88Shadow

I'm so glad you're with hospice. Just to share my own experience with my 47 year old sister and her liver cancer - no one can say for certain how much time someone has left. We were told on January 9 that she likely had several weeks to two months left based on a CT scan. That was when I asked for a referral to hospice. She was in a lot of pain so our focus was to get that under control. We planned for her to stay in her apartment with me going down every day and hospice nurses visiting for as long as possible. By Saturday January 14 she was getting confused and not taking her meds right. By Sunday she was getting delusional so I packed some of her stuff and brought her home with me. By that Wednesday she couldn't even talk in normal words. I took her to the ER as hospice had no beds availabe and she was getting upset with me as I couldn't understand what she wanted - a hospice doctor came and examined her and told me he thought she had about two months left based on a CT scan to her brain and blood tests that showed her liver enzymes weren't elevated and her amonia level wasn't high (which they thought was causing the confusion.). They did take her into hospice on the 19th. I was figuring then that we had a couple of months. By Saturday the new doc she was under said she didn't have much time and she died Monday morning the 23rd. Sorry this is so long but I want to show you how NO one could tell me for certain how long she had. The docs were all over the place. And it's especially tough once they are in hospice care as hospice doesn't run tests and things like the hospital as their focus isn't on treatment but pain relief. I can say that you'll know and the hospice nurse will also direct you when it's time to move her either in with you or another relative or into hospice. Lots of prayers coming your way!