Kalie

Wow. Thank you so much for thinking of me. I never expected to see a post like this -- you all made me smile. Thanks so much for the positive energy -- you're all so kind. I haven't really been logging on b/c I haven't felt like talking much. We've been going through a bit of a rough time, b/c nothing seems to be workig for me. Every time there's a new met somewhere, and now my calcium is high which may be an indication of new bone mets, but we'll see.

I'm doing ok. Physically, I still have the back pain from my lesions there, but as long as I take my Oxycontins on time I do well with it. I have a CT scan on 03.24 so I'll have a better idea of my progress or lack of at that point. Since I've been resistant to chemo, I'm now in a Phase I clinical trial; pretty exciting, but also kind of scary. I'm not doing as well as the other people in the study in that I can't take the high doses that they do. My white blood cell count crashes. I think it's b/c I'm just so much smaller -- I'm 5'5" and 112lbs. Unfortunately, the drug has proven to be inneffective so far in lower doses. I always have to be different!

B/c I have mets in so many places I'm not a candidate for radiation or surgery -- just have to find a systemic treatment that will work.

If this trial doesn't work, I still have some options with different chemo drugs and my husband has been researching new treatments overseas. That's the one thing I stress to everyone going through this...don't depend on your Dr for all the information, be your own researcher, your own advocate.

Thank you so much for reaching out. It means the world to me.

Dizzyone, wimzie and suggie, how are you doing?

-Kalie