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Cancer: Cervical & Ovarian Message Board

Trying not to worry ...


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Old 07-13-2017, 10:18 AM   #1
NSGirl40
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Trying not to worry ...

How do you not freak out when you are presented with the possibility of cancer? I've been keeping it together fairly well if you scratch the first few days and the excessive praying and trying to ignore every ache and pain I feel. My story - I went to my Gyn in December. I was having pain with intercourse, I was about to turn 40 and simply asked if that was normal. I am healthy, in good shape, and still menstruating regularly. He didn't seem to concerned, but schedule me for an ultrasound. Where I live those apparently take 6 months to obtain. I had some new symptoms appear about March, frequent urination, urgency and discomfort with a full bladder and some bowel inconsistencies. Oh yeah and a bit of bloating. When the ultrasound took place the end of May and the radiologist spend an unusual amount of time pressing on a very tender left spot in my belly I was pretty sure she saw something. Two days later I was told there is a mass in my left ovary or that has become my left ovary and that it looks complex with blood vessels, yada, yada, - looks suspicious. I had a CA125 a few days later which came in at 57.8. It took 3 weeks to see the oncologist/gynecologist. Of course I asked if it was cancer, what she thought , she said "not necessarily" but couldn't promise until they took it out. (That's reassuring right??) She said it showed some signs of being cancerous and had blood flow which was a bit concerning. To top it off my grandmother and my aunt both loss their lives at 59 to this disease. She told me with the family history I should have a full hysterectomy. - Did another CA125 as it had been a month since the first one and it was at 44.2 ( more reassurance right??) Just got my surgery date which is July 26. Yes I am petrified. But praying that the low CA125 means it's not cancer. I seem to have developed a swollen lymph node in my neck on the right side, I feel a cramp or pain on my right in my belly. There is a small lump in my left breast which has just appeared - I feel like I'm freaking out and every little ache or pain is convincing me this is bad and it's spreading. Ive only got 13 days to surgery, but should I call with my new symptoms or stick it out? I'm just so afraid of what sort of state I'm going to wake up in that day

 
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Old 07-13-2017, 11:26 AM   #2
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Re: Trying not to worry ...

Hi I read your post and wanted to say I understand your fears and feelings. I had cancer two times, one breast and one bladder. Fortunately for me they got it early and I had treatment. It is good that you are having surgery so they can get to the root of the problem. I am praying that it is early and that you will be fine. Please let me know what happens and find other friends and family that can be there for you to share your fears and yet be an encouragement to you because there is always hope and many are survivors of many things in this life. I hope you have faith because that helped me a lot when I went through my fears of the unknown. God bless and keeping positive thoughts about you.

 
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Old 07-14-2017, 04:01 PM   #3
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Re: Trying not to worry ...

I'm sorry you're dealing with this! I've been there and the fear can take over! The good thing is that most ovarian cysts, even complex ones, are benign. And yes, the CA125 test isn't accurate at diagnosing ovarian cancer since benign conditions can cause an elevated result.

With your family history, have you considered BRCA1 and BRCA2 testing? I know the thought of OC is scary. But ovary removal is said to cause more harm than good in women who aren't high risk since their removal is associated with accelerated aging and a number of chronic health conditions. Our ovaries produce hormones our whole lives, primarily testosterone after menopause, to keep us healthy.

Unfortunately, many women lose an ovary(ies) for benign cysts. A surgeon with good cystectomy skills can usually remove cysts and save the ovary or enough of it to produce those critical health promoting hormones.

I was in your shoes 11 years ago and wish I'd done things very differently. The cyst was all that needed to be removed since the frozen section done during surgery was benign. The loss of my ovaries and uterus have been devastating. I don't have a family history of OC but if I did, I'd want genetic testing before proceeding (knowing what I now know).

I wish you the best in getting proper and restorative treatment! I hope you have a good outcome! Keep us posted.

 
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Old 07-17-2017, 11:18 AM   #4
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Re: Trying not to worry ...

I'm an ovarian cancer survivor of three years and five months. The surgeons weren't sure until the mass was removed and tested. My CA-125 was normal. I had a radical hysterectomy and removal of omentum. This surgery saved my life and I am now completely well.

Be guided by your doctors. I hope everything goes well for you on the 26th.

 
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Old 07-21-2017, 09:58 AM   #5
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Re: Trying not to worry ...

Quote:
Originally Posted by Froodie View Post
I'm an ovarian cancer survivor of three years and five months. The surgeons weren't sure until the mass was removed and tested. My CA-125 was normal. I had a radical hysterectomy and removal of omentum. This surgery saved my life and I am now completely well.

Be guided by your doctors. I hope everything goes well for you on the 26th.

 
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Old 07-21-2017, 10:03 AM   #6
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Re: Trying not to worry ...

Thanks for the support everyone. I do really appreciate it. You can only drag your friends down for so long with the constant upset and worry. My surgeon who is also a cancer specialist wants to take everything, and I agree with her. With the family history it poses quite a risk. I have not had the genetic testing done but will as soon as all of this settles, and will definitely be doing it for my daughter. I had my pre-op yesterday which brought only more bad news. My haeomoglobins are crazy low. My iron level is at 63 instead of 120. Now the nurses say that could be because of my heavy periods for the last year, but the surgeon says it could be related and so we are proceeding with surgery anyway. I had an iron infusion today, another Monday and Tuesday. They are hoping to bring it up a bit before surgery on Wednesday. Anyone else have this happen?

 
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Old 07-23-2017, 12:26 AM   #7
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Re: Trying not to worry ...

My ovarian cancer is not genetic, not all ovarian cancers are. I think you're doing exactly the right thing with your surgery. If it is cancer, you want to have the very best chance of getting it all. I have made a full recovery, there is life after hysterectomy! I live a full and healthy life!

I'm praying that everything goes well for you. Please let us know.

 
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Old 07-31-2017, 08:00 AM   #8
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Re: Trying not to worry ...

NSGirl - I've been thinking about you. Did you have surgery and how did it go? Have you gotten any pathology results? I hope recovery is going well.

 
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Old 08-02-2017, 03:57 AM   #9
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Re: Trying not to worry ...

STLouisgal, thank you for thinking of me. I had my surgery a week ago. Everything went well. It was a nightmare, with blood transfusions and iron , the whole meal deal the night before. (My hemoglobin was so low) They took out only what they were supposed to, (all the reproductive parts) and told me it looks benign. Oh my God, to be able to breathe again. I do still have to wait for pathology so I'm not completely off the hook yet, but for them to see it , specialists, and actually speak the words benign, I feel they must be pretty sure. My hemoglobin is still low due to a large fibroid that was on my uterus, but as soon as I am not afraid of constipation I will be taking the iron pills and bringing my blood up to normal. Thanks again for your thoughts.

 
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Old 08-02-2017, 05:35 AM   #10
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Re: Trying not to worry ...

I'm glad to hear the preliminary pathology was benign and hope the final one is too. Be sure to take it easy for the recommended period of time. Even if you don't have a lot of pain or discomfort, it takes a long time for all those internal sutures to heal.

 
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