I had CIN II/III with glandular involvement on my biopsy – waiting for LEEP pathology to come any day.
So, I can understand how you feel. Some use CIN III/CIS (your condition) interchangeably.
Timber is 100% right. DO NOT let someone talk you into hysterectomy - esp. not at this point. CIS is very treatable - PLUS, many don't become invasive, even if some dysplastic cells persist (sometimes they become lower grade).
Well, there are a number of women who were cancer-free after CIS after LEEP or Cone, at least for 2-5 years – that I’ve seen on the board. Not too many – however, this can be because once the PAPs are back to normal, they just well, get on with their lives.
There are some studies you can read on the net, however – that give you an excellent idea – as to what is the “cure” and recurrence rate for CIS. Just go to Google or such and search for “recurrence rate of CIS III”, or “progression of CIS III to cancer”, etc.
The thing is, each case is different, so NO ONE (this is the most important thing to remember) can tell what will happen to you (me, anyone else here).
Statistically, however – the 2-5 year “cure” rate is between 67% and 90%, for CIN III and CIS, after 1 LEEP procedure.
I found that THREE risk factors that contribute to future recurrence : the presence of high-risk HPVs (16, 18, 52), involvement of glands (ASGUS), and whether endo-cervical (inner) area is impacted.
The risk factors are especially crucial if all 3 are present.
Some also say margins (clear or not) contribute to risk, some say not important.
I’m a net junkie and I found a myriad of resources which help me learn about cervical dyspasia/cancer and the expectations I may have for myself.
This is a good one: [url]http://screening.iarc.fr[/url]
Check it out! Even includes details on colpo – photos, classification, etc. All and everything.
I URGE you to educate yourself on the subject before you make any decisions. After some careful research, I found that most hysterectomies cause more problems then solutions – in the case of cancer, esp. with small cell or gland types. For periods so heavy that they require blood transfusion – maybe. Cancer – not so much. I was also astonished to find out how many women get this crippling surgery at the drop of a hat.
When I read about personal experiences of cervical cancer/hyster patients, it’s hard to gage the gravity of this cases because often it is a psycho-babble about the greatness of the “good Lawd” and how they are happy just to hang on for their 5 children, etc, etc.
I am not a medical professional, but I know quiet a bit about health. You can not cure cancer by removing a vital organ. If it was meant to spread, it will spread. I followed an alarming number of cases that started with diagnoses with CIN/CIS, went on to LEEP/CONE, to hysterectomy, to rads/chemo, to pelvic exterenomy followed by more chemo… well, that tends to be the end of it.
Personally, I’m NOT getting a hyster. Ever. Even if it turns out that an MD recommend one.
Not because I’m a stubborn ignoramus (though you can’t rule it out
, but simply because I see no BENEFIT in it, in this point in life. I’m only 32 – extremely athletic, very active, very healthy, never had anything more then a cold. I am completely asymptomatic for anything – never missed a period, never was late more then 2 days. So if someone offers me a crippling surgery from which some never fully recover, in prospects that it MAY – not will, but MAY, take care of something that MAY be ok on it’s own and only has a 30% chance of a future malignancy, why should I even consider?
If I can have a few years – mostly like decades, of high QUALITY life that I have now, why not take it – over a CERTAIN year or so of suffering with life-long adverse effects?
I’ve learned that taking certain supplements, getting plenty of sleep, cutting out sugar and upping your Ph level may be all you need, and I’m already making changes towards that. Will it work? Not necessarily. Will it help more then taking out my uterus/cervix? You’re freakin’ bet on that.
I have 100% control over what I do. I have zero control over surgeons, nurses, hospital infections, meds, negligence, etc – do I now?
Am I prepared to even consider a possibility that some bumble***** will cause accidental nerve damage and I’ll end up with urinary incontinence for life??
Are you kidding me.
Taking the uterus out is not a cure for cancer, and I’m kind of ticked off that many MDs led people to believe it is. It’s a cure of a symptom, which are dysplastic or cancerous cells. Does it eliminate the underlying causes for cancer (HPV, low cellular oxygen levels, etc)? NO. Does it weaken your immune system and aggravates the problem? YES.
My biggest issue is that cervical cancers are often under-diagnosed. By the time you’re told to get the hysterectomy, it may be too late anyway. The doctors may or may not stage the case correctly. It often seems to be the case. Yes, there tends to be a higher number of women getting cervical cancer today. Or – is it that because MORE are diagnosed? There are many invasive cervical cancers revealed on forensic pathologies of 70-80 yr old women who were NEVER diagnosed, and die of other causes… so what does that tell us, as far as survival?
Sorry, I’m venting here
I am too, frustrated. But I never take anything as a given. It could be too early for me but I like to do my research in advance and make plans accordingly.
I wish all well and best of luck of course, with whatever you chose. My opinion is just that of course; I’m not saying to disregard your doctors. Just don’t trust anyone automatically before you check out the facts or think that’s when then say “it’s your best option”, it really is.
Thoughts anyone? Comments?