I just turned 30 a few weeks ago and am now facing ovarian cancer.
It stated with severe back pain, I went to the emergency room and they ran lots of tests and found a large mass on my left ovary. The specialist called me this past Wednesday to say that the CA125 test results were really high, but he could not confirm cancer.
My case was referred to the BC Cancer Society and I am waiting to meet with them on Tuesday. There is a possiblity that this could be an endometrioma mass, which is benign. They won't biopsy it because if it is cancer it could spread more before surgery. I won't know until I wake up from surgery whether it is cancer or not.
I am so scared. If it is cancer, they will take all my reproductive organs. For me, that is a whole other set of worries and feelings about that.
I have never been more terrified in my life. My thoughts are all over the place. Any words of wisdom and encouragement would be appreciated.
Try not to worry too much. Of course I know that will be hard. A lot of times, these masses or ovarian cysts are not cancerour. So, there is that chance!
Did they say how big it was? How many cm? Why would they take all of your reproductive organs? Unless it has greatly spread or is really giant?! They may leave you with one ovary. And maybe just take out the one closest to the mass/cyst or whatever it turns out to be. There are a lot of options.
When you go to the dr. appt., be sure and bring a big list of questions. Make sure they tell you everything you need and want to know. And you can always get a secon opinion. Are you in the U.S.? Just make sure your dr. knows what he is doing and question him well be for the operation (just do it carefully, so as not to make him mad). Is it a laparascopy (sp) ? I have heard that those types of operations are not too bad.
If you still wish to have children, be sure and tell the dr. that too. Discuss everything and anything. The more informed you are, the better you will feel.
Kristina, I am so sorry you are having to go through this. If you are talking about the BCCA in Canada, I went to them as well, and I had a very positive experience. They offer a counseling service which I hope you will be able to take advantage of (it's free), and the doctors, nurses and staff are all very supportive, genuine and exude a quiet calm (if that makes sense). I had contact with two gyn-oncs there, and liked both of them very much. Always willing to answer my questions, acknowledge my concerns, make me feel confident in their care.
I hope this mass turns out to be benign for you ((hugs)), I can't even begin to imagine your thoughts and feelings right now, I will keep you in my thoughts and hope for the best possible outcome.