I just got the results of my colpo (which, incidentally, was more painful than the first and harder to recover from... ), and find myself confused over a couple of details:
- The ECC diagnosis mentions "benign endocervix with chronic inflammation".
- The diagnosis of the multiple biopses from position 12 o' clock mentions "koilocytosis with chronic endocervicitis with squamous metaplasia".
OK, the koilocytosis (despite my negative HPV tests) and the squamous metaplasia were mentioned in my previous colpo report, so no surprise there. But what is this "chronic inflammation" in the canal? And what about the "chronic endocervicitis"?
The nurse who called with the results just said: "No cancer and no dysplasia at this time, come back for a Pap in 6 months." I just got a hard copy of my results and I am puzzled over the inflammation and endocervicitis... Do you have any experience? What are they and how do they occur? Anything I can do to make them go away?
Hi Elena, I'm surprised no one had responded to your post yet? I'll give it a shot...
I had chronic inflammation show up in my LEEP biopsy. I'm not exactly sure what causes this... sorry... The cervicitis is another term for inflammation. Basically it tells you the endocervix is inflamed but does not really give you an answer as to why.
So, how much help am I ? Not much, I know. Sorry.
So... I just did a quick search on cervicitis causes... vaginal infection, HPV infection, injury or irritation (such as tampon use, condom use), allergy to contraceptive spermicides or latex. Any cervicitis related to other std's looks like it would show up as something more specific (ie. chlamydia cervicitis). I didn't really find any info on how to make it go away, but it's probably best to make sure you follow up in six months time (which I know you will!)
I would assume my chronic inflammation was related to HPV infection although I have never had any testing to confirm the HPV infection, it was simply assumed based on my dx.
You have helped bunches! Thank you so much for responding!
I called the nurse (it is office policy not to forward patients' calls to the drs...) and was told that they had no idea what could have caused the inflammation.
I have been tested for chlamydia and found negative. So, I guess, HPV could be the cause... or it could be a transient thing... Who knows...
If it is HPV, would it mean that my body is fighting it or that the virus is taking over? Could this chronic inflammation lead to/accelerate the onset of cancer? Or, if it is just a vaginal infection, shouldn't it be treated first before they do the next smear? I have so many questions, but, frankly, I do not feel like waiting for another 6 weeks to make a "consultation appointment". Been there, done that, and these boards were vastly more helpful.
Yes, I will definitely follow up with the Pap in 6 mos, as they suggested. I cannot keep wondering though, whether the endocervicitis might be read as an AGUS by the Pap... or worse. I cannot see me getting a clear Pap smear any time soon, not at this stage of all sorts of weird cellular changes happening. I foresee a false positive LSIL/AGUS in April and another colpo shortly afterwards.
In the meantime, I will try and forget about it all for 6 mos.
How have YOU been???
Again, very many thanks for your input. It made LOTS of difference to me.
From what I read yesterday, it looks like cervicitis is likely to be read by the pap as just that, cervicitis/inflammation. If you look at the Bethesda system of reporting, there are categories that identify inflammation, changes associated with sti's, etc. That doesn't mean a guarantee that it wouldn't be misread by a cytotechnologist though. those misreads sure do wreak havoc on our lives. I'm not sure which is the lesser of two evils, an overestimation or a complete miss of cell changes. I've had it both ways, and they each suck! Were you close to your period when you had your colpo? Perhaps that may have had something to do with it.
I'm not sure about all the ins and outs of the progression of the dysplasia, however I would assume because you've stayed at the low levels of cell changes that your body is doing a good job fighting off whatever it is that wants to come out to play. Hopefully your next pap will come back clear, and if it doesn't, well you know there are lots of options available to you.
The thing I find amazing about all of this stuff, when I take a few moments to reflect back on the past year, is how much strength and faith I have gained because of my journey. I have become my own best health advocate and I'll no longer settle for being dismissed by so-called professionals who think they are in a position to make a decision for me without presenting me with all the available options. I've educated myself about this horrible disease and virus, and I am able to share my knowledge with women who are feeling lost and confused. It's been a crappy year, but it has come with many positives and I finally feel like I am me again (only better!). That pretty much says it all
What a relief to hear that a Pap may read an inflammation for what it is... I will keep taking care of myself and hope for the best next spring.
I was on the 13th day of my cycle when I had the colpo, right in the middle of my cycle, that is, which is considered a good thing as colpos go. Six months ago, when I did the first colpo, I was worried because I was way too close to my period, but no inflammation was detected then. Whether this was due to different readings by different specialists or to body changes beyond predictability or anyone's control, I do not know.
This past year and a half has been quite a journey for me, too. It seems like light years away when I was taking drs at face value ("do not call us, we will call you if anything is wrong") and crying my eyes out when I found out by accident (!!!) that both my Pap and mammo of last fall had come back abnormal and the "pros" could not care less... I am a different person now, and, although a dr-patient relationship does involve a surrender of trust on my part, I take no one at face value anymore. I am stronger, although not half as strong (yet...) as many people on these boards. You are one of the people who have made a difference in my life these past months, and I will never find the words to thank you enough.
Aww, thanks for the kind words Elena. I think we're lucky to live in an age where we have access to women around the world who have dealt with something similar. I know when I first found out my pap had come back abnormal, I didn't have an internet connection! You can be darned sure we signed up very soon after I have met so many amazing women who have showed me how important it is to be knowledgeable, inquisitive and most importantly, persistant.
good luck to you, Elena, clear paps from now on sister!