pcp telling them the creams were not helping the "hemorrhoid" it was only getting more painful and larger. They just kept insisting it was hemorrhoids. I should also mention, neither my PCP nor my Gastro ever gave me a rectal or vaginal exam at any point.

During that time, I also underwent a barium enema to insure the impaction was resolved in prep for the colonoscopy/endocopy/biopsies. Then those took place under general anesthesia following two weeks of a 3x a day enema and laxative regime to "clean me out". Both procedures were negative.

I was given a diagnosis of pelvic floor dysfuction and two weeks later my docs sent me for a cystodefecography.

At this point it is now 5 months after my original request to see a specialist, 5 months after I told the specialists receptionist that there was something obstructing the path of my rectum and my bodies ability to defecate, 2 months since I told the specialist the same as above and over 1 month since I specifically told the urgent care doctor it was a rectal prolapse.

But back to the cysto test. For those who haven't had it....check your pride at the door...you have to poo as they x-ray you doing it...two people are in the room on either side of you. But it is extremely effective and accurate. So I had it done...

Finally... an accurate diagnosis! I have a severe prolapse in my Bladder, Rectum and Vagina. The doctor who did the procedure said I have a rectocele and bladder and vaginal cystoceles.

I see a colorectal surgeon Thursday. My first priority is obviously to get this all fixed. At this rate, I cannot have a bm without an enema (which I have to do 3 times a day to avoid severe bloat and pain). But when I strain, I have prolapsing organs coming out of both my rectum and vagina. It hurts to have sex, it burns to urinate, and itís even uncomfortable to use a tampon.

I have tried to ask questions of my gastroenterologist, my ob/gyn and my pcp but I am just not getting any real answers. I almost feel like it has something to do with them taking so many months to diagnose things I told them I had months ago. But for now I just want info so I can make the right decisions to figure out which surgery(ies) to have. I am so afraid and so confused. I just feel like I am broken and none of my doctors are helping me. They all say to ask the other if I have questions.

But have any of you had similar problems? If so, can you give me info on what happened, how it happened, what they did to fix it and whether or not you are happy with the results. Sorry to be so wordy. I just don't know how else to describe the story. It's all been such a disaster.

Any help you can provide by way of your experiences would be greatly appreciated. I am truly very, very scared.

 
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Old 01-27-2010, 02:29 PM   #2
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

If you have had any of these procedures, what surgeries/treatments have you had for them? Where you happy with the results? How old where you when you had them? I am 36 and done having children.

 
Old 02-01-2010, 06:51 AM   #3
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

hi dont be scared they can operate and sort all of this for you.I had a rectal prolapse and prolapsed womb due to childbirth. My operation was in 2007 and i was only 35 .It is a big operation and you will be in hospital for 5 to 7 nights u will have a cathetar drain and epidural but all will be gone before you leave.After the op i couldnt go to toilet without using a suppositorie once a day that worked well for me for over a year but then stopped i had another prolapse but this time in my lower bowel.had another op last sept and now have no sensation and am reliant on laxatives which is not good.im seeing my consultant next week dreading what he going to suggest but cant live like this.as for the first op i considered it a success good luck dont let them fob you off anymore think your only option is surgery .

 
Old 02-01-2010, 08:27 AM   #4
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

I've also had surgery for rectocele, cystocele, enterocele, was only in the hospital 2 days and first week at home was on the couch. What is done and what your heal curve will be varies greatly for each indivdual. There are both surgical and non-surgical treatment options available; your best bet is to see a urogynecologist, this is THE specialist for pelvic floor disorders and they are well versed in all treatment options and will help guide you to make the choice that works best for you. I am extremely happy with the results of my surgical procedure; the heal curve is pretty long but the end result is well worth it.

 
Old 02-02-2010, 01:30 PM   #5
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

Well I saw a Colorectal Surgeon followed by a Urogynocologist last Thursday. I was told by the Colorectal Surgeon that I need but possibly a Sigmoid Resection. He said a Suture rectopexy was possible also but that the results would not likely be near as effective. He told me I also need a rectocele repair but that he will not be doing both the surgeries at the same time due to risk of infection.

