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Old 10-07-2012, 11:32 AM   #1
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Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigue

I'm at a loss & thought I'd post here to see if anyone has any ideas...
Almost 14 yrs ago I was hit with fatigue then a month later derealization which makes me feel like everything is foggy, like living in a dream 24/7. Also my body felt heavy, sore, tired. I've had many probs over the years but those were the worst. Then 3 yrs ago it started getting worst. Pain set in. My whole body always hurts. I rely on meds to take the edge off, but always hurt. Always exhausted. I've been diagnosed & treated for fibromyalgia. I don't deny having it, makes sense. But I don't understand why I have derealization. I've been diagnosed with PTSD but I don't think that's it. Over the yrs pain only gets worst. It's hard to do anything these days. I also deal with allot of nausea. I go through spells, especially this time of year, where nausea is worst. I get migrain like headaches often. I seem to always have a mild headache/head pressure. I vomit with or without the headache. Sometimes only once or a few times. Usually like the other day... I will throw up for 12-15 hrs, can't keep anything down so I know I get really dehydrated & allot of stomache acid... I always say I'll go to the ER if I'm still vomiting by morning & I always stop by then. I usually blaim it on pain but I have been doing really well managing my pain, taking meds regularly...
I had an MRI to test for ms 2 yrs ago. If there was a tumor or anything they would have seen it right? I know I have some kind of cyst by my nose but the dr I spoke to brushed it off as nothing.
Any ideas?
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 11-26-2012, 11:17 AM   #2
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

I remembered last night... 2 yrs ago my MRI showed a Sinus Cyst. Doctors weren't worried about it.

Problems are getting worst. Vomiting is pretty regular. Had to go to Urgent Care the other day to stop the vomiting. Headache was severe which is common. It's been 5 days & headache is mild. I don't think it ever really goes away. Always have head pressure.

I'm wondering if the Cyst/Polyp is causing the headaches & vomiting. I'm worried it may actually be a tumor. I read that if its a tumor cancer can spread and cause neck pain. I have such severe neck pain, always hurts. My whole body always hurts, mostly muscles & joints but that could just be the fibro...

I guess I'm just trying to see if I should have more tests done on this Polyp/Cyst? I hate to run up more doctor bills unless it really could be the cause of my problems.

Severe Pain, Fatigue, Headaches & Vomiting are my worst symptoms & running my life.
It's so bad that I'm afraid I'm just slowly dying. I know I probably sound like a hypochondriac but its really bad...
I recently had an abdominal ultrasound & GI ultrasound, both normal.
I worry now thy maybe they aren't figuring out what's going on because they overlooked the Cyst & maybe it's really a tumor & spreading...
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
Old 11-28-2012, 03:40 PM   #3
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

I'm having pretty much every symptom you are , but add loss of hearing twice has returned . Loss of strength in left arm . Any idea on what you have or had ?

Last edited by mod85; 11-29-2012 at 02:08 AM.

 
Old 11-28-2012, 07:13 PM   #4
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

I've had my hearing checked & said it was fine. I explained that people always sound muffled & have to have them repeat what they say or rewind the tv allot because I don't understand what was said. I love closed captions! So no loss of hearig but the dr said my brain probably wasn't processing correctly... Do you have that?
I have loss of muscle also. Along with pain my muscles feel week. Can't handle much. No repetition... Mostly noticable in arms & legs.
These can be Fibro related...
Do you have Pain? Fatigue? Derealization? Vomiting? Headaches?

I have an appt with my primary Friday... 3rd appt in 4 weeks...
I'm going to ask to have the cyst removed & I want a biopsy to make sure it's not a tumor. I'm thinking about asking for another MRI of my brain and neck since I have so much head pressure, headaches, & neck pain in the worst. I want to make sure there is no cancer or tumors.. I've never talked about cancer or tumors to my doctors because I don't want to be labeled as a hypochondriac. But since I'm getting no where & feel like whatever is going on is slowly killing me, it's time I make sure they check!

What are all your symptoms? What tests have you had done? Diagnosis?
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
Old 11-28-2012, 07:28 PM   #5
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

So far i have had , Xray , MRI that showed a 2mm aneurysm and a 6.7 cystic lesion . They then ran a CTA to confirm the 2mm aneurysm and it wasn't there , thank the heavens . I am going in for a EMG wednesday next week . And then a Spinal Tap later if they find something with the EMG .

