Paget's Disease - Cancer: Breast Message Board

ABGIRL · 12-06-2006, 08:12 PM

To make a very long story short...I have had some sort of sore on my breast for about 2 or 3 months now. At first I thought it was weird that I had a "zit" on my breast, so I just ignored it. After a few weeks it didnt go away, then I noticed that the sore started scabbing over and itched like CRAZY....I thought..okay this is definatley strange. I called one of my friends (since she is a nurse AND that's just what we girls do) and asked her what in the heck it could be...She told me I should see a doctor soon to be sure its not Pagets Disease. I thought to myself...okay whatever- It can't be that bad. I basically put it off for a while. I know I know....what was I thinking???? So I finally made a doctors appointment and I saw him yesterday afternoon. I have really been fine up until this point. The doctor was really great, but I was really thinking/hoping that he would tell me it was nothing and to go home and not worry about it. then make a quick stop to Target and invest in some zit creme or maybe even that Proactive zit crap that Jessica Simpson keeps raving about. Instead I was laying in a very cold room with crunchy tissue paper under me with JUST pants and NO shirt, freezing to death while he performed a biopsy. Oh yeah, I have to get a Mammogram and an Ultrasound in a few weeks as well. I know this is all a good thing and he is being thourough, but the part that scares me to death is that he is ordering all those tests and he didnt really tell me any good news but not any bad new either. It just seems like doctors are quick to tell you when nothing is wrong, but they clam up with something is. Does anyone out there relate to what I'm saying? or has Pagets Disease?? Bascially, Every symtom listed for Paget's..I have. Thanks

Just trying to shed some light on this- I really don't mean to ramble....like I said just trying to vent I guess...

dnksmom32 · 12-07-2006, 12:32 PM

I'm right there with you. I posted but no one answered - a little freaked out and SO good to talk to someone who's going through the same thing. Ijust had a nipple biopsy done yesterday to rule out Paget's disease. I should know the results by the end of the day. It's crazy and scary - huh? I already had the mammogram and ultrasound but they couldn't tell much - except there was a little bit of change behind my nipple and a small cyst. BE HAPPY - you have a proactive doctor. Everything I've read says this is the number 1 misdiagnosed disease because so many people put it off to thinking it's eczema and then it spreads...so at least you'll know for sure. So was your biopsy on your nipple? Mine is still bleeding. Not sure why that is. Good luck and I'd really like to chat more.

ABGIRL · 12-07-2006, 08:29 PM

Yeah, It is very scary...I'm not sure what to think. For whatever reason my doctor said it was going to take 7 to 10 days for the results to come back. And on top of that my doctor wants to wait until I have my mammogram and ultrasound to talk about what the results are. So needless to say I'm really nervous. I read up a little on what the the internet had to say about Pagets. I dont care how invasive it is or isnt...It scares the crap out of me to think that I might have cancer!! You are absolutely right...I am very lucky to have a doctor who is not taking any chances...Maybe he has seen it before?? Who knows?? In either case I'm really happy to be getting some answers. I was amazed how much I bled when I got my biopsy, but my doctor said it was normal to bleed a bit. I guess time will tell. I hope all goes well with you

Let me know what the biopsy results are. thanks I would like to keep in touch too

dnksmom32 · 12-08-2006, 07:14 AM

I got my results - it is benign - THANK GOD! I'm hoping you get the same exact results. I do have to go on to another doctor because there is something in the tissue but it's not cancerous. I honestly couldn't repeat what the doctor said. Lots of big words and I was just panicing in my head, Ok, she said benign. Is that good or bad???? My brain was overloaded. I'm not opting out of the thread just because mine came back good. I want to hear how your results turn out. Good luck and I'll be thinking about you.