I then met with the Urogynocologist who told me my uterus has prolapsed and is only 3 cm above the opening of my vagina (I know TMI...but hell, isn't it all????) Anyway, I guess I'd have known that except, he had to push the severely prolapsed bladder out of the way due to the cystocele. Aargh! I feel like I am 80. Anyway, he is doing a hysterectomy to fix it all.

So the surgeons are saying the surgery should be done together (which I asked for anyway). But they are now saying they cannot get me in until 4/22!!! That's almost 3 more months of 3x a day enemas, bloating cramping...etc, etc, etc. All I can do is cry when I think about it.

What surgeries did you guys have?

 
Old 02-02-2010, 07:16 PM   #6
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

I had surgery for cystocele, rectocele and enterocele; it was one surgery to fix all. 3 enemas a day seems insane, how on earth do you deal with it? I had extreme problems with constipation as well prior to surgery, no amount of fiber or water made a difference. I did stay away from enemas or laxatives since the body can get used to them and you end up with a boomerang effect. It's hard to imagine that they are going to make you wait that long for surgery, is this the only urogyn in your area? The urogyn I had did all of the repairs and that is the norm for POP issues fixed by urogyns; I'd question why 2 physicians. Also, why are they talking resection if the colonoscopy came back negative? If it was me, I think I'd get one more opinion from a different urogyn; especially if the two surgeons already involved work within the same group. I truly had no problems with the surgery itself (other than it is an uncomfortable heal curve, but considering the areas being worked on, that is to be expected), you might want to ask them what type of procedures they think they'll need to do and do some digging on-line. Are they going to use mesh? If so what type of mesh? (Some cause problems, my urogyn used an older tried and true type and again, I've had no problems.) Good luck, sounds like more questions need to be addressed prior to moving forward!

 
Old 02-04-2010, 09:23 PM   #7
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

Tell me about it. I feel like I spend my entire day on the floor of my bathroom (sorry for the visual). But it is really killing my morale. I have the same issue with constipation. Odd thing was, I never had it at all until last September. It came on like a freight train. In the last 5 months I have missed over 12 weeks of work over it. I keep getting impacted. Prior to finally being diagnosed with impactions, I would spend weeks in bed with doctors telling me to take this med or that. Nothing worked. I would take 3 stool softners at once. Fiber was a joke. It was excruciating (sp?) I had no intention of trying enemas or laxatives. But it was after I went 3 weeks with little more than a watery stool that the gastro finally sent me for testing. It was only after all the months of pain and 3 weeks of not being able to get out of bed that he finally told me what I had been saying for 3 weeks....I was impacted. So now I have to do all the enemas and such per my docs so that I don't impact again between now and my surgery. It's insane. Aren't you glad you asked??? lol.

There are 3 urgyno's at my medical group (Kaiser) but from what I understand the one I am seeing is by far the best. I did ask if they could change colorectal surgeons for the prolapse to see if I could get a quicker date. I also sent like 3 emails explaining why I needed it sooner. How much the gastro doctors neglect (he is also part of the group) and such has physically, emotionally and financially affected my life, and they finally came back with a date 3 weeks from now. I can stand it until then. I have been through it for this long right?

Honestly though, I feel like something really needs to be done. I feel like they ignore our needs and because we are not in the ICU, they disregard the pain. I literally cannot go to the bathroom at all without the enemas due to all this. I also have prolapses in my rectum and bladder due to all the straining. My reputation at work is ruined. I have missed so much work I am terribly behind on my bills. And my relationship....good grief. I don't care how sexy you are. No man wants a lady who can stop fixating on her poo. He's still with me...but geez you have to keep wondering just how long they can put up with all this.

They are using mesh. I am not sure what kind though. I see the surgeon again on the 10th. I will have to ask that. Thanks for the advice.

I really appreciate hearing your experience. It helps to know I'm not alone.