As for symptoms , I have Extreme nausea , headaches mild more like pressure in the skull on top and behind the head . That started first . Now im getting warm flush feelings in my chest , abdomen and left testicle . Also have Lost hearing twice for a few seconds . But i do have loss of arm strength started a week ago has gotten worse and has not got better . Now legs are starting to feel funny . I also have alot of trouble with the walking a strate line test .

Hopefully ill get some answers on Wednesday . MRI/MRA was all good accept for the lesion and aneurysm that was a glitch . Also had xray of neck . No problems there .

 
Old 11-28-2012, 07:36 PM   #6
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

I also forgot to add , i have CFS and Fibro . And my doctors at Mass General Hospital said it was nothing to do with eith of those . More or less all Neurological . So don't let your doctor or doctors blame CFS or Fibro .

 
Old 11-28-2012, 08:32 PM   #7
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

Thank You, I agree My Rhum has blaimed fibro for everything & but a poor listener. I found a better one just so far to drive... Atleast he's good at refilling my prescriptions...
I have been seeing a primary who's been trying to help figure it out. I think she's frustraited because she can't figure it out... She used to work in the fibro dept at OSHU... But one prob I have is I've complained about so many symptoms for so long that things like constant headaches I'm so used to having in don't think to complain about it... I don't think she's taking all of my problems into concideration...

I don't usually recommend Nuerologists... I haven't been happy with the two I've seen. However, I think you should see one that specializes in MS...
My husbands friend has fibro & ms. I've talked to him & my problems are so much like his, even the derealization, he thinks I have it. But my MRI 2 yrs ago showed no lesions. Things have gotten allot worst since then though...
I once read that headaches & vomiting can occurs when lesions are forming. Not sure how true it is but found it interesting...

I also have extremely bad memory. It's been to the point where I have no recollection of things that happend just a min before hand... Conversations I don't remember, ect. I had a EEG I believe it's called where they check for seizures & it was fine... You have that?

Have you had testing for Lyme? Mine have been negative. But I am looking at geting into a naturalpath for a whole Lyme screening. Just have to come up with the $600 to do it... I think I'll get another MRI & look at getting this sinus cyst removed first...

Anyhow, the things that I think could be going on with me is... Nasal cyst causing me probs, nasal cyst possibly a tumor which worries me because if that's the case the severe neck pain could be cancer spreading... My Sjogrens tests was negative but I'd like to get a lip biopsy since its more accurate... You should look into Sjogrens if you have dry eyes & mouth... Also causes pain, fatigue, ect... I also think possible ms... Then possible Lyme...

I've spent almost 14 yrs now trying to figure out what's going on. I think my fibro started 3 yrs ago & whatever has been going information 14 yrs still has not be diagnosed...
I've tried so many diets, supplements, ect... Tested for everything & many of those over & over... Makes you wonder what is wrong with the healthcare... Doctors are supposed to want to help but so few actually do...

Anyhow, please look into Lyme, Sjogrens, MS... Have any of the doctors talked to you about MS?
There is a wonderful Fibromyalgia here! Everyone is wondeful! Have you went on there?

I also have a hard time with walking a strait line. I used to have such good balance... Not anymore... I'm very clumsy... Lose my footing allot & tend to drop stuff a lot...

One thing that happened a few yrs ago... I was standing up and felt/hear a "pop". I felt like I was about to pass out & everything was goig black. Luckily there was a chair behind me & caught myself. Didn't pass out & started doig better. But scarred that crap out of me. That was around the same time things started getting worst... I figured I'm still alive so never worried about it but was still scary. Have you ever had something like that happen?

