Hello new friends,
So, I just got back from my first appointment with the Oncologist today.
It looks as if I am a Stage IA2, but she is not for sure. I am ordered to have a MRI and CT scan this week. She is hopeful that I will be a candidate for the trachelecotmy surgery where they remove the cervix only and keep the uterus intact, so I will possibly be able to bear children in the future. I am lucky as there is a doctor in this office that performs this surgery.
Does anybody have experience or know somebody who has had a trachelectomy??? The research I have read is not too promising. The fertility rate is only about 40% and then there is a much higher chance of miscarriages even in the second trimester. Yikes!
Also does anybody have any experience with using a surrogate mom? I have one baby girl, Allie 10 months, but I would really love to have another child! I feel kind of "jipped" because I did have Pap smears every year. I did everything you're supposed to do, so I am still left asking Why? If only they would have had Gardisil ten years ago....
Just wanted to tell you I understand how you feel.
I have a 20 month old too and would love to have one more..
I've done everything right too... but I have cysts on one ovary, and in the breast and which are both getting very painful and I go for a follow up ultrasound tomorrow.
I am so worried I hope I see my daughter growing up an I hope I don't have cancer that could explain the cysts forming suddenly everywhere and other symptoms.
My hopes are gradually changing from being able to have a second child to being able to look after my only child.
Don't worry.. if it helps to know there are others feeling "jipped" too :-)
Hi Rachel. I'm so glad you saw the onc, was it a gyn/onc? I don't have any experience with the trach. , but will keep you in my prayers. Please let us know how you are doing. Have you scheduled your surgery?
I did go to a gyn/onc. I am still waiting on getting scheduled for the MRI and CAT scan. I can't believe it is taking it so long to just get scheduled. They are having to get precertification for insurance, and you know how that goes! I hate the waiting game. That is the worse. Oh well, I can't get my surgery for a few more weeks anyhow because I am still healing from the LEEP procedure.
Does anybody know what the MRI and CAT scan shows? I am probably being paranoid, but part of me wants another biopsy done just to make sure of the results...It seems like such a big decision to have a hysterectomy based on one test.
Thank you for all your warm thoughts and prayers. Dream, let me know how your ultrasound goes!!