I had surgery for cystocele, rectocele and enterocele; it was one surgery to fix all. 3 enemas a day seems insane, how on earth do you deal with it? I had extreme problems with constipation as well prior to surgery, no amount of fiber or water made a difference. I did stay away from enemas or laxatives since the body can get used to them and you end up with a boomerang effect. It's hard to imagine that they are going to make you wait that long for surgery, is this the only urogyn in your area? The urogyn I had did all of the repairs and that is the norm for POP issues fixed by urogyns; I'd question why 2 physicians. Also, why are they talking resection if the colonoscopy came back negative? If it was me, I think I'd get one more opinion from a different urogyn; especially if the two surgeons already involved work within the same group. I truly had no problems with the surgery itself (other than it is an uncomfortable heal curve, but considering the areas being worked on, that is to be expected), you might want to ask them what type of procedures they think they'll need to do and do some digging on-line. Are they going to use mesh? If so what type of mesh? (Some cause problems, my urogyn used an older tried and true type and again, I've had no problems.) Good luck, sounds like more questions need to be addressed prior to moving forward!

 
Old 02-06-2010, 03:02 PM   #8
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

Holy moly, what a mess. Do they have any idea what is causing the impacting? I'd sure want to know the cause so I knew that I wouldn't have the same problem re-occur down the road. I hope you can take a little comfort in knowing that I hear other women echo what you are saying all the time as far as the impact to physical/emotional, financia/sexual stuff-the POP issues roll to all aspects of our lives, and truly do impact our relationships because of it. Good luck, grill those drs until they give you all the answer you need. I find it hard to imagine why there isn't at least an NP in the practice getting back to you with some info.

 
Old 02-12-2010, 12:36 AM   #9
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

They aren't sure what is causing the impacting. My guess is the stool is getting trapped in the rectocele or that the rectocele and cystoceles or hitting each other and that combined with the prolapses is just making it impossible to pass anything. All I know is I am either bloated or in hella pain most of the time.

It has been nice having someone who understands to bounce this off to. Thanks for your responses. I really appreciate it. I have my preop tomorrow. Then my final appt with the urogyno on the 17th. Hopefully I will know more then. Right now I have SO many questions.

I am having a hysterectomy and the mesh repair but also the resection. I truly have NO clue what to expect post-op.

 
Old 02-13-2010, 06:27 AM   #10
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

No problem on the connect, any insight I can give you I'm delighted to share.

This is a rough surgery to go through but you will feel so much better after it's done and you've healed up a bit. (First week is the roughest.) Good luck with surgery! Most important thing to know is you truly need to behave yourself after surgery, no lifting anything heavy until the dr releases you-you want to be healed up completely b/4 lifting so you don't undo any repairs.

Last edited by moderator2; 02-18-2010 at 09:34 AM. Reason: please read the FAQs to know how to use the messaging features in the member profiles

 
Old 03-01-2010, 04:29 PM   #11
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

Hun I know all u are saying and then some. I went through it all I had the first Gastro that was alot like yours.He did do colonoscopies but that was it I even told his nurse I need help with what I thought to was hemorrhoids or whatever that was hanging out my bottom to be told he didn't do that.I was like what??

I was fortunate to have a wonderful Ob/gyn who went above and beyond her area and helped me find a woman Gastro and she started the very hard process of finding out what my issue where as the first one other than the colonoscopies never even look at me,When i would go into him and complain about the terrible pain he.Would be like oh u just have IBS and we will give u this cream and then it was I had a tear in my rectum so then it was lets give u this nitro cream my god talk about no relief and a sever headache.And then it was i am going to seen you to someone else to cut your rectum so it will be able to heal probably.But still he didn't look at me at all still.So when my ob/gyn was told of all this she was like what and she started to call the one I have now and got me in almost a week later. When I saw her she and her staff where in awe of my bottom and how it was they where saying we are so sorry and trying to do all they could to help me have relief right then.

