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Old 07-07-2008, 06:47 AM   #1
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anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

Hi;

I am a 55 year old woman who recently just had a complete hysterectomy and part of my bowel removed because I was diagnosed with stage 3 ovarian cancer a rare form I had my first chemo and am starting a clinical trial on the 22nd of July. I am having a tough time eating and gettin back on my feet after the first chemo ldizziness leg pain and now sores on my mouth. I also have this dry cough that could be allergies they took a cat scan and said they did not see anything but I get so short of breath all the time. Just wondering if anyone had any of this.

God Bless

Cindy

 
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Old 07-07-2008, 07:52 AM   #2
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

Cindy, I'm sad to hear of your diagnosis, but I am glad you are getting treatment for it! I don't know a lot about ovarian cancer, and know even less about chemo. All I can suggest is to call your doctor's nurse and ask how to take care of your symptoms. They expect to get calls from patients and should be kind and helpful.

The only other thing I can offer is ((((((hugs))))))))) and prayers. Let us know how you are doing, ok?

 
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Old 07-07-2008, 08:18 AM   #3
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

thank you! I am actually waiting for them to call me back!

 
Old 07-07-2008, 03:23 PM   #4
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

Quote:
Originally Posted by cynthia3 View Post
Hi;

I am a 55 year old woman who recently just had a complete hysterectomy and part of my bowel removed because I was diagnosed with stage 3 ovarian cancer a rare form I had my first chemo and am starting a clinical trial on the 22nd of July. I am having a tough time eating and gettin back on my feet after the first chemo ldizziness leg pain and now sores on my mouth. I also have this dry cough that could be allergies they took a cat scan and said they did not see anything but I get so short of breath all the time. Just wondering if anyone had any of this.

God Bless

Cindy
Cindy,
I was 55 also when I was diagnosed with stage 3C ovarian cancer in Dec 2005. I had a hysterectomy and part of my bowel removed too. Maybe that is fairly common. What kind of chemo are you getting now? I was given
Taxol and Carboplatin for six months every three weeks.
I remember having muscle and leg pain, pretty common. I have heard of
people getting sores in their mouth. But I have not heard of shortness
of breath. Chemo can make you very fatigued, so try to get plenty of rest.
Also just having a hysterectomy can take months to get over and chemo can
slow down the healing process.
I'm interested to hear what the doctor has to say.
Good Luck and hang in there. You are not alone.

 
Old 07-07-2008, 06:40 PM   #5
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

thanks for responding. My first chemo was the same but because it is a rare form of cancer my next 6 will be with Avastin and then after that a year with Avastin and maybe another drug. Its a Clinical trial. I went today and they said the shortness of breath is common but they don't know what the cough is my white count was down a little and I have to go back thursday. They think the cough could be either allergies or an irritation of some kind. This will be a year and a half long. Thanks for your information and good wishes.

 
Old 07-08-2008, 09:18 AM   #6
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

Quote:
Originally Posted by cynthia3 View Post
thanks for responding. My first chemo was the same but because it is a rare form of cancer my next 6 will be with Avastin and then after that a year with Avastin and maybe another drug. Its a Clinical trial. I went today and they said the shortness of breath is common but they don't know what the cough is my white count was down a little and I have to go back thursday. They think the cough could be either allergies or an irritation of some kind. This will be a year and a half long. Thanks for your information and good wishes.

Cindy,
I have never heard of Avastin before, but if your Dr. is prescribing it that
must be the best thing for you. I also had a year and a half of chemo, and
it was a long haul. Each chemo treatment was 6 hours long. Looking back
I wonder how I got through it, but I did and you will too. Actually it wasn't
all that bad other than feeling very tired and achy for the first week or so.
I met some very nice people at the treatment center. The nurses were
wonderful and I enjoyed talking with the other patients, they became my
support group. You can be surprised what you can get through when you
have to, and this is what you need to do right now.
Keep in touch if you can and let us know how you are doing.
My thoughts are with you.

 
Old 07-08-2008, 09:28 AM   #7
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

I will thank you its nice to talk to people who understand. I try not to look at the time frame and just do one day at a time . Talk to you soon.

 
Old 07-11-2008, 09:20 AM   #8
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

I was dx with uterine & falopian tube cancer. Luckily it was stage one. I was told that falopian cancer is treated the same as ovarian.

I had to have chemo because the Falopian cancer I had was rare and aggressive. It was clear cell. I received Taxol & Carboplatin for 6 months (every 3 weeks) for 6-7 hours. I had aching muscles and numb feet. Very tired and plenty of mouth sores. There is a great mouth wash that is given for this. I foundit a great help. Towards the last treatments I also had shortness of breath. I was told that this was due to a low platlet count, red bloods cells. I ended up in the hospital for a week to try and get this count up.

This was this was 2 1/2 years ago. I am still doing well back to work full time. I was also told shortness of breath is common during treatment.

 
Old 07-14-2008, 06:10 PM   #9
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

I'm just a tiny bit confused. you mentioned stage 3 ovarian cancer but you
said sarcoma....my partner has adeno carcinoma of the ovary and was told
specifically that it is not the same as ovarian cancer. It is a very,
very rare condition and chemo does nothing for it. She had radiation
for a month and has been on femora since. Sarcoma is lesser known
and lesser funded then cancers that are not sarcomas.

she's being treated at the best hospital in new york and even these
doctors (who are wonderful) but haven't treated this diagnosis.
But they keep very close watch......ever since the surgery and
treatment. I wish you all the luck.....putting positive thoughts your
way.

 
Old 07-14-2008, 07:35 PM   #10
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

yes I have stage 3 ovariancancer but its a rare form carcinoma sarcomo the taxtol and carboplyten does not work that is why I am in a Clinical Trial with another drug called Avastin becausse you are right the regular chemo will not work. I start next week but I am still really weak from the surgery so I am praying I will be able to do this. I had to have shots of Neuprogen all this week because my white blood cells have gone way down. Hope all goes well with your friend. CIndy

 
Old 08-08-2008, 09:36 AM   #11
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Re: anyone been diagnosed wi th stage 3 ovarian cancer carcinomo sarcoma

I'm glad my question open some dialogue for you. I gave the wrong diagnosis. I'll have
to re-write my question. It's really adenosarcoma of the ovary and the doctor said not
to read about ovarian ca. because it's totally differnt.

 
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