Hello everyone. I apologize if this topic was addressed before but I'm brand new to this forum, and I need some support. I finished up my treatments (chemo, internal & external radiation) in April. Since that time I've had severe urine leakage from my vagina. I go to a urologist on Wednesday. My oncologist thinks there is a fistula somewhere. I had an IVP done earlier but it did not show anything. My second major concern is about having sexual relations. When do things become "normal" again. One dr. says it's okay to have sex, so I do and there is so much pain and blood, so another dr. says not to. Then I wait for another month, and now it seems like my vagina is starting to atrophy. I'm 39 yrs. old and have the most wonderful boyfriend in the whole world and I just want to be normal again. I'm really stressed out. Any suggestions/help/words of wisdom will be greatly appreciated. Thank you.!!
Last edited by Charliesgirl; 08-21-2006 at 09:34 PM.
I'm sorry- I don't have any knowledge about what you're are going through (I'm still sort of a newbie), but I WILL say that even though one of your docs is giving you the okay for physical intimacy, it sounds like your body isn't quite ready. Each person's body is uniquely different and we all deal with these procedures in different ways...some may need more healing time than others and it sounds to me like you fall into this category.
I know this is so difficult and frustrating, but TRY not to focus so much on the "when," but instead try to focus on relaxing and getting your body good and strong again. How? I don't know. Learning to relax has always been tough for me and I know it's easier said than done. Just know that you WILL get better, at your body's own pace. And you're very fortunate to have such a wonderful boyfriend for support.
I just wanted to tell you,you are not alone,I had the same treatment my last treatment was sept.05.
Today August 2006 I have a colostomy and nephrostomy tubes draining my kidneys because my bladder was damaged severly from raditian I was so normal BEFORE the cancer now I am disabled my insided are fried for real...
Please see you Dr. and let me know what they say...I suspect they will run EVERY test known to man or at least they better!!! it took them 3 months until I finally got a dr. to listen to me then 2 weeks of testing and discovered I had a fistula and a bunch of holes in my bladder!!!!
I went to the Urologist last week. I'm scheduled to go in Sept. 11 for
"cepto (?), retrograde, and a possible stent." I'm having very little drainage right now. I really could live with it. I would love to just cancel this procedure. I just started a new job 5 weeks ago and I hate having to ask for time off. I guess a part of me is also in denial. I don't want them to find something else out, like my bladder being full of holes like you Texan1771. Like I said in an earlier post, I just want to be normal. Is there such a thing after treatments, no matter if it's surgery or chemo and radiation? I will keep everyone informed about my status. Texan1771, please let me know what symtoms led up to them discovering about your fistula and bladder.
I am sorry to hear about your situation.. and i wish you the best..
but i was wondering if i could ask how the cancer got so far? Do you have HPV? or is it something else? or naturally occuring? I am just curious about your story and the kinda situation. I just want a little more info.. Lately it seems like I've been researching Hpv for hours. I would really like to hear your story but if you are not up to it I'd understand.
Thanks - me
Actually I would like to hear many stories.. if anyone feels like talkin and handing down advice. *
Last edited by thisisme26; 08-28-2006 at 10:45 PM.
Health problems after treatments end 
I was so normal BEFORE the cancer now I am disabled my insided are fried for real...
Ginger
Re: Health problems after treatments end 
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