She has since seen me and heal a fiscal and even a hemorrhoid banding and now with the fact i still had the constipation and all she has not done the test to find out that I do have Rectocle and we are now working on what i need to do for surgery.As I did have the vaginal issue earlier but I also had Endometriosis that did cause alot of my issue I recover very well from that has I said have awesome ob/gyn.All I can say hun is don't stop fighting the system and by all means know there is those out there that do care and will help you .It is just a case of being able to find them.I know I would not be having the relief I have now or much less the relief I know is to come if I had not be like I want another opinion and I do want some one else. To look at me and not to be against men at all as i have 3 doctors that are men that are awesome.But the two women I have had been great and I would say if u can find a woman or a man that specialist in woman's Gasto issue that will help as we do have alot more down there than the males so it does make a difference.AS I never really knew till I was told and got a woman specialist.

One thing that has helped me most has been Amtiza and Myralax as I never got any relief with enemas.So they don't even do them on me anymore.I do those with stool softer twice a day with plum smart juice and lots of fruit and still sometimes as you know the bm don't come or u wish in someways they didn't.As I have been known to faint from them.But know there is relief out there and you don't have to live your life in pain or in bed.Give me a shout if you want to share or just need to chat some more.As it does help to know we are not alone.

As i didn't know about none of this till I started to have to face it.

Take care and Hold on you will get the help you need I just know it.

Last edited by moderator2; 03-01-2010 at 04:33 PM. Reason: please try using the quick reply button instead of the quote reply button so that you are not leaving huge quotes in here

 
Old 05-29-2010, 10:15 AM   #12
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

Hi-I am new to this forum, however, I was just scanning through some of the posts...I will post again in more detail at some point-for now, I would just like to say "fear" is the worst thing to fall into with all of this-Im not indicating that it is not important to "grieve" yr struggles, grieve the losses&sacrafice that may come along as a result of your physical health, but if you permit fear to overtake you, then you will not be able to focus on the true bigger picture in life and the options that you do have available for you-As for myself, I praise God that I'm even able to have medical options available-that I live in a free country and at the very least, when I am in excrutiating pain I acknowldge my pain but try my best not to permit fear to enter in...it is very debilitating..(Ive endured a lot-but in comparison to someone who has been burned, paralyzed with broken bones laying on a dirt floor in a poverty stricken country..I suppose my pain would be considered minimal...)Best wishes for your surgery.

 
Old 08-29-2010, 09:57 AM   #13
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

Hope this helps. I too went though a similar experience and years of not be able to have bms. After 10 years of doctors, I found that the old Milk of Magnesisi is a wonder drug. It liquidfys the fetal material when extremely consipated. I take 3 tbs every 3-4 days and my life has changed. I have had prescribition meds, fiber pills, mirlax and many laxatives and daily enema's. Nothing worked.
I hope you get this repaired. This simply laxitive is not harsh and has changed my life.
The blockage prevents the movement and then you get impacted. This will break down the impaction or liquily it so you can pass it. Hope this helps as I know what 14 days without a movement feels like.

 
Old 12-12-2010, 09:10 AM   #14
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Re: Rectal prolapse, rectocele, & bladder/vaginal cystoceles

I had surgery for rectal prolapse, too. I also had a Sigmoid Resection. It's been about a year and I'm thrilled with the results. As with sjpPOP, I was only in the hospital for 2 nights and spent a week on the couch at home. In the hospital I really only needed morphine for one day and I didn't take any pain meds at home. The hard part for me was that it took my system a while to get back to, basically, a NEW normal. Also, I was exhausted a lot in the beginning. I followed the advice of the people on this board and really only ate bland foods for about a month, then slowly started to integrate other foods. Now I can eat anything I want. I have to say, this surgery really changed my life for the better and I'm so happy I did it.

 
Old 01-05-2011, 09:36 AM   #15
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just had cystocele,rectocele repair & TVT

Does anyone know if it's normal to still be bleeding 9 days post op from rectocele,cystocele repair and TVT? also I'm still in moderate discomfort and wondering how long to expect to take off work. I'm a lunch lady at school. Was told I will never be able to lift over 10 lbs., and my uterus is slipping also and will likely be bulging from my vagina next, not my bladder. Help! what should I do? Any advice is appreciated. I am mostly on the couch or in bed, but feel like I'm healing slowly.

 
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