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Old 08-28-2011, 04:37 PM   #1
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Stage 3c bowel cancer

This is my 1st post have to say not on the best subject!!

Had the right side of my bowel removed nearly 4 weeks ago after a fairly acute 4 weeks of stomach pain and on/off vomiting. Thought it was a virus.

It was however a cancerous tumour. Have been told 19 out of 32 lymph nodes are infected and also the blood vessels in the area. Numerous lesions have been found on my liver and, although they think they are harmless, have recommended MRI and possibly PET (?) scans as a precaution.

Am meeting my oncologist tomorrow for the first time and don't really know what to expect. My GP has said I'm looking at an aggressive chemo region as it's fairly advanced.

I'm 47, which isn't old in bowel cancer terms I understand and have 4 kids under 12. Any advice? I know survival rates don't look that great, 28-44% is what I've found. I know I'm not gonna give in, or up, without a hell of a fight but am really scared whilst trying to stay massively positive for my girls.

 
Old 08-28-2011, 05:54 PM   #2
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Re: Stage 3c bowel cancer

it is a lot to take in all at once and very scary. I was younger than you with: colon, liver, lymph nodes. After all the surgeries, i also had aggressive chemo then aggressive radiation therapies. it is NOT fun. Actually, it sucks. BUT....it can work. i'm one of the very lucky few - 15 years clear. My advice: 1) tell the kids the truth. not ALL of the truth but they are going to see daddy go thru a lot. Be careful with 'Dad's sick'. Kids know they also get 'sick'. 2) Find someone that you can really share all your fears with. surprisingly, this is often NOT a family member. As you said, you want to stay positive. However, we all need a place to let the scary stuff out, too. 3) let people help you and your family. (this was the most difficult for my husband and i). Laundry, mowing grass, cooking, cleaning, etc. Let them! 4) Make your HR / Insurance person you best friend. 5) prepare for the worst and pray for the best.

 
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Old 08-29-2011, 03:42 AM   #3
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Re: Stage 3c bowel cancer

Thank you FavoriteAuntL, told the children at the weekend, well as much as they need to know at this stage and as honestly as I could. Probably the worst thing I have ever had to do!
Have a great support system around me, probably didn't realise how good until this happened. Friends are rallying round already even before chemo starts making sure I'm rested and strong for when chemo does start.

Its great to hear from someone else though who has gone through this and come out the other side. I am going to stay positive and please God I will also be one of the lucky ones. Thanks again

 
Old 08-29-2011, 05:20 AM   #4
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Re: Stage 3c bowel cancer

I have no experience with this I just wanted to say I am thinking of you and praying for you. I wish you nothing but the best!

 
Old 08-29-2011, 01:30 PM   #5
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Re: Stage 3c bowel cancer

Thank you. You can't know how much prayers and support mean at a time like this. Just been told today, at first hospital appointment with oncologist, that they did not get all the cancer when they removed the tumour. Like being drip fed bits of horrendous information. MRI to clear liver but no doubt, even if liver clear, that there are cancer seeds lying in wait somewhere.

Will find out next week results of MRI and what my chemo regime will be. If liver affected will have to have a port inserted. Anyone any thoughts on, comments about or experience of that?

 
Old 08-29-2011, 01:31 PM   #6
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Re: Stage 3c bowel cancer

Thank you. You can't know how much prayers and support mean at a time like this. Just been told today, at first hospital appointment with oncologist, that they did not get all the cancer when they removed the tumour. Like being drip fed bits of horrendous information. MRI to clear liver but no doubt, even if liver clear, that there are cancer seeds lying in wait somewhere.

Will find out next week results of MRI and what my chemo regime will be. If liver affected will have to have a port inserted. Anyone any thoughts on, comments about or experience of that?

 
Old 08-29-2011, 05:22 PM   #7
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Re: Stage 3c bowel cancer

Do you mean a portacath? I highly recommend you get one. It makes the chemo easier since they don't have to put in an IV each time. If you mean something directly into your liver; i cannot help you. they removed half of mine, then general chemo. BTW: i learned the hard way, it is ok to get mad at God. He can take it. I lost a lot from cancer, including the ability to have kids or be a parent thru adoption. I was very angry at God for a long long time. I pray you have more grace than i did.

 
Old 08-30-2011, 12:50 AM   #8
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Re: Stage 3c bowel cancer

I would come and go with the whole religion think if I'm quite honest. I'm blessed in that I already have my 4 girls, my heart goes out to you. I can only imagine how you must have felt. Think they were talking about the portacath but depends on whether its hit the liver or not. Fingers crossed its not. Tablets at home and iv chemo once every three weeks for 6 months if not. I can and will cope with that, don't have much choice really. We're all looking to the positive and trying not to dwell too much on what might happen down the line. Gonna take one day at a time and pray I have lots of them. I'm more concerned at the moment about the girls and the effect this is having on them. The eldest has just started secondary school and the other 3 will be back in primary on Thursday. Could have a few problems with one of them as she's taken it very hard and I have a feeling she might not want to go to school and leave me at home. I'm getting a lift in with them all so hopefully we might ease through the first day in. More fingers crossed (seem to be doing a lot of that at the moment!!).

 
Old 09-03-2011, 09:04 AM   #9
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Re: Stage 3c bowel cancer

so how did the first days of school go? any results from your MRI?

 
Old 09-05-2011, 08:59 AM   #10
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Re: Stage 3c bowel cancer

School went fine thankfully, probably me worrying more than necessary at this stage. Got appointment for Wednesday for CT scan not MRI. Won't know until I go see the consultant on Thursday what the verdict is. They scanning chest, abdomen and pelvis. I'm keeping everything crossed and staying positive for a good result. If not then I will deal with that when I find out.

 
Old 09-12-2011, 02:20 PM   #11
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Re: Stage 3c bowel cancer

Have had all clear on chest, abdomen and pelvis CT scan, plus ultrasound just on liver. Starting 8 three week cycles of Oxaliplatin and capecitabine chemo Wednesday. Infusion first then 2 weeks of tablets starting Thursday. Have 6 days off before the whole thing starts again.
Has anyone out there been on the same regime and if so how did you cope? I've been told the main side effect is diarrhoea but they've told me about a fair few others as well, none of them particularly pleasant!

 
Old 09-19-2011, 06:45 PM   #12
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Re: Stage 3c bowel cancer

I now see you had two posts and I replied to the other one. Glad you have a good support system.
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Husband dx July 2003, advanced rectal cancer stage 111C; myself dx July 2006 indolent lymphoma; husband dx February 2010, stage 2 prostate cancer.

 
Old 09-29-2011, 03:58 PM   #13
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Re: Stage 3c bowel cancer

Have finished 1st cycle of chemo but have now been told they won't do the infusion on the next cycle as I had too severe a reaction to it. They worried I'll go into a full blown allergic reaction apparently. Any advice anyone? I'm going in to see the consultant to try and get him to reconsider. I don't care if the reaction is not great, as far as I'm concerned I need that infusion so give it to me damn it!!!
One doctor told me there was nothing else if they didn't do the infusion but the tablets were the main treatment anyway. Nurse specialist told me the consultant could decide to give me something else. I am confused.

 
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