Anyhow, I'm really curious about your lesion... What did the drs say about it? Lesions are a sign of ms... Really sounds like a possibility...
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
The following user gives a hug of support to thefarm:
thysis (11-28-2012)
Old 11-28-2012, 11:07 PM   #8
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

I also have a cystic leasion on the nasal pharynx or something like that . Benighn so they say . Called it a Thornwaldts cyst . But the Infectiousnous disease specialist in Boston i see said that its very doubtful it was causing any issues , 6.7 mm is small she said . Had a lyme test 3 days ago and it was negative . Although my Lipase and amylase had been up or were flaged on the blood work . But no sighn of pancreatitus . So im curious on whats making them jump around . I guess the EMG i have on wednesday will tell if i have MS possibilities . If they find MS they will run a spinal tap to confirm it . Doctors here in Massachusetts are pretty awesome . And the ones in Boston Massachusetts will run anything i want . You don't have insurence ? Or like a health plan for low income or disability insurence ? Have you tried to apply for disabilty ? I myself am on disability for my CFS ? It was so bad at one point that diagnosed me with cancer ? And told me i have 3 months to live . I was 16 at the time . But it was a looped bowel and the dye had formed around the pancreas to look like a mass . I have been threw so many tests it scary .
I hope they find out our issues soon . I will definetly keep you posted on my situation .

Last edited by mod85; 11-29-2012 at 02:08 AM.

 
Old 11-29-2012, 01:11 AM   #9
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

I couldnt imagine being told that at 16! That had to of been tough!
I have insurance through my husband work... Naturalpaths don't take insurance & the Lyme tests they run are expensive... The ones reg doctors run aren't very reliable. There is a movie called "under our skin". It's a documentary about Lyme & you should really watch it I watch it on a movie site, not aloud to post the name of the site but its very well known... But it would be really good for you to watch the movie!

I applied for SSDI in 2011... In the 3rd phase waiting to see a judge. Very frustraiting...
Fatigue & Derealization were horrible for 11 yrs. But I pushed through it... Told myself that it could be worst & delt with it... Then it got worst... Pain set in & only gets worst, fatigue has only gotten worst, vomiting... Before I was always busy. Felt like if I stopped I couldn't get going again... Always on a mission to accomplish stuff... Raising farm & game birds which I loved. But had to give it up. Even now I'm still getting rid of birds. Been hard letting it all go. First time in my life since I was 10 that I didn't earn $. But all I can do is hope to get SSDI soon... We also have 4 kids & being sick makes it hard to be the parent you wanna be. Luckily most of them are older & helpful

I haven't had a spinal tap... I've wondered if I should ask for one... I've had ebidurals while in labor & the last one was so painful... If you get one me know how it goes...
Hopefully they'll make a breakthrough for you soon!

With the bloodwork, I'm not familiar with it. But please do so reasearching & make them stay on top of it! Maybe there's something they are missing there...
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
The Following User Says Thank You to thefarm For This Useful Post:
thysis (11-29-2012)
Old 11-29-2012, 02:27 AM   #10
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Re: Headaches, pressure, derealization, nausea, vomiting, muscle & joint pain, fatigu

Quote:
Originally Posted by thefarm View Post
I couldnt imagine being told that at 16! That had to of been tough!
I have insurance through my husband work... Naturalpaths don't take insurance & the Lyme tests they run are expensive... The ones reg doctors run aren't very reliable. There is a movie called "under our skin". It's a documentary about Lyme & you should really watch it I watch it on a movie site, not aloud to post the name of the site but its very well known... But it would be really good for you to watch the movie!

I applied for SSDI in 2011... In the 3rd phase waiting to see a judge. Very frustraiting...
Fatigue & Derealization were horrible for 11 yrs. But I pushed through it... Told myself that it could be worst & delt with it... Then it got worst... Pain set in & only gets worst, fatigue has only gotten worst, vomiting... Before I was always busy. Felt like if I stopped I couldn't get going again... Always on a mission to accomplish stuff... Raising farm & game birds which I loved. But had to give it up. Even now I'm still getting rid of birds. Been hard letting it all go. First time in my life since I was 10 that I didn't earn $. But all I can do is hope to get SSDI soon... We also have 4 kids & being sick makes it hard to be the parent you wanna be. Luckily most of them are older & helpful

I haven't had a spinal tap... I've wondered if I should ask for one... I've had ebidurals while in labor & the last one was so painful... If you get one me know how it goes...
Hopefully they'll make a breakthrough for you soon!

With the bloodwork, I'm not familiar with it. But please do so reasearching & make them stay on top of it! Maybe there's something they are missing there...
I definetly will . And ill keep you in my thoughts and prayers . I hope you feel better soon . And thanks for all the info . Will keep you posted . And please do the same for me .

Ps Steve